Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Potlucks

BlessedMommy

Recommended Posts

BlessedMommy Rising Star
BlessedMommy
Posted

You know, something recently occurred to me. If I got to a celiac potluck, should I even eat the food there? Or should I find out what the celiac's practices are who cooked it? There are many celiacs who will do stuff like discard the bun and eat the burger. I also don't really know if they cleaned their house out and got rid of old pans and utensils after getting dx'ed. What would you/do you do? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

I  think  you  know who  you should trust  & who not to... But  asking  is  okay  but  can cause  hard  feelings  esp if  its an old time  celiac!!!!   But  ask  anyway...  I  run a  support  group & whenever  anyone  brings  in gluten-free  food  I  tell them they have to  bring in the  ingredients to  share   &  I  have a  disclaimer  ... everyone  eats  at  their own  risk, everyone  must police  themselves  & parents  are in charge  of  the kids.... it's  a  chance  some  take  & others  don't...

Now  if  it is  someone  who  is not  celiac , I would question  everything......

I feel  people  you know  who may invite you  for a gluten-free  social , you would  probably know  them personally  so  you  could  easily  judge  whether  you would  eat  the gluten-free  food... ie: a  celiac  who you knows  cheats  or  doesn't  care  about CC... or  who  eats out  &  like  you  said  doesn't  care if  they have to remove  the bun....I  would  never  eat  at  their  house!!!!

 

I know  celiac  people who have been dx'd  over twenty  years  & don't  get  the CC  issue...they eat  spelt  saying it  doesn't  bother them....spelt  is  wheat..... so  I NEVER go there... they actually got angry at me  for  showing them  evidence  that  spelt  was a member of the wheat  family....now  they  want  nothing to do with me... You know  shoot the messenger

Adalaide Mentor
Adalaide
Posted

The local GIG group here does a potluck in the park every August. I haven't gone yet. I also backed out of the Christmas cookie thing at the last minute. I know in theory everything should be safe, but who knows what those people are doing? Frankly, if someone lived like I have up until now I wouldn't eat anything they make. I trust me to make safe food in a shared kitchen but I wouldn't trust a single other person to do it without knowing them super well, and I just don't know any of them well enough to trust them. Even if I did, trust is a luxury I simply can't afford. Grilling them would just make them mad, and not eating would be awkward so I just skip it. But... that's just me. I'm not saying that people can't/shouldn't go and enjoy. I'm OCD so that plays a part in my feelings about things.

KCG91 Enthusiast
KCG91
Posted

Hmmm, tricky. My ex (I wasn't diagnosed, he'd been diagnosed as a kid) has coeliac and his kitchen was shared but absolutely everything was separate, textbook. I'd definitely eat there. But the guy drinks regular beer and thinks that's OK... I'd always ask (if it's a coeliac potluck organised by a group, maybe they could have some guidelines that everyone adheres to if they want to contribute?)

Nikki2777 Community Regular
Nikki2777
Posted

I can't imagine a Celiac tossing the bun off a burger and eating it.  You've seen someone actually diagnosed doing that?   For me, I'd probably trust it if I knew these people were true Celiacs and not just gluten-free for the diet.  But it's always safer to bring your own.  If you are nervous and don't want to say anything, just bring your own dish, serve yourself first and then don't eat anything else (or seconds).

BlessedMommy Rising Star
BlessedMommy
Posted
  • Author

Believe it or not, some DX'ed celiacs are pretty lax. I went to a food sampling once and someone announced that the gluten free people could go through first so that they could get the condiments before they got contaminated. The other gluten free person (who was a biopsy proven celiac) said, "No I don't have to do that, I'm not THAT sensitive."  :ph34r:

Adalaide Mentor
Adalaide
Posted

I can't imagine a Celiac tossing the bun off a burger and eating it.  You've seen someone actually diagnosed doing that?   For me, I'd probably trust it if I knew these people were true Celiacs and not just gluten-free for the diet.  But it's always safer to bring your own.  If you are nervous and don't want to say anything, just bring your own dish, serve yourself first and then don't eat anything else (or seconds).

 

Seen dx celiacs post here about taking burgers off buns, meat/veggies off sandwiches. I've talked to one (in person) who I had to explain to about regular Rice Krispies. The beer thing comes up all the time. What if someone uses regular Rice Krispies and doesn't know? What if someone makes a dish with Omission beer in it, or even regular beer because they think that's fine.? (I wouldn't eat that under any circumstances.) What if someone has a shared kitchen with lax rules, like sharing wooden spoons and not washing cutting boards or surfaces?

 

Asking every person there to explain exactly what is in every dish and how they keep their kitchen safe is absurd at a potluck. There are simply too many people. I'm sure there are many there who will eat, enjoy and be perfectly healthy. I would be sick to death from the stress over it all. I have never taken meds for my OCD, because I control my anxiety by controlling my environment and my actions. That is why I would never risk my health for a potluck with a group of celiacs I don't know super duper well.

 

Now... with a some of you guys at Irish's new house? When was that party scheduled again?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,412
    • Most Online (within 30 mins)
      7,748
    Leslie Smith
    Newest Member
    Leslie Smith
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Waiting on Blood test results…

      By Scott Adams · Posted

      It looks like they will now order the Tissue Transglutaminase IgA Antibody test, but verify this with your doctor.
    • trents
      Reaction to gluten or gastro bug?

      By trents · Posted

      I think you know enough to conclude that your son either has celiac disease or NCGS (Non Celiac Gluten Sensitivity). As soon as you removed gluten from his diet his stools firmed up. It is also very common for celiacs to be intolerant of dairy and soy, so that is another piece of corroborating evidence. If I were you, I would consider getting your sone genetically tested for the genes we know are associated with celiac disease. There are two main genes looked for, HLADQ2 and HLADQ8. Having either or both provides the potential for developing celiac disease. But since about 40% of the general population have one or both of the genes it cannot be used to diagnose celiac disease. But it can be used as a rule out measure if both are absent, thus pointing one in the direction of NCGS. If one or both are present, there is the possibility of either celiac or NCGS. NCGS is 10x more common than celiac disease by the way. The two conditions share many common symptoms. The difference being that NCGS does not damage the lining of the small bowel as does celiac disease. Celiac disease is actually an autoimmune disorder. At any rate, both conditions require a gluten free diet so, at the end of the day, that is the antidote for both. Some experts feel that NCGS can be a precursor to the development of celiac disease.  I would also make mention of the fact that once gluten is removed from the diet and then added back in for the gluten challenge, reactions are often more violent as all tolerance has been lost.
    • cristiana
      Reaction to gluten or gastro bug?

      By cristiana · Posted

      Hello @Beck1430 and welcome to the Forum. I am sorry your little boy is going through this. Your question is an interesting one.  I would say the majority of posts I have read since joining this forum speak of a fairly quick reaction, and that has been my own experience.  The only major gluten hit I've had in more recent times resulted in chills, dizziness and vomiting about 2-3 hours after eating gluten.  It was truly horrible.  The fact that I vomited was new for me - I didn't get diarrhea which had been my classic reaction in the past.  It was as if in going totally gluten free my body has decided to react more violently to gluten, and quite differently.  Reactions can change over time - the fact that your son is reacting differently doesn't necessarily mean that gluten isn't the culprit. Anyway,  this study is interesting in that it states that it is possible to react 12 hours later. https://www.schaer.com/en-us/a/how-long-after-eating-gluten-do-symptoms-start#:~:text=A survey published in Alimentary,by 12 hours or more. I am afraid the only way you will probably know for sure is to repeat the challenge again, but I can completely understand your reluctance to do that.  I wonder if I can ask a couple of questions: Regarding the rash - has that also subsided since giving up gluten?   There are quite a lot of photos of dermatitis herpetiformis to see online, I wonder if you think what your son had/has was similar? Also, do you have coeliac disease in the family?  It is inherited and if you have others in the family, that could point more strongly to your son having coeliac disease. Cristiana
    • Beck1430
      Reaction to gluten or gastro bug?

      By Beck1430 · Posted

      Hi there, I'm looking for some advice for my 2 year old. After he turned one he started eating more foods like pasta and breadsticks and our supermarket finally started to stock a soy free bread (he has an intolerance to dairy and soy) so he started eating bread for the first time.  He began having foul, loose nappies, which I assumed must be teething, but this went on and on for a couple of months. Coupled with that, he started having patches of red scaly skin, a little bit like eczema but more widespread. He was also very tired and quite miserable. Given that it all coincided with him starting to eat a lot more gluten, his dietician recommended I eliminate gluten to see what happened. His poos immediately changed back to normal and were finally formed, and he’s been off gluten since last summer.   Fast forward 6 months and we did a wheat challenge yesterday, giving him a small breadstick at about 11am. He seemed ok through the day but 11pm he woke up vomiting, and was sick 3 more times over the course of 90 minutes and was writhing in pain on the floor crying about “poo” which never came, and today he has done a normal poo.  My two questions are: Is it possible that this was a reaction to the gluten if it came 12 hours after ingestion? Or is that too long to cause vomiting? I wonder if it’s more likely an unrelated bug but can’t work out where from as we’ve had a quiet week. Would there not be loose stools too if it was a reaction to gluten? Before going gluten-free, this was his main symptom!   If it could be the gluten that caused this, where do we stand with ever testing for coeliac? Now that I know more about the testing I don’t know why his dietician didn’t recommend we do that before removing it from his diet before. Seems cruel to make him ill for the sake of a test. Grateful for any pointers or advice. Thank you!   
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Okay thanks Scott. So based on my results will they order more tests to be done? Kind of confused.
×
×
  • Create New...