Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Pain


UK2004

Recommended Posts

UK2004 Rookie

Interested to hear people that have had bladder pain or urethral pain and found to be celiac and how long it has taken to clear up once gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I was diagnosed with interstitial cystitis at the age of 17.  It has not improved with diagnosis and treatment of my lupus or celiac disease.  Maybe in another year or two, I am still hopeful!

beth01 Enthusiast

I was wondering about this myself.  I have been having problems with a lot of bladder pain that is nothing like a UTI ( I was checked for one last week). It seems like the more water I drink, the better off it is. I have also been taking the stuff from the store that helps with urinary pain. I have also had problems with vaginal itching that isn't BV or a yeast infection. Taking Atarax for that.  I think it just takes our bodies time to recover from years of gluten exposure.  Hopefully it clears up soon.

1desperateladysaved Proficient

Sometimes a bladder problem can be caused by an enlarged uterus.  Just find out that I have a fibroid.  You may want to check on that.  When I complained about my bladder (frequent urination) they checked for bladder infection and diabetes and nothing else.

UK2004 Rookie

Is that in ladies only or can it affect the male urinary tract?

GF Lover Rising Star

Is that in ladies only or can it affect the male urinary tract?

Here is some information which includes specifics for men.

 

Open Original Shared Link

 

Urinary tract infections in men are often the result of an obstruction—for example, a urinary stone or enlarged prostate—or are from a catheter used during a medical procedure. The first step in treating such an infection is to identify the infecting organism and the medications to which it is sensitive.

Prostate infections—chronic bacterial prostatitis—are harder to cure because antibiotics may be unable to penetrate infected prostate tissue effectively. For this reason, men with bacterial prostatitis often need long-term treatment with a carefully selected antibiotic. UTIs in men are frequently associated with acute bacterial prostatitis, which can be life threatening if not treated urgently.

Good luck.

Coleen

UK2004 Rookie

My urine tests are all clear though. I read about several people having interstitial cystitis symptoms before giving up gluten wondered if there were more on here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NatureChick Rookie

There are all sorts of things that can cause interstitial cystitis and it can be caused by bacteria even if tests don't show evidence of an infection. For instance if you are a carrier of group B strep (a third of the population is) then it could have phases where it can have overgrowth and can irritate the lining of the bladder.

The first two things I would try would be to drink more water in order to flush your system. Next would be to drink lemonade which is a super easy way to deacidify the body. (I know, we think of lemons as being acidic, but in the body, they become a base. And though the body is able to balance out acid and base foods itself, most of the foods we eat are acidic so asking your organs to work too hard for too long in one way could mean that it isn't entirely successful all of the time.) I suppose it couldn't hurt to try avoiding sugar as well, as it can throw things off pretty quickly in a number of ways.

But aside from flushing the system and trying to vary your diet, I suppose I'd go see a doctor. They can also test you for vitamin or mineral deficiencies that might make it more difficult for your body to function properly. But I'd recommend researching and trying out nutritional approaches before taking pharmaceuticals that will only mask symptoms.

As far as I know gluten isn't a direct cause of interstitial cystitis, but I wouldn't be the least bit surprised if we learned in the future of it being related to the damage that gluten can do to one organ or another.
 

UK2004 Rookie

I've been following the intestitial cystitis diet but also gluten free. At first I started the diet and after a week no benefit and got extra pain after gluten so cut that out and started probiotics and natural anti fungals and been improving a lot but flares up now and then once I believe due to cross contamination. Interestingly other issues I have had have abated since cutting gluten but the bladder seems to be the one thing taking a long while.

across Contributor

I was diagnosed with interstitial cystitis about 6 months ago, but I had had it for at least 6 years. The elimination diet for that was what led me to getting tested for celiac (long story). 

 

For me, my IC symptoms cleared up almost immediately after going gluten, soy, dairy, nightshade, egg, and nut free. I have been able to add back nuts, eggs, small quantities of soy (like in a vitamin), and almonds without having symptoms. I notice that tomatoes seem to cause flares.

 

One of the biggest things that causes me IC symptoms is artificial sweetener (especially saccharin). 

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

I also wanted to add that my tests usually come back clean too...just once it said infection and that was after saying screw it and eating gluten for like 2 weeks.  I chalked it up to chronic inflammation and worn down immune system.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

    2. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

    4. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,287
    • Most Online (within 30 mins)
      7,748

    Desert Ratt
    Newest Member
    Desert Ratt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.