Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Pain


UK2004

Recommended Posts

UK2004 Rookie

Interested to hear people that have had bladder pain or urethral pain and found to be celiac and how long it has taken to clear up once gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I was diagnosed with interstitial cystitis at the age of 17.  It has not improved with diagnosis and treatment of my lupus or celiac disease.  Maybe in another year or two, I am still hopeful!

beth01 Enthusiast

I was wondering about this myself.  I have been having problems with a lot of bladder pain that is nothing like a UTI ( I was checked for one last week). It seems like the more water I drink, the better off it is. I have also been taking the stuff from the store that helps with urinary pain. I have also had problems with vaginal itching that isn't BV or a yeast infection. Taking Atarax for that.  I think it just takes our bodies time to recover from years of gluten exposure.  Hopefully it clears up soon.

1desperateladysaved Proficient

Sometimes a bladder problem can be caused by an enlarged uterus.  Just find out that I have a fibroid.  You may want to check on that.  When I complained about my bladder (frequent urination) they checked for bladder infection and diabetes and nothing else.

UK2004 Rookie

Is that in ladies only or can it affect the male urinary tract?

GF Lover Rising Star

Is that in ladies only or can it affect the male urinary tract?

Here is some information which includes specifics for men.

 

Open Original Shared Link

 

Urinary tract infections in men are often the result of an obstruction—for example, a urinary stone or enlarged prostate—or are from a catheter used during a medical procedure. The first step in treating such an infection is to identify the infecting organism and the medications to which it is sensitive.

Prostate infections—chronic bacterial prostatitis—are harder to cure because antibiotics may be unable to penetrate infected prostate tissue effectively. For this reason, men with bacterial prostatitis often need long-term treatment with a carefully selected antibiotic. UTIs in men are frequently associated with acute bacterial prostatitis, which can be life threatening if not treated urgently.

Good luck.

Coleen

UK2004 Rookie

My urine tests are all clear though. I read about several people having interstitial cystitis symptoms before giving up gluten wondered if there were more on here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NatureChick Rookie

There are all sorts of things that can cause interstitial cystitis and it can be caused by bacteria even if tests don't show evidence of an infection. For instance if you are a carrier of group B strep (a third of the population is) then it could have phases where it can have overgrowth and can irritate the lining of the bladder.

The first two things I would try would be to drink more water in order to flush your system. Next would be to drink lemonade which is a super easy way to deacidify the body. (I know, we think of lemons as being acidic, but in the body, they become a base. And though the body is able to balance out acid and base foods itself, most of the foods we eat are acidic so asking your organs to work too hard for too long in one way could mean that it isn't entirely successful all of the time.) I suppose it couldn't hurt to try avoiding sugar as well, as it can throw things off pretty quickly in a number of ways.

But aside from flushing the system and trying to vary your diet, I suppose I'd go see a doctor. They can also test you for vitamin or mineral deficiencies that might make it more difficult for your body to function properly. But I'd recommend researching and trying out nutritional approaches before taking pharmaceuticals that will only mask symptoms.

As far as I know gluten isn't a direct cause of interstitial cystitis, but I wouldn't be the least bit surprised if we learned in the future of it being related to the damage that gluten can do to one organ or another.
 

UK2004 Rookie

I've been following the intestitial cystitis diet but also gluten free. At first I started the diet and after a week no benefit and got extra pain after gluten so cut that out and started probiotics and natural anti fungals and been improving a lot but flares up now and then once I believe due to cross contamination. Interestingly other issues I have had have abated since cutting gluten but the bladder seems to be the one thing taking a long while.

across Contributor

I was diagnosed with interstitial cystitis about 6 months ago, but I had had it for at least 6 years. The elimination diet for that was what led me to getting tested for celiac (long story). 

 

For me, my IC symptoms cleared up almost immediately after going gluten, soy, dairy, nightshade, egg, and nut free. I have been able to add back nuts, eggs, small quantities of soy (like in a vitamin), and almonds without having symptoms. I notice that tomatoes seem to cause flares.

 

One of the biggest things that causes me IC symptoms is artificial sweetener (especially saccharin). 

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

Steph1 Apprentice

Bladder pain in the urethra and some incontinence are major issues when I have gluten.

I also wanted to add that my tests usually come back clean too...just once it said infection and that was after saying screw it and eating gluten for like 2 weeks.  I chalked it up to chronic inflammation and worn down immune system.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.