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Diagnosed With Lyme Disease

whitepine

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whitepine Apprentice
whitepine
Posted

Hi, I just wanted to share with you guys that I have been gluten free for over 2 years now. I finally was able to get a better doctor when I moved to the USA. I told him that I have still been having issues regardless of the change to my diet and medication. We randomly decided to shoot in the dark and test me for Lyme Disease. Turns out I have Lyme Disease!

The reason why I am posting this is because as I researched this I realized that people who had LD were also experincing worse symptoms when they ate gluten, so they went gluten free but they weren't celiac.
It's a bit of a controversial subject in the medical community because no one is sure on how to manage or treat chronic Lyme Disease. Acute, however, is usually easily treated within a month.

I think I may have been affected either 4 years ago or I was infected a decade ago. A certain percentage of people end up with chronic arthritic symptoms, nerve, and brain issues. There's a huge list of symptoms that could and are linked to being infected.

So if you are having issues, you haven't been diagnosed with celiac disease, you are having problems being diagnosed with anything, ask your doctor to run a simple blood test to check for Lyme. Sometimes the blood tests, in the early stages of Lyme come back normal but a chronic case will usually be a positive blood test.

Hope this helps someone out. I have a long road ahead of me now and I don't know if I can or will be cured or if I will be able to eat gluten again. I'm just happy that I have some answers.
 

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1desperateladysaved Proficient
1desperateladysaved
Posted

That is interesting I hope some might be helped by this.  I have been checked for Lyme's disease twice it is a good idea.

  • 1 month later...
quincy Contributor
quincy
Posted

Hi, I just wanted to share with you guys that I have been gluten free for over 2 years now. I finally was able to get a better doctor when I moved to the USA. I told him that I have still been having issues regardless of the change to my diet and medication. We randomly decided to shoot in the dark and test me for Lyme Disease. Turns out I have Lyme Disease!

The reason why I am posting this is because as I researched this I realized that people who had LD were also experincing worse symptoms when they ate gluten, so they went gluten free but they weren't celiac.

It's a bit of a controversial subject in the medical community because no one is sure on how to manage or treat chronic Lyme Disease. Acute, however, is usually easily treated within a month.

I think I may have been affected either 4 years ago or I was infected a decade ago. A certain percentage of people end up with chronic arthritic symptoms, nerve, and brain issues. There's a huge list of symptoms that could and are linked to being infected.

So if you are having issues, you haven't been diagnosed with celiac disease, you are having problems being diagnosed with anything, ask your doctor to run a simple blood test to check for Lyme. Sometimes the blood tests, in the early stages of Lyme come back normal but a chronic case will usually be a positive blood test.

Hope this helps someone out. I have a long road ahead of me now and I don't know if I can or will be cured or if I will be able to eat gluten again. I'm just happy that I have some answers.

 

same here. I was still sick with fatigue, muscle pain in my back, hips and legs, body temp was off. was constantly in physical therapy for muscle knots. stab in the dark asked my doctor for a lyme test and it came back positive. been on abx for a year with alot of probiotics and am feeling better.

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