Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Patient Symptoms When Gluten Is Consumed

Kelsie

Recommended Posts

Kelsie Apprentice
Kelsie
Posted

Hi, I hope this doesn't seem like a silly question, but I'm waiting to see my GI specialist and I still have no idea what's wrong with me. I'm curious though if one has celiac disease and gluten is consumed do all patients require emergency care or can the symptoms vary?

Based on my previous posts and my symptoms I feel pretty confident I am either celiac on NCGS, but if I consume bread or gluten I don't always have an immediate severe reaction. Sometimes it's brain fog, a headache the following day that last a day or 2, or puffy eyelids the following day. Other times it's severe diarrhea, cramping etc.

Does this make sense?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Hi, I hope this doesn't seem like a silly question, but I'm waiting to see my GI specialist and I still have no idea what's wrong with me. I'm curious though if one has celiac disease and gluten is consumed do all patients require emergency care or can the symptoms vary?

Based on my previous posts and my symptoms I feel pretty confident I am either celiac on NCGS, but if I consume bread or gluten I don't always have an immediate severe reaction. Sometimes it's brain fog, a headache the following day that last a day or 2, or puffy eyelids the following day. Other times it's severe diarrhea, cramping etc.

Does this make sense?

 

Makes complete sense.  :) Reactions between celiacs can vary hugely. Some of us have a slow reaction, others feel it quickly, and yet others will not have an obvious reaction until multiple exposures have happened. Some react severely and need days off work whereas others feel nothing or just a bit run down, and some swing between the two extremes.

 

I was an undiagnosed celiac for decades and I never required emergency care except when it kicked off a new life-threatening autoimmune problem. I was able to work and function fine - just without comfort.  LOL

Kelsie Apprentice
Kelsie
Posted
  • Author

Makes complete sense.   :) Reactions between celiacs can vary hugely. Some of us have a slow reaction, others feel it quickly, and yet others will not have an obvious reaction until multiple exposures have happened. Some react severely and need days off work whereas others feel nothing or just a bit run down, and some swing between the two extremes.

 

I was an undiagnosed celiac for decades and I never required emergency care except when it kicked off a new life-threatening autoimmune problem. I was able to work and function fine - just without comfort.  LOL

Thanks nvsmom, I'm still trying to wrap my head around everything!

nvsmom Community Regular
nvsmom
Posted

Thanks nvsmom, I'm still trying to wrap my head around everything!

 

It really is a weird disease! When something as harmless as a donut can cause migraines, arthritis, cognitive problems and stomach issues - it really does make it hard to get a full understanding of what is going on!

 

Best wishes.  :)

1desperateladysaved Proficient
1desperateladysaved
Posted

These types of considerations sound familiar to me, for sure.  My response has also been changing  as I transition gluten free.

 

Dee

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,319
    • Most Online (within 30 mins)
      7,748
    Roz f
    Newest Member
    Roz f
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jack Common
      How many grams is there in one slice of wheat bread?

      By Jack Common · Posted

      Hello! I'm doing a gluten challenge now. I don't know how much bread to eat. There are 4-6 slices of bread a day suggested in most articles. But one slice of bread can be 25 grams or 40 grams. So when it's 25, six slices are just 150 grams. When it's 40 grams, six slices are 240 grams. The difference is huge in my opinion. Can someone recommend the dosage?
    • Wheatwacked
      Skinesa

      By Wheatwacked · Posted

      In what way? Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."   Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.   Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses. Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance.  Naturally Fermented Pickles [The Complete Guide] For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us.   
    • Barcino
      Antibodies went up

      By Barcino · Posted

      FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. 
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings.
    • Barcino
      Antibodies went up

      By Barcino · Posted

      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
×
×
  • Create New...