Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Even gluten-free Foods Triggering Reaction After Initial Glutening?

jddh

By jddh
in Coping with Celiac Disease

 Share

Recommended Posts

Zenith Explorer
Zenith
Posted
On ‎12‎/‎8‎/‎2014 at 4:23 PM, icelandgirl said:

Wow! Amazing news...congratulations!

 

I'm curious about not letting your stomach get empty. Do you know why? I'm asking because I've noticed I feel really bad if I let mine get completely empty...but no idea why.

OMG ME TOO.  Why? slight Nausea, slight hurting. Some days worse than others. Like past few days haven't noticed that but definitely some days I do.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 52
  • Created
  • Last Reply

Top Posters In This Topic

  • jddh

    21

  • cyclinglady

    5

  • beth01

    4

  • dilettantesteph

    3

Popular Days

Top Posters In This Topic

  • jddh

    jddh 21 posts

  • cyclinglady

    cyclinglady 5 posts

  • beth01

    beth01 4 posts

  • dilettantesteph

    dilettantesteph 3 posts

Popular Days

Popular Posts

dilettantesteph
dilettantesteph

You may want to consider a diet like this one: http://www.biomedcentral.com/1471-230X/13/40   There can be wait times around 3 months where I live in the US to see a GI.  Last time my son got in qui

GF Lover
GF Lover

Hi jddh.  You asked : I wonder if omeprazole could make things worse? Perhaps decreased stomach acid causes my digestive process to slow down, lengthening the autoimmune reaction In my small gut.   

cyclinglady
cyclinglady

Here are my ideas (and they may be way off).... My husband went gluten free 13 years ago. I fed him purchased gluten-free bread and goodies and he did not have any issues. I was then diagnosed and

Rangerred Newbie
Rangerred
Posted

Realize this is an old thread but I’m a very sensitive celiac who add sx of glutening for over a year - neuropathy, fatigue, constipation, bloating, foggy brain, elevated liver enzymes, etc- finally linked it to Oral B dental floss. Quit using it and in a few weeks felt great and after a few months the liver enzymes normalized. 

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted
5 hours ago, Rangerred said:

Realize this is an old thread but I’m a very sensitive celiac who add sx of glutening for over a year - neuropathy, fatigue, constipation, bloating, foggy brain, elevated liver enzymes, etc- finally linked it to Oral B dental floss. Quit using it and in a few weeks felt great and after a few months the liver enzymes normalized. 

The Original poster on this thread struggled with non-responsive celiac disease.  If I recall, Type I refractory.  I guess I am at odds with your response.  I use this product and I have healed from celiac disease based on repeat biopsies.  How can you be sure that this floss was the culprit for sure?  Liver enzymes can be out of range for many reasons.  
 

https://www.medicalnewstoday.com/articles/325838#causes

I thought  for sure I was experincing active celiac disease symptoms.  I could not figure out any gluten exposures.  I even trialed the Fasano restrictive gluten-free diet without success (that included never eating out).   Turns out after a repeat endoscopy that my small intestine had healed, but that I had developed Autoimmune Gastritis years after my celiac disease.  Related?  Probably.  I think all autoimmune is linked.  
 

I learned that not all things are due to celiac disease.  You can develop more than one autoimmune disorder, infections or even cancer.    Floss is made from petroleum based products.  The Oral B Glide from Teflon.  Not the best, but certainly no gluten.  Why add something sticky to a product like this?  

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      125,736
    • Most Online (within 30 mins)
      7,748
    Haycin
    Newest Member
    Haycin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Passing out

      By cristiana · Posted

      At the time of the one awful, substantial glutening I experienced a few years ago, I felt very near to passing out.  I think if I hadn't been able to lie down, I might have.   As a child I was prone to fainting, and was told then how to avoid it, by putting my head between my knees, or lying down.  So now, if I feel things going grey that is what I do and I've never fainted since.  But I felt so unwell when I was glutened on that one occasion with chills and cold sweats, waves of nausea, etc, and amongst it all I remember thinking that my heartbeat was also 'all over the place', so much so I might end up in hospital.  Until I was actually sick, then I began to feel a lot better.   I felt well initially after eating gluten, the symptoms hit like a wall about 1 1/2 to 2 hours later, and then when I was sick, they quickly subsided.  I could not believe how violently I reacted.   
    • Wheatwacked
      Passing out

      By Wheatwacked · Posted

      Welcome @Mary Em, Vitamin D plays an essential role in producing serotonin and minimizing oxidative stress, both of which can affect the migraine brain. Low vitamin D levels may contribute to migraine.  42% of Americans are deficient in vitamin D, 60% of UK adults and up to 75% northern Canadians are deficient in vitamin D.  Virtually all Celiac Disease sufferers are vitamin D deficient. I have been taking 10,000 IU of vitamin D daily since 2015.  In 2019 my 25(OH)D blood test was 47 ng/ml.  Another two years to get up to 80 ng/ml (equal to 200 nmol/L) the normal homeostasis level, where it stays as long as I continue taking oral vitamin D.   Thiamine (vitamin B1) has been associated with a lower risk of migraine. You might start by taking significant amounts of vitamin D and Thiamin supplemental to increase your levels.  If available to you there are blood tests that will give you a baseline.  Worth checking out. Just eating a gluten free diet does stop the ongoing damage that gluten causes, but it does not replenish the vitamin and mineral malnutrition caused by years of undiagnosed Celiac Disease caused by malabsorption and food avoidance. I also take: Morning 6am or waking. Clonidine 0.1 mg every 6 hours (Blood pressure) Vitamin D 10,000 IU (250 mcg) DHEA 100 mg   Midmorning 500 mcg Iodine 10 drops of Liquid Iodine   Once a day, midafternoon B1 Thiamin 250 mg B2 Riboflavin 100 mg B3 Nicotinic Acid 500 mg B5 Pantothenice Acid 500 mg Vitamin C 500 mg Selenium twice a week 200 mcg  
    • ElisaL
      Passing out

      By ElisaL · Posted

      I have a few times but I have other health problems made worse by the reaction. The main one being a migraine disorder, so really it was the migraine that knocked me out not the gluten. The gluten just set off everything.
    • jmiller93
      What do my test results mean?

      By jmiller93 · Posted

      I’m have a vitamin D deficiency. I’m still waiting on a qualitative fat test to see if I have malabsorption. 
    • knitty kitty
      What do my test results mean?

      By knitty kitty · Posted

      @jmiller93, Some of us are seronegative and don't test positive on tTg IgA tests.  Anemia, diabetes, and Thiamine deficiency can cause false negatives on Celiac panels.  Have you been checked for nutritional deficiencies?  Iron? Thiamine?  Vitamin B12?  Vitamin D?  Only one Celiac markers is needed to develop the active disease.   I agree a gluten free diet trial is worth a try.
×
×
  • Create New...