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Compliance Trouble


aljf

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aljf Apprentice

Hi,

I was diagnosed in March w/bloodwork and a biopsy. I have not been *great* at compliance. (I eat out almost daily and have done stuff like eat the frosting of cakes, and then wind up eating some cake, etc...)

Last month, I had 6-month follow-up bloodwork done. 2 of the tests were negative, and one was only slightly elevated.

Since then, I have been "screwing up" a lot more.

I seem to have lost my immediate motivation.

Please don't yell at me. I really have a lot of trouble with impulse control and binge eating in general and just need some support and useful advice....


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MySuicidalTurtle Enthusiast

Start finding places where you can eat out and still be gluten-free and are not picking icing off gluten cakes. Our diet does not have to be gross or lacking. If you start finding yummie gluten-free foods then soon enough you start craving them. You are only hurting yourself when you eat gluten and you are the only one who can make yourself stop eating it. I know you can stick with it! Just make sure to find some foods you love that are gluten-free!

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    • trents
      Your only resort would seem to be directly contacting the manufacturer and ask some pointed questions about CC . . . and hope you get some straight answers. You are probably already aware of this but the label "Gluten Free" does not necessarily equate to zero gluten. "Gluten Free" is a standard established by the FDA whereby a product can use that label as long as it does not contain an amount of gluten exceeding 20 ppm. There is also "Certified Gluten Free" which is a third party certifying standard signifying that the product does not exceed 10 ppm. There are limits to detection technology much below that.    
    • John.B
      It may be naturally gluten-free but I worry about cross contamination as my kiddo has had bad reactions if things aren't actually gluten free.
    • DebJ14
      They will have to put him back on gluten in order to get accurate tests results, so all the progress may be lost for a while. My grandson was 2 1/2 years old when he, his father, and his mother, were diagnosed.  He was not even on the chart for height or weight and had not been on the chart since he was 12 months old.  The first month he went gluten free he gained 6 pounds and grew an inch.  Unfortunately, he missed a whole lot of opportunity to grow in those first years.  He remained the smallest, skinniest kid in the class until high school when he clawed his way into the middle row for pictures.  He is 20 and topped out at 5 ft 6 inches.  His mother is 5'7 in a family where everyone is 6 feet tall or more.   His younger brother was 7 months old when he was diagnosed.  At 18 he is 6ft tall.  Best to catch it as early as possible.
    • trents
      Maybe you picked up a little intestinal virus? Maybe some ingredient in the gluten free processed foods you've been consuming is causing this. In order to simulate the texture that wheat provides, a lot of gluten free products contain ingredients that may cause digestive distress. Xanthan gum and similar polysaccharides are among the chief offenders.
    • Wheatwacked
      Welcome @Ems10, Isn't is wonderful how a simple change helps. Gluten free eating is not a punishment.  It does take attention to details when buying processed foods.  
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