Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have Cancer, Was Just Diagnosed Gluten Intolerent

JesikaBeth

Recommended Posts

JesikaBeth Contributor
JesikaBeth
Posted

I am just wondering if anyone else is a Cancer warrior? I was diagnosed gluten intolerent 4 days ago. I was diagnosed as having Non-Hodgkin Lymphoma this past November. I am curently undergoing treatments.

I'm 34 years old.

 

Anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

My oldest daughter was diagnosed w/ stage 4 metastatic breast cancer at age 31. She's now 35 and is in remission (her 3rd?). She's one helluva fighter. She was diagnosed with celiac about a year or 2 into her cancer treatment. Youngest daughter was diagnosed with celiac right after having a uterine fibroid removed about 4 years ago. Her celiac was so severe, it took her more than a year for her gut to heal and her diet was extremely limited. I just got home last week from taking care of her after a hysterectomy, also at age 31. She's now the poster child for telling any and all of her friends NOT to skip their yearly pap smears. She had one wonky pap and a year later her choices were to have a hysterectomy or have cervical cancer. Middle daughter was diagnosed w/ celiac first... of the kids...at about age 26. I was diagnosed first of all of us at age 49. I've asked middle daughter, who's super healthy, if she feels like she has a bulls eye on her back!! Yikes!  

GF Lover Rising Star
GF Lover
Posted

Hi JesikaBeth and Welcome to the Forum.

 

Yes, I am a cancer warrior.  I have Metastatic Melanoma.  I was diagnosed Celiac about 6 months before the cancer.  Surgeries and treatments are 1 1/2 years behind me and I'm going strong!  Your diet will be key to feeling well.  Whole foods, lots of water and keep your immune system strong so it can fight.  If you ever need to talk, just send a message to me.  The forum will offer you great support for starting a new diet.  

 

Stay strong,

 

Colleen

africanqueen99 Contributor
africanqueen99
Posted

Thyroid cancer in 2007 when my oldest was just a wee one.  I'm only gluten-free because I'm still nursing one of my kids with Celiac, though.

 

I've never been a worrier and have always been pretty darn healthy, but the experience of cancer helped me realize that nobody else cares about my health, but me - so it was MY job to keep riding my Pediatrician's butt until she ordered every possible test and we could figure out what was wrong with my youngest. 

JesikaBeth Contributor
JesikaBeth
Posted
  • Author

Hello Everyone, nice to meet you :wub:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,880
    • Most Online (within 30 mins)
      7,748
    schussb
    Newest Member
    schussb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • gregoryC
      Celebrity Cruise for Gluten Free

      By gregoryC · Posted

      Just finished my second celebrity cruise. My first was on one of their oldest ships, it was awesome! Now we have sailed on the edge class. Wow! Not only do they have so many gluten-free options but the selection is mind blowing! Any given day you will have between 5 to 7 different gluten-free cakes to try. Yes that is right, one day at the coffee shop I had to choose between 5 gluten-free cakes not including the several puddings on display. So they gave me a small piece of each. 2 were great, 2 were just good, and 1 I did not enjoy. But never have I had the tough decision of which cake to eat?  These selections are from their normal options available for all guest. In the main dining room they always surprised me with some awesome desserts.  In my opinion the best pizza was on the Millennium class and best buffet on the Edge class. Although these two ship vary in size they are both consistent and serving high quality food from the main dinning room. The edge class gives you 4 “main” dining rooms (all included). I was unsure how this would work with my gluten-free diet? It worked great! I was able to order or see the next night’s menu for each of the four dinning venues finding that very little to no modifications needed to be made due to their extensive gluten free options.  The Millennium and Edge class ships provide the best gluten-free options from any of the cruise lines I have sailed with. You will find a larger selection and options on the edge class ships, however you will not be disappointed with the smaller Millennium class. Which is still my favorite cruise ship to date.   
    • trents
      9 year old- questionable results

      By trents · Posted

      Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity) which some experts believe can be a precursor to celiac disease and is 10x more common than celiac disease. However, there is no test for it yet but it does share many of the same symptoms with celiac disease. Both require complete abstinence from gluten.  It is seldom the case during testing where all tests are positive, even for those who do have celiac disease. This is no different than when diagnosing other medical conditions and that is why it is typical to run numbers of tests that come at things from different angles when seeking to arrive at a diagnosis. It seems like you are at the point, since you have had both blood antibody testing and endoscopy/biopsy done, that you need to trial the gluten free diet. If her symptoms improve then you know all you need to know, whatever you label you want to give it. But given that apparently at least one celiac antibody blood test is positive and she has classic celiac symptoms such as slow growth, constipation and bloating, my money would be on celiac disease as opposed to NCGS.
    • ABP
      9 year old- questionable results

      By ABP · Posted

      My nine-year-old daughter has suffered with severe constipation and bloating for years as well as frequent mouth sores, and keratosis Polaris on her arms. She also has recently decreased on her growth curve her % going down gradually.  After seeing a gastroenterologist, her IgG GLIADIN (DEAMIDATED) AB (IGG) was 22.4 while her IGA was normal. Her TISSUE TRANSGLUTAMINASE AB, IGA was 11.9.  Most recently her genetic test for celiac was positive.  After an endoscopy her tissue showed inflammation of the tissue as well as , increased intraepithelial lymphocytes (IELs) but there was no blunting of the change in the villi.    It seems that every result that we get one out of two things positive rather than all leading to an inconclusive diagnosis. While we do have another appointment with the doctor to go over the results. I'm curious based on this information what others think.    I would hate to have her eliminate gluten if not necessary- but also don't want to not remove if it is necessary.    Signed Confused and Concerned Mama
    • Scott Adams
      Gluten Free ADHD medications

      By Scott Adams · Posted

      I guess using "GF" instead of "PL" would have been too easy! 😉
    • trents
      Help with blood test result

      By trents · Posted

      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
×
×
  • Create New...