Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Difference Btwn Casein Int & Milk Allergy


Jenn2005

Recommended Posts

Jenn2005 Contributor

Can anyone explain to me the difference between casein intolerance and milk allergy? I understand the difference between gluten intolerance and wheat allergy and I have been researching this today and I'm more confused than when I started. Going gluten free limits food options severely and now I'm trying to figure out all this casein stuff (for my husband). I just don't want to take away more than we need to. Any help from casein intolerant people would be greatly appreciated.

Just FYI the casein intolerant dx came from Enterolabs. It was a 13 with 10 & less being normal, but again if it its anything like the gluten any increase is to much and should be avoided.

Thanks,

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It's much the same issue, albeit for different biochemical reasons, as a wheat allergy versus a wheat intolerance (which may be different from celiac itself). An allergy is an immune response mediated by the IgE antibodies, an intolerance is mediated by the IgG (primarily) antibodies. That holds true for all allergies/intolerances. Celiac disease specifically (where the immune system attacks the intestines) extends the IgG reaction so that the body also attacks the villi in the immue system.

As you learn the diet, and expand the types of food you eat, you'll find the diet less restrictive. There are more "substitutes" for gluten than for casein, however, and there are some things that you can't get good substitutes for. (A casein-free cheese is very difficult to find and not the same thing as real cheese, or even soy cheese. (Soy cheeses almost always have casein.))

Guest BellyTimber

Jennifer,

I had a test for opioids from a university laboratory in the UK - over a year before I went gluten-free-WF - and not through the medical system (this is not the leaky gut test per se but will tend to parallel it). My graph line for gluten went off the top of the paper but my casein line was only slightly positive.

We don't have Enterolabs in the UK but it crops up a lot on the board, put it in the search facility and read what everyone has been saying about the status of this test. You & your husband will need perspective on it to decide how to prioritise his/your moves.

The various theories reflect different groups of people's bodies' reactions to foods so it is not compulsory to conform to any particular theory.

Dairy foods contain lactose, a sugar, and I have posted a method in "Rachel -- 24"'s thread on casein, at 03:03 PM today, to test for tolerance to lactose. On going gluten-free many of us find we have lost the ability to absorb the lactose well which gradually comes back for most of us who have been thus affected. This issue should not be confused with casein which may be a more theoretical problem (arising from scientific study of molecule structures) than actual, for some of us.

I have gone back on dairy fairly freely nowadays and am not having a repeat of the dairy problems I had a couple of years back.

I know of some children whose parents took them CF as well as GFWF because of very strong CNS symptoms afflicting them from a young age, their doctors didn't all approve but they benefitted. They show extremely strong reactions when they intake casein.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,811
    • Most Online (within 30 mins)
      7,748

    Granna57
    Newest Member
    Granna57
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...