Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Pain


UK2004

Recommended Posts

UK2004 Rookie

Interested to hear people that have had bladder pain or urethral pain and found to be celiac and how long it has taken to clear up once gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I was diagnosed with interstitial cystitis at the age of 17.  It has not improved with diagnosis and treatment of my lupus or celiac disease.  Maybe in another year or two, I am still hopeful!

beth01 Enthusiast

I was wondering about this myself.  I have been having problems with a lot of bladder pain that is nothing like a UTI ( I was checked for one last week). It seems like the more water I drink, the better off it is. I have also been taking the stuff from the store that helps with urinary pain. I have also had problems with vaginal itching that isn't BV or a yeast infection. Taking Atarax for that.  I think it just takes our bodies time to recover from years of gluten exposure.  Hopefully it clears up soon.

1desperateladysaved Proficient

Sometimes a bladder problem can be caused by an enlarged uterus.  Just find out that I have a fibroid.  You may want to check on that.  When I complained about my bladder (frequent urination) they checked for bladder infection and diabetes and nothing else.

UK2004 Rookie

Is that in ladies only or can it affect the male urinary tract?

GF Lover Rising Star

Is that in ladies only or can it affect the male urinary tract?

Here is some information which includes specifics for men.

 

Open Original Shared Link

 

Urinary tract infections in men are often the result of an obstruction—for example, a urinary stone or enlarged prostate—or are from a catheter used during a medical procedure. The first step in treating such an infection is to identify the infecting organism and the medications to which it is sensitive.

Prostate infections—chronic bacterial prostatitis—are harder to cure because antibiotics may be unable to penetrate infected prostate tissue effectively. For this reason, men with bacterial prostatitis often need long-term treatment with a carefully selected antibiotic. UTIs in men are frequently associated with acute bacterial prostatitis, which can be life threatening if not treated urgently.

Good luck.

Coleen

UK2004 Rookie

My urine tests are all clear though. I read about several people having interstitial cystitis symptoms before giving up gluten wondered if there were more on here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NatureChick Rookie

There are all sorts of things that can cause interstitial cystitis and it can be caused by bacteria even if tests don't show evidence of an infection. For instance if you are a carrier of group B strep (a third of the population is) then it could have phases where it can have overgrowth and can irritate the lining of the bladder.

The first two things I would try would be to drink more water in order to flush your system. Next would be to drink lemonade which is a super easy way to deacidify the body. (I know, we think of lemons as being acidic, but in the body, they become a base. And though the body is able to balance out acid and base foods itself, most of the foods we eat are acidic so asking your organs to work too hard for too long in one way could mean that it isn't entirely successful all of the time.) I suppose it couldn't hurt to try avoiding sugar as well, as it can throw things off pretty quickly in a number of ways.

But aside from flushing the system and trying to vary your diet, I suppose I'd go see a doctor. They can also test you for vitamin or mineral deficiencies that might make it more difficult for your body to function properly. But I'd recommend researching and trying out nutritional approaches before taking pharmaceuticals that will only mask symptoms.

As far as I know gluten isn't a direct cause of interstitial cystitis, but I wouldn't be the least bit surprised if we learned in the future of it being related to the damage that gluten can do to one organ or another.
 

UK2004 Rookie

I've been following the intestitial cystitis diet but also gluten free. At first I started the diet and after a week no benefit and got extra pain after gluten so cut that out and started probiotics and natural anti fungals and been improving a lot but flares up now and then once I believe due to cross contamination. Interestingly other issues I have had have abated since cutting gluten but the bladder seems to be the one thing taking a long while.

across Contributor

I was diagnosed with interstitial cystitis about 6 months ago, but I had had it for at least 6 years. The elimination diet for that was what led me to getting tested for celiac (long story). 

 

For me, my IC symptoms cleared up almost immediately after going gluten, soy, dairy, nightshade, egg, and nut free. I have been able to add back nuts, eggs, small quantities of soy (like in a vitamin), and almonds without having symptoms. I notice that tomatoes seem to cause flares.

 

One of the biggest things that causes me IC symptoms is artificial sweetener (especially saccharin). 

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

I also wanted to add that my tests usually come back clean too...just once it said infection and that was after saying screw it and eating gluten for like 2 weeks.  I chalked it up to chronic inflammation and worn down immune system.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.