Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Few Questions


ashleyld

Recommended Posts

ashleyld Rookie

We just got our daughters endoscopy results. They are positive.

Do I need to replace all the cutting boards and cooking utensils? Anything else that can potentially hide gluten I need to think about?

Silly question maybe... I know rice is gluten-free.. is there anything I need to worry about?

Anything else that is easily overlooked?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Read the newbie section under the "coping" section of this forum. Also, my husband went gluten-free 13 years before me. I think it is easier to make the entire house gluten free for a while. Better for her and for you. Testing is in order for all of you. Do not stop eating gluten until testing is complete.

Welcome!

Celiacandme Apprentice

The toaster, collanders, wooden/plastic cooking utensils, collanders, anything plastic, etc. I even replaced my canister set because the rims of the tops had plastic in order to suction/securely close. I didn't want to take a chance; I figured the flour wouldn't get out of the plastic no matter how hard I tried. You shouldn't have to worry about rice, I don't think, unless you are buying something packaged with seasoning/mix. Plain white or brown rice would be fine though.

 

The Gluten-Free Grocery Shopping Guide by Cecelia's Marketplace is a handy little book that fits in your purse which helps if you are questioning whether something is safe when grocery shopping. (There are symbols and a chart which explains which products are guaranteed gluten-free, processed in a dedicated facility, in a shared facility, etc.)

 

Don't forget to make sure chapsticks/toothpaste are all gluten-free. (if she has DH, the skin version, you'll need to make sure lotions, shampoos, etc are also gluten-free) I haven't read your previous posts so I'm sorry if this is all just repeated information for you.

 

I hope she starts to feel better before you know it.

 

~Julie

BlessedMommy Rising Star

Also, if you have cast iron pans, putting them in a self clean cycle of the oven (which gets up to 900 degrees) will burn off any gluten. Then re-season them and they should be safe for use.

 

Don't forget waffle irons! It's pretty much impossible to get the gluten off of a used waffle iron. Flour sifters should also be replaced.

BlessedMommy Rising Star

One unlikely place where gluten hides is in salad dressings. Fillers, thickeners, vinegars, and soy sauce. Always verify gluten-free status of salad dressings before using.

ashleyld Rookie

Thank you so much! How do I know if she has the skin version? Will that come out in time? It might be the cause of the weird rashes she gets every once in a while

mamaw Community Regular

Just  a note  Vinegar,,, white  distilled  or  apple  cider  vinegar  in the US  is  gluten free..... flavored  vinegars may not be....

 

Malt  products  are  also not  gluten-free...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You can't get a celiac reaction from skin contact. You have to get the gluten into the intestines. So,,,,if it might get into your mouth, it should be gluten-free. Shampoo might get swallowed by some people. I just look for ingredients like wheat germ oil and avoid those because , even tho I am an adult, I get shampoo in my mouth.

mommida Enthusiast

I think her daughter was getting odd skin rashes.  Her odd rashes may have been from fat malabsorption, hyperkeratosis folliculitis, or dermititus herpetiformis (DH).

 

I still think newbies should keep a food journal.  It can help track down cross contamination sources.  (we had a bottle of vanilla that I kept from kitchen clean out that must have been cross contaminated from gluten baking.)

ashleyld Rookie

^^ good idea! I'll start today with the journal!

Thanks about the vinegar I had no idea! I'm going to go home and check all the salad dressings

africanqueen99 Contributor

I ran this process in waves once we got our DX.

 

1. Had one last "Goodbye to Gluten" party!  Friends over to eat out our freezer and pantry.  It was awesome fun for the kids. :)  We had so many desserts of just gluteny goodness!

2. Got rid of all gluten containing food.  Friends, food bank, a family on Craigslist took all the expired things.  ANYTHING opened went away - spices, condiments, etc.  I wasn't chancing anything with small kids.

3. Started cooking gluten-free with my regular kitchen items - all the while I was slowly paying attention to what I was using and replacing those things leaving them in the package in another room.  Cutting boards, toaster, these gorgeous wooden/bamboo bowls, anything plastic/metal/silicone, pasta strainer, fry daddy thingy, knife block, silverware separator thingy, cupcake/cake pans.  Some things I didn't replace b/c I realize that I never used them.

4. Once I had my bearing (it took less than a week to figure out what I was using) I had the Great Kitchen Clean of 2013.  Yes, it was the cleanest my kitchen had ever been!  Everything came out, cabinets scrubbed, refrigerator scrubbed.  It was great!  Then I opened all those lovely packages and had a new kitchen!

 

About 2-3 weeks after I did the kitchen I moved to the bathrooms.  Every open medication was pitched.  Shampoos/conditioners/body wash = swapped to gluten-free products.  Toothpaste, chapsticks, hand lotions (we hit Winter shortly after this happened and finding a gluten-free hand lotion for our cracking knuckles was HORRIBLE!!).  Right now I'm looking into sunscreen and bug sprays to use for the summer - this researching mom gig never ends.

 

I've been at this a while and have a completely gluten free house and car - with the exception of some beer and my husband's shaving cream.  I am crazy, crazy about things coming in to the house.  My youngest is still a toddler and would 100% eat something off the floor so friends just aren't allowed to bring food over.  Also, I make every kid entering my house wash their hands.  This is a hugely social house and nobody complains about hand washing.

 

ETA: If you're looking at a product and just not sure if you want to allow it in your house - call the manufacturer.  Seriously, I'm the lady in the aisle at Target calling the company on my cell.  And don't ever worry about asking questions from the slew of moms here.  We totally get it! :)

africanqueen99 Contributor

You can't get a celiac reaction from skin contact. You have to get the gluten into the intestines. So,,,,if it might get into your mouth, it should be gluten-free.

OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too.  Kids always seem to have their dirty hands in the mouths.  Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in.  Why are kids so weird?

kareng Grand Master

OP's kid is still really young so I'd recommend making anything on the skin be gluten-free, too.  Kids always seem to have their dirty hands in the mouths.  Heck, my 8 y/o and her gross little friends can't stop picking their lips and sticking fingers in.  Why are kids so weird?

 

 

I think I did say that if it would get in your mouth it needs to be gluten-free and that I get shampoo in my mouth.  I am as bad as an 8 year old, I guess.   :o

 

The real point is that gluten has to be in the intestines.

africanqueen99 Contributor

^^^ Oh, I get it.  My 2 y/o was licking her arms the other day.  Why?  Heck if I know!  But lotion would end up in her intestines.

 

I'm sure you are nowhere near as bad as an 8 y/o.  At least you shower!

ashleyld Rookie

LOL Yes my daughter is 3. She doesn't put things in her mouth but it doesn't mean i don't catch her fingers in her mouth when shes eating or wiping her face. And yes.. my 6yo started sucking his fingers recently. YUCKO

BlessedMommy Rising Star

I like Seventh Generation products. Their baby lotion and their baby shampoo/body wash are both gluten free and say so on the label.

mommida Enthusiast

My daughter was really young.  (with PICA/iron deficiency that causes the individual to crave non food items)  She went to eat dog food.  So check the pet's food too.  Interesting enough there are so many pet foods labeled gluten free now. :rolleyes:

africanqueen99 Contributor

^^^ Good point. My kids are responsible for feeding the dog and providing treats. We had to switch out all that. I didn't want any chances.

FWIW, the dog's coat looks so much better on the grain free diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,311
    • Most Online (within 30 mins)
      7,748

    SWilson
    Newest Member
    SWilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, Linda! Many on this forum can sympathize with you. It can be extremely difficult to get reliable information about gluten when it comes to meds, supplements and oral hygiene products. This is especially true since so much of this stuff is generic and comes from over seas. I will deflect with regard to your question about meds and oral products but take you in another direction. Have you tried a low iodine diet. Iodine is known to exacerbate dermatitis herpetiformis and some find that a low iodine diet helps reduce the number of outbreaks. By the way, have you had your celiac antibodies retested recently? If they are elevated that might be a clue that you are getting gluten in your oral hygiene products or meds.
    • Itsabit
      Hi. I’m 70 years old, and a 22 year survivor of head and neck cancer treated with chemo-radiation, which resulted in non-existent submandibular salivary glands and extreme dry mouth and altered oral mucosa. I have been using dry mouth toothpaste, Rx oral dentrifices and moisturizers for years.  I’ve recently been diagnosed with severe celiac dermatitis herpetiformis. I was being treated with oral Dapsone, but it was not effective and I developed some serious side effects. So, the medication was stopped and I was started on Doxycycline (another antibiotic) for inflammation. I’ve been using Rx Betamethasone steroid ointment with little to no effect. I have tried every oral and topical antihistamine treatment available OTC. None have touched this horrible relentless itching. That is my history.  Now to my question. Does anybody know about gluten free toothpastes and mouth moisturizers? I ask because a very common dry mouth brand stated to me that they were indeed gluten free. But as I am not getting any better with my dermatitis herpetiformis, I was wondering if I was getting glutenized some way other than diet as  I have been following a strict clean gluten free diet, but I am not seeing any improvement at all. So, I started looking up the toothpastes and moisturizer ingredients individually and nine (9) of the eleven (11) or so listed showed up as   containing gluten or that may have gluten! Am I getting glutenized orally by these products?  As an aside, I checked on my favorite lavender scented baby lotion which is supposed to be gluten free, but many of those ingredients when investigated separately, show they  do contain or may contain gluten as well. I stopped using the lotion. But I cannot forgo my dental care. I was unable to get any information from the manufacturer of my current brand of chewable multivitamins either. They told me to check with my doctor. If THEY don’t know what’s in their product, how do they think a PCP will?  In light of all this, I am confused and angry that I might keep getting contaminated with gluten through products I am using that are supposedly gluten safe. *I should also state that I have a nickel allergy since I was about 12-13 years old. And I developed a contact allergy to latex (gloves) when I was a student nurse at 19 years old.  I know and I’m sorry that this is so lengthy. I’m trying to do everything I can to combat this condition, and I’m feeling very confused, anxious and angry about not getting adequate information as I try to educate and advocate for myself. I’m hoping someone here is more knowledgeable than me of how to navigate through all of this. Can anyone offer any advice?  Thank you for your time.  Respectfully,  Linda
    • trents
      Welcome to the forum, @Cathijean90! I went 13 years from the first laboratory evidence of celiac disease onset before I was diagnosed. But there were symptoms of celiac disease many years before that like a lot of gas. The first laboratory evidence was a rejected Red Cross blood donation because of elevated liver enzymes. They assume you have hepatitis if your liver enzymes are elevated. But I was checked for all varieties of hepatitis and that wasn't it. Liver enzymes continued to slowly creep up for another 13 years and my PCP tested me for a lot of stuff and it was all negative. He ran out of ideas. By that time, iron stores were dropping as was albumin and total protein. Finally, I took it upon myself to schedule an appointment with a GI doc and the first thing he did was test me for celiac disease. I was positive of course. After three months of gluten free eating the liver enzymes were back in normal range. That was back in about 1992. Your story and mine are more typical than not. I think the average time to diagnosis from the onset of symptoms and initial investigation into causes for symptom is about 10 years. Things are improving as there is more general awareness in the medical community about celiac disease than there used to be years ago. The risk of small bowel lymphoma in the celiac population is 4x that of the general population. That's the bad news is.  The good news is, it's still pretty rare as a whole. Yes, absolutely! You can expect substantial healing even after all these years if you begin to observe a strict gluten free diet. Take heart! But I have one question. What exactly did the paperwork from 15 years ago say about your having celiac disease? Was it a test result? Was it an official diagnosis? Can you share the specifics please? If you have any celiac blood antibody test results could you post them, along with the reference ranges for each test? Did you have an endoscopy/biopsy to confirm the blood test results?
    • Cathijean90
      I’ve just learned that I had been diagnosed with celiac and didn’t even know. I found it on paperwork from 15 years ago. No idea how this was missed by every doctor I’ve seen after the fact. I’m sitting here in tears because I have really awful symptoms that have been pushed off for years onto other medical conditions. My teeth are now ruined from vomiting, I have horrible rashes on my hands, I’ve lost a lot of weight, I’m always in pain, I haven’t had a period in about 8-9 months. I’m so scared. I have children and I saw it can cause cancer, infertility, heart and liver problems😭 I’ve been in my room crying for the last 20minutes praying. This going untreated for so long has me feeling like I’m ruined and it’s going to take me away from my babies. I found this site googling and I don’t know really what has me posting this besides wanting to hear from others that went a long time with symptoms but still didn’t know to quit gluten. I’m quitting today, I won’t touch gluten ever again and I’m making an appointment somewhere to get checked for everything that could be damaged. Is this an automatic sentence for cancer and heart/liver damage after all these symptoms and years? Is there still a good chance that quitting gluten and being proactive from here on out that I’ll be okay? That I could still heal myself and possibly have more children? Has anyone had it left untreated for this amount of time and not had cancer, heart, fertility issues or liver problems that couldn’t be fixed? I’m sure I sound insane but my anxiety is through the roof. I don’t wanna die 😭 I don’t want something taking me from my babies. I’d gladly take anyone’s advice or hear your story of how long you had it before being diagnosed and if you’re still okay? 
    • trents
      Genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and also to establish the potential to develop celiac disease. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop it. To develop celiac disease when you have the genetic potential also requires some kind of trigger to turn the latent genes "on", as it were. The trigger can be a lot of things and is the big mystery component of the celiac disease puzzle at this point in time with regard to the state of our knowledge.  Your IGA serum score would seem to indicate you are not IGA deficient and your tTG-IGA score looks to be in the normal range but in the future please include the reference ranges for negative vs. positive because different labs used different reference ranges. There is no industry standard.
×
×
  • Create New...