Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dh Disappear And Reappear?


anti-soprano

Recommended Posts

anti-soprano Apprentice

Hi All,

This question is regarding my 2 year old niece who has been breaking out in hives as of late.  I am a celiac without DH symptoms, my sister is likely a celiac but undiagnosed (gluten free), my niece's paternal grandmother and great grandmother are also celiac.  So the kid is in the middle of a genetic minefield.

 

Apparently, she has been breaking out mostly at night and wakes up in the morning with hives/rash all over her belly, back, and sometimes her arms and legs depending on how bad it is.  The rash disappears pretty quickly.  The first time they took her into the pediatrician and it was no longer there at that point.  This morning, it disappeared as they were eating breakfast.  She is left with a few random hives throughout the day, but not the all over rash.  She does eat gluten, especially at school and she had a roll last night at dinner.  This could be so many things, but I know very little about DH.  Does it come and go that quickly or does it stick around for long periods of time???

 

She does have some GI symptoms (Constipation) which is leading me to ask this question..

 

Thanks for your help!

Shellie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Hives are generally due to an allergy. Does she have a pet that sleeps in her bed? Anything else she is exposed to overnight that she isn't exposed to any other time? I'm quite familiar with hives (which aren't DH to the best of my knowledge/experience) and it's normal for me to have them crop up, then go within hours once I'm no longer in contact with the allergen that caused them. Faster if I take something.

cyclinglady Grand Master

When my daughter was sick one weekend, she kept asking for Orange juice. We complied thinking she needed to stay hydrated even though we normally do not allow juice (eat the fruit). She broke out in a rash and took her to Urgent care thinking she had some weird virus. They were not concerned about the rash. It went away. Then a few months later, I was juicing fresh oranges from our abundant tree and she broke out again. Tested her a few days later after the rash had gone and it came back. No OJ for her. She does eat oranges now but in moderation.

Maybe allergies for your niece?

anti-soprano Apprentice

Hi Ladies-

The first thing I thought was allergies- most likely something related to food (as a child I broke out in hives to strawberries and chocolate milk and it eventually faded away).  But seeing as though I don't have and therefore aren't familiar with DH along with her genetic chances, I wanted to check.  So I'm assuming that DH sticks around without fading quickly while hives can come and go- is that correct?

cyclinglady Grand Master

DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

I am knocking on wood now, hoping that I will never experience DH!

anti-soprano Apprentice

DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

 

Thank you!!  This is exactly what I wanted to know.

Adalaide Mentor

I never realized the rash on my back was DH. It came and went, but never quickly, over the years. My lower back and my neck are covered in scars from scratching until I bled and scratching more. I ruined shirts, and kept scratching. It took it clearing up, then breaking out again once after my diagnosis for me to figure out what it was. It was never large hive sized swollen wheals, it was always small gross, nasty things that made me scratch my skin right off my body. It can be different for other people, but I've never heard of it described like hives which is why I mentioned allergies. (That isn't to say with her genetic jackpot that she shouldn't be being tested periodically.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 months later...
Rita L Newbie

DH is supposed to be INSANELY itchy and lasts and lasts long after exposure to gluten. Scabs form over the water-filled hives as you scratch even in your sleep. Folks get scars from scratching.

Allergies affecting the skin can be itchy, but I do not think they would be in the insane category. I get hives from the cold that wheal up and itch, but they resolve quickly as do some of my reactions from meds. An antihistamine usually does the trick. Nothing seems to help DH except for strict avoidance.

I am knocking on wood now, hoping that I will never experience DH!

The itching and burning is insane. I have scabs forming now. I'm only on my 3rd major breakout but 1st to figure out what it is. I've been working up to this for years but on a much smaller scale. I've been gluten free for years so I need to figure out what my other triggers are. Back to the food diary again....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,213
    • Most Online (within 30 mins)
      7,748

    TeriH
    Newest Member
    TeriH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.