Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Might Have Celiac Or Gluten Sensitivity...but

Mileena

Recommended Posts

Mileena Newbie
Mileena
Posted

I've only been gluten free 3full days. I was throwing up, nauseas, depressed, had diarrhea, had brain fog, gas, bloating, etc. and it had been getting worse. I was eating a lot more gluten At the time. Pretty much everything I ate. So I cut it out of my diet as a test. After 3days on the fourth day I ate a cookie without reading the ingredients. I totally didn't think about it. It's main ingredient ended up being enriched wheat flour. 2 hours later I was feeling extremely nauseas and kept going number 2 every few minutes. Then I had anal leakage and started vomiting violently. I still at this moment feel terrible. And apparently now I have a headache. I am prepared for a Terrible night.

My issue is my doctor never believes me about anything and seems to always be against me. The other doctor their knows my history (i have depression) and literally tried to mom me with discipline and judgments so not the good kind of moming. I'm afraid neither of them will believe me or help me. I'm almost 19. Have never felt well all my life. Only recently has it gotten worse.

What do I say to my doctor to get her to understand? HOW should I say things?

My therapist believes me and really thinks gluten free Is good for me and so does my mom. My dad... Wellhe doesn't give a flying flip about the subject.

I would like to be clear that most of the vomiting has been me making it happen. I just feel so sick I can't take it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SMRI Collaborator
SMRI
Posted

Go back to eating gluten, ask for a Celiac panel to be run--all of the tests and see if you are or are not Celiac.  If they won't run the tests, go to a private lab and ask for them to run the tests.  That way you will know one way or another.  The tests are not accurate if you are not eating gluten at the time.

BlessedMommy Rising Star
BlessedMommy
Posted

Yep, I agree with the above. Get a new doctor that will listen to you. If that fails, self-pay for celiac tests at a private lab. It's worth it to know if you truly have celiac or not. Good luck!

Georgia-guy Enthusiast
Georgia-guy
Posted

Mileena, I can definitely understand your frustrations with the doctors...I had the same situation with them. I ended up having to go to a private lab myself and get the tests run out of pocket (it was pricy, but compared to my medical bills not knowing what was going on it was definitely worth it to get an answer). Have you asked your therapist to speak with your regular doctor though? Maybe if your doc heard it from another medical professional they will be more likely to at least do the tests (they don't have to believe you to do them, but they do have to feel like it's worth their time, and the therapist may be able to convince them of that).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,920
    • Most Online (within 30 mins)
      7,748
    parker mc
    Newest Member
    parker mc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Symptoms and trying to figure this out

      By Wheatwacked · Posted

      Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle.  Celiac Disease causes multiple vitamin and mineral deficiencies.   Itchy palms can be a symptom of iodine deficiency.  Low iodine levels can lead to dry, flaky skin on the hands and  body due to the disruption of normal skin cell regeneration caused by a lack of thyroid hormone production, which relies on iodine. Other symptoms are   fatigue, weight gain, sensitivity to cold. I take between 600 and 1200 mcg a day Liquid Iodine. It has improved my healing.  Strong Iodine and Lugols Solution are other options.  Start low and build up over time. Between 1970 and 1988 the dietary intake of Americans dropped by 50%. Perhaps this is why some can tolerate the bread in Europe?
    • Lkg5
      Guidance on next steps after the lab tests

      By Lkg5 · Posted

      Be cautious with vitamin D if you are female and post-menopausal.  I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D.  Finally relief!  I hope to keep my D level below 50 nm/l now.
    • knitty kitty
      Coping with celiac

      By knitty kitty · Posted

      Do you eat processed gluten free foods?  
    • Scott Adams
      Coping with celiac

      By Scott Adams · Posted

      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      3 years with Celiac, now I appear fine.

      By Scott Adams · Posted

      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
×
×
  • Create New...