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Is There A Possibility Of More Than One Skin Conditon Occuring With Dh?


Deano12

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Deano12 Rookie

I have been diagnosed with celiac a few weeks ago and have been gluten free ever since. I began getting a rash approx. 8 months ago on my buttocks, then I spread to my elbows and knees. The last 2 months I got a rash on my face but I wanted to know if there is a possibility that the rash on my face is not dh and is something else? I have been given dapsone medication to reduce the immflamation of the rash for 2 weeks now which has been effective to some extent. Is it possible to have more that one skin problem at the same time, because the rash on my face seems to different. The rash on my face seems to be red and thickened. it is quite sore if I massage or rub my face and becomes even more red when massaged without any moisturizer.


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ravenwoodglass Mentor

Yes you could have  more than on condition at a time. Have you seen a dermatologist? If not it would be a good idea. Do make sure your doctor is doing regular liver panels on you while you are on the dapsone. Some doctors don't realize those need to done. Do stay very light on iodized salt as iodine will help keep the DH active. It can take a while for the antibodies to leave the skin but things should calm down for you soon. I found even a tiny amount of CC would flare my DH for quite a while after diagnosis. That did lessen in time. 

Deano12 Rookie

hey man thanks for the reply. ive had a few appointments with the dermatologist but I did not raise the question about the rash on my face because I thought it was the dh rash. plus I was using steroid cream on my face at the time to reduce the immflamation. ive got an appointment with the dermatologist in a few weeks and will let him know about my symptoms. Did u use dapsone aswell? My dermatologist says this drug is for long term like a year or so, but I am not comfortable taking it for long term because ive read on the internet that this drug is pretty strong. Im on 50mg a day of dapsone. I was thinking of only taking it for a few months until things settle down.

 

also ive done my own research and think my rash on face my be seborrhoeic dermatitis, because my eyebrows are flaky, and the pics on the net look similar to mine. however I cant be sure. does anyone else have this rash?     

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    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
    • Philly224
      Thanks again everyone! Twenty mins on here way more helpful than both Dr's combined 😅
    • trents
    • trents
      I would go for four weeks to ensure a valid test, if you can tolerate it, that is.
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