Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College, Work, Travel, And Dating


Hobbes

Recommended Posts

Hobbes Rookie

Hi everyone,

 

I'm 20 years old and want to share my story and my perspective, on some common issues for people with celiac. 

 

I have been gluten-free for various periods of time in my life, as I tried different diets to help get rid of fatigue, brain fog, and anxiety. When I look back, I can see now that I have been allergic to gluten ever since I was 13, maybe even before then. I ignored the symptoms for the most part, until at 16 I began to realize how I would feel different after eating certain foods. So I tried a variety of different diets over time: Atkins, Paleo, Vegetarian, Vegan, and Fruitarian. In between all of these diets I would try to go back and eat "normal" foods again, and would inevitably get sick, and the cycle would start over again. However, some of these diets, particularily Paleo and Fruitarian, made me feel really good. I realized what they had in common: they were gluten and dairy free. I did some research and figured out that I had celiac and was lactose intolerant. I've been on a gluten-free, vegan diet for about 9 months now. It's been tremendously successful for me.

 

However, there are aspects of life that can be challenging for this lifestyle, namely college, work, travel, and dating.

 

College is difficult because the beer&pizza stereotypes exist for a reason - college is full of it. The way I have gotten around it is to have a mini fridge, microwave, and large rice-cooker in my dorm room, which allows me to prepare essentially all my own food. Classes are also only a couple hours a day, so it's no problem.

 

The problem for me right now is with work. I have two internships this summer back-to-back through-out the day. I leave my house around 6:30 am and don't get home until 5:00 pm. This represents a huge challenge to me, as I now have to either bring enough food to last me all day, or I have to bring some food and eat out at lunch. The problem is that there is essentially NO gluten free place in the area I'm working in that can provide me with 100% gluten free food on a daily basis. It's a challenge. Right now I'm just bringing enough food for the day, but it's hard to do. 

 

Travelling is difficult for obvious reasons. You can't prepare your own food most of the time, and you're constantly on the move. However, I've found  it to be significantly easier than work. Since you're not tied down to being in any specific location, you're more free to hunt and explore for places that have gluten-free accommodations. 

 

A lot of people on here have expressed concerns about dating, and I would like to echo some of the advice already given on here. It's really about respecting yourself first and foremost. Celiac is a disease. It is a medical necessity to you that you are gluten free. When you find the right person for you (and you will), they honestly will not care about the restrictions this poses to them. Life is about people and human contact first, and food second. Having celiac has made me more aware, empathetic, and tolerant of others' struggles and disabilities, and it's made me realize that we all have them. Nobody is perfect, and that's the point. When you're dating someone, it's because they want to be around you, not because they like to eat pizza (and besides, there's always gluten-free pizza).

 

So there's both hope and despair, for on the hand being gluten free has allowed me to live once again! It has represented the largest single change that has brought me the most clarity, and I'm very thankful for that. But on the other hand, it feels like it has severely restricted my ability to be free. My life has become more routine and structured and isolated, and I sometimes feel irrationally afraid of the world (filled with gluten). So it's bittersweet, and I'm sure it's a normal part of the process as I learn to live with this. 

 

It's really interesting how much diet truly does matter.

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Georgia-guy Enthusiast

So there's both hope and despair, for on the hand being gluten free has allowed me to live once again! It has represented the largest single change that has brought me the most clarity, and I'm very thankful for that. But on the other hand, it feels like it has severely restricted my ability to be free. My life has become more routine and structured and isolated, and I sometimes feel irrationally afraid of the world (filled with gluten). So it's bittersweet, and I'm sure it's a normal part of the process as I learn to live with this.

It's really interesting how much diet truly does matter.

This part of your posts is exactly what I've been feeling like lately. I just go my Dx a week and a half ago(ish), and I've had some people I've talked to that are baffled, I've had some who are familiar with celiac (they have family and friends that have celiac), and some one person (whose mom is celiac and about 100 other food issues) tell me "you're life is gonna suck." Yeah, finding stuff I can safely eat sucks, and seeing things I love that I can't eat sucks. But on the other hand, I'm finally healing physically, I don't wake up to severe joint pain every day, I don't have horrible abdominal pain on a regular basis, and I actually feel up to going out and doing things!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.