Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Endoscopy Or Not To Endoscopy?


0range

Recommended Posts

0range Apprentice

Hi everyone!

 

I did my second TTG-IgA test in 12 months, and it was overwhelmingly negative. Thyroid levels are going ok too, maybe a bit on the higher side but I am wary of increasing my dose due to an overmedication episode last year (when I was overmedicated, my FT4 was at 19 so am way too sensitive to even a slightly higher FT4 level). So the TTG-IgA came back negative, and my doctor told me it is an exceptionally sensitive blood test so I probably do not have celiac. A link to my results: Open Original Shared Link

 

The TTG-IgA cost around $60 (but I ended up only having to pay $12 thanks to school insurance) but I am not sure if ordering other celiac tests would be worth it. Canadians: Is it possible to order the other tests without ordering the TTG-IgA again? Is it worth pushing for an endoscopy? I doubt it would provide any answers. I have had tarry black stool, so the doctor told me to do another stool test (that's about 4 in a year which is always fun to collect haha) but an August colonoscopy only revealed mild inflammation at the terminal ileum.

 

I feel horrible but I've come to accept this IBS/SIBO/Hashi's existence at the moment. Joint pain, crippling anxiety, chronic diarrhea has been the name of the game for at least a year. I have given up wheat for a few weeks but I always come back to it, and even when I'm not eating wheat, I don't give too much thought to cross-contamination. I just feel so upset about all of this. The answers are not very simple, I'm afraid.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fenrir Community Regular

If you have not had one, I'd consider it. If you want answers, you need to look under every rock. 

I had 2 EGDs, a colonoscopy, MRI, CT, Ultrasound, and tons of blood tests before I was DX'd.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,115
    • Most Online (within 30 mins)
      7,748

    Jacqueline12
    Newest Member
    Jacqueline12
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • StaciField
      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...