Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick At Grandma's House?


seezee

Recommended Posts

seezee Explorer

My mom tries really hard to not allow gluten into her kitchen as I, my daughter and nephew all have celiac. However, for the third or fourth time this year my daughter has gotten very sick from gluten from a meal my mom prepared. None of us can think of what it might be? Any suggestions? Could it be something else?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



user001 Contributor

What kind of meals does she eat there? I'm always discovering wheat in random things.

bartfull Rising Star

Cutting board, wooden spoons, scratched teflon, cast iron pans, the toaster. Any of these that once held gluten could keep cross contaminating any food she cooks with it.

kareng Grand Master

Sure, it could be something else. But, I think I would make sure it wasn't gluten first.

Go over Grandma's kitchen with her. Is she using a toaster, butter, PB, mayo, sugar container, etc. full of gluteny crumbs? What about a colander? Does she rinse the strawberries in the same colander she drains gluteny pasta.

I don't know how old your daughter is, but - could she be sneaking some of the others kids crackers or Grandma's Oreos?

Then I would go over the exact ingredients with Grandma. Whatever she used, get the same brand and read the ingredients. Sometimes people think that if the taco seasoning they got last time was fine, maybe they all are fine. Or maybe she is missing malt as an ingredient? Maybe she can't imagine how a food would have gluten but you find out one brand has wheat listed.

I would look into all that first. If all that checks out, is there anything in that meal that she never eats at your house? A brand of bread that isn't available or you don't buy. That sort of thing. Maybe you can narrow it down to an ingredient or a food she never has at home. Like - I never ate brocoli at home because my mom hated it. But I ate it at other people's houses.

You may never figure it out. But at least you will know you and Grandma have done your best.

greenbeanie Enthusiast

Do you and your nephew also eat the same meal and get sick, or is it just your daughter? If it's just your daughter, is there anything else she does there that could expose her to gluten, like feed a dog treats that have gluten in them, try on Grandma's make-up, or anything like that? Cc from the food seems much more likely, but if you can't find the culprit it's worth looking into.

For the first few months after diagnosis my daughter almost always had mild glutening symptoms when she came back from her grandparents' house, even though they were very careful about her food and they have very little gluten in their house. Then one day she mentioned something about how fun it was to feed their dog and give her dog treats, and the mystery was solved. We have no pets so it didn't even occur to me to think about dog food, and I hadn't realized she was handling dog food when she was there.

seezee Explorer

I don't really get sick from gluten noticeably and neither does my nephew any more. I am an asymptomatic celiac diagnosed with bloodwork and biopsy. My nephew now 10 was diagnosed at 3 and doesn't really have a such a strong reaction. My daughter who is 15 though it's like she has food poisoning when she gets a little, so she doesn't sneak. I'll try to get my mom to replace the wooden spoons and cutting boards... that sounds like it may be the culprit... my mom doesn't buy anything with gluten so there's not any around. She does get gluten free oats and maybe that might be it. I think some people react to oats who have celiac. Is there a way to check for that?

BlessedMommy Rising Star

Yeah, the wooden spoons and cutting board may be the culprit.

 

If I were you, I would just buy your mom a new set of wooden spoons and a cutting board as a gift. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 weeks later...
Jenn-Jenn Newbie

I feel you pain. My MIL has celiacs and I get glutened almost every time I eat there. She isn't nearly as sensitive as I am, and therefore not nearly as careful. However, it is really aggravating to deal with my daughter's moods and tummy trouble after visiting grandma.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,356
    • Most Online (within 30 mins)
      7,748

    Deb powell
    Newest Member
    Deb powell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
    • knitty kitty
      Welcome, @Morgan Tiernan, The best thing to clear my dermatitis herpetiformis is to take Niacin, Vitamin B 3, the form called nicotine acid, the kind that causes flushing of the skin.  Flushing Niacin clears my skin quickly.   Yes, the flushing might seem really strange, but it opens the tiny capillaries in the surface of the skin which helps remove the antibodies that gather in those pustules.  The flushing lessens the longer Niacin is taken, but still works at keeping the blisters away.   Be sure to take a B Complex and Benfotiamine, a form of Thiamin , Vitamin B 1.  Covid, shingles and other infections like strep throat deplete our Thiamine quickly.  Having frequent infections can indicate low Thiamine.  We have a higher metabolic demand during infections, physical trauma or surgery, emotional and mental stress, and while physically active like dancing.    Thiamine has anti-virus and antibacterial properties.  The eight essential B vitamins work together.  Taking Benfotiamine in addition to the B Complex is safe and nontoxic.  Excess B vitamins are easily excreted because they are water soluble.  New Celiacs are often low in vitamins and minerals due to malabsorption.  Vitamin D can help calm the immune system.  Following a low histamine Paleo diet , like the Autoimmune Protocol Diet by Dr. Sara Ballantyne, a Celiac herself, is also very helpful.  Steroids lower histamine, but the low histamine AIP diet is safer.   This research may be old, but Flushing Niacin does work!!! Nicotinic acid therapy of dermatitis herpetiformis https://pubmed.ncbi.nlm.nih.gov/15412276/ P.S. Wearing natural fibers helps my dermatitis herpetiformis.  Synthetic fibers keep sweat next to the skin, causing further irritation.  Natural fibers wick moisture away, keeping skin dry and exfoliated.
    • Morgan Tiernan
      Hey @Rogol72! thanks for your very helpful response. Those videos are great and super educating! I’ve forwarded them to my family members too as often it can be very difficult to explain to those around you just what you’re going through. Though, I’m fortunate that they’re super supportive and keen to help me get to the bottom of the problem. Interesting how you mentioned soaps and shower gels irritating too! Is it better to rinse off the sweat straight after exercising just with some cool water? Additionally, is minimising soap in those areas during showering helpful too? Or is there a particular soap that may be helpful! I have some more questions about dapsone too, if you don’t mind me asking. As mentioned in my response to Trents, I take prednisolone for when I am glutened or when my symptoms become too unbearable. With oral steroids it’s usually a 4 week dose as I have to reduce my dose to slowly come off them. How long can you take dapsone for? Can it impact your immune system in the same way as oral steroids (I have to be super careful I don’t pick up any infections whilst on my steroids as my immune system is compromised.) Yes, I’m from South Wales in the UK. Though my grandfather is Irish, explaining my surname (very well spotted!)
    • Morgan Tiernan
      Hi Trents, thank you so much for your help and support. Yes it’s not ideal from my surgery practice. This is just one of the many problems I have experienced with them, we’ve had to pay to go to a private consultant now instead (I’m from South Wales in the UK, spot on about the spelling of “coeliac”! I completely forgot there was another way of spelling it around the world!) The dermatologist I have been seeing over the last few months has been amazing. And thank goodness for places like google and forums like these, I don’t think I would’ve ever thought it could be gluten! Interesting about the iodine. I’ll definitely start to limit this out of my diet. It makes sense as the places of irritation are places I sweat or pressure points (wrists, waist etc.) Dapsone was mentioned in my last appointment also. He’s reluctant to put me on it just yet, probably just until this biopsy is done so we can confirm for definite. At the moment I’m being put on prednisolone (oral steroids) every time I either become glutened or my symptoms reach an ultimate. I think he’s said if I need to be in them for any more than 3 times a year, dapsone will be more considered. I’m keen to go on it as every time I come off the prednisolone I can see the blisters creeping back. I’ve got loads that have burst on my hairline. I also start to get flaky/peeling skin as well which I’m not sure is related?    As well as limiting iodine, is there anything else that might help irritation with sweat? Is it better to wear more loose fitted clothing? Can I apply something to stop the irritation of sweat whilst i’m exercising?    Thanks for all your help so far! I will keep you all updated on my journey! 
    • Lynnard
      Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease.  I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have done a lot of research on gluten-free diet and am prepared to begin a new lifestyle journey - with a lot of questions along the way.  I appreciate your information and advice! 
×
×
  • Create New...