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So Hungry


Amberzak

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Amberzak Newbie

Hi.

I'm still going through the diagnosis, so eating a little bit of gluten each day. But I've been mainly gluten free (having two slices of bread a day).

I used to eat so much gluten. Like all the time. One thing I've noticed (other than feeling quite well have having good control of my sugars as I'm a type one diabetic) is that I am so so hungry. I can't stop eating. Is this normal, even when still having to eat a little bit of gluten for the tests.


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nvsmom Community Regular

When I eat high carbs, my appetite goes up - could that be it?

 

When your intestines are damaged, you do not absorb food as well and malnourishment can happen.  It's possible that once you heal your appetite will drop.

SMRI Collaborator

What are you eating each day?  

cyclinglady Grand Master

Eat more fat and protein even while you are doing a gluten challenge. I am a diabetic (not typed yet) and I eat a low carb-high fat diet. Eat fish, meats, oils, cheese (though new celiacs often have issues with dairy temporarily due to intestinal damage), add coconut oil to your coffee, add butter to your veggies. Lots of olive oil on your greens. Fat will not affect your blood sugar. Test it out on your meter.

Your body needs more food now. Feed it!

That's my two cents!

Take care!

Pauliewog Contributor

I second the eat more fat comment above. I was always hungry until I added more fat. Eggs cooked in butter with a couple of pieces of bacon for breakfast make me stuffed whereas a piece of "toast" left me starving an hour later.

Amberzak Newbie

Thanks for all the comments.

I do eat a lot of carbs. Insulin dependents are discouraged from going low carb in my area, and I wouldn't want to to be honest. Potatoes are my life. :)

I will try as you say. The only thing is I've been trying to lose weight because my husband and I want to try for a baby.

I don't seem to be having any problems with dairy (but then I don't eat a great deal of dairy anyway) but I did buy some gluten free and milk free porridge and had that last night. That seemed to fill me up.

Strangely I haven't had the depression on the foods I won't be able to eat thing yet. I've found replacement for most food I eat. The only thing I will miss is eating out as I bet that will be difficult. (I'm ridiculously fussy at the best of times)

GFinDC Veteran

Hi Amberzak,

 

Here's a good diabetes forum you might like.  The people there often recommend low carb diets.

 

Open Original Shared Link

 

I think Dr. Peter Green's book recommends waiting 6 months after going gluten-free before trying for a baby.  Your body needs some time to recover from celiac damage and build-up stores of vitamins and minerals.

 

Some people on the forum have reported being more hungry after going gluten-free.  I know I was very hungry for a while after going gluten-free.  But the hunger tapered off after a while.


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    • trents
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      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
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