Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Having Celiac Is Awesome


Adalaide

Recommended Posts

Adalaide Mentor

Usually we have our gripes. It's this or that, and in general it makes life at the very least a bit inconvenient for us. I realized tonight though that sometimes it's a small blessing in disguise. I'm getting ready for comic con this week and they don't allow any outside food... except for people with food allergies, intolerances, etc. So, instead of being out of the house for 12-16 hours a day for 3 days and being forced to buy overpriced food from vendors I get to bring all my own food without paying a fortune. Which means I can spend all the money I saved up on cool stuff! So sometimes, just sometimes, having celiac is awesome. B) I saw those food prices at the April con, not something I'd want to pay. A cup of coffee was $3! The food just omg. You'd have to have $75-100 to feed yourself, spend a lot of time hungry or leave and eat off site for three days. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CajunChic Explorer

That is a very nice perk!! I'm waiting for my perk, I know it's out there, lol.

SMRI Collaborator

I'm hoping that the hotel I need to go to will allow my toaster oven due to medical necessity :D

notme Experienced

nobody *ever* drinks my last beer  :lol: EVER!!!!  (in fact, they never drink *any* of it, which leaves me nobody else to blame LOLOLZ)  

Adalaide Mentor

nobody *ever* drinks my last beer  :lol: EVER!!!!  (in fact, they never drink *any* of it, which leaves me nobody else to blame LOLOLZ)  

 

That's great, except when you need a scapegoat. :P

LauraTX Rising Star

I'm hoping that the hotel I need to go to will allow my toaster oven due to medical necessity :D

 

Just don't tell them.  No one has to know...  Muahahahahahahahh!

 

We went to a con last year and I brought in my own lunch food, once all our friends found out I could smuggle in granola bars they had me take some in for them too, so they wouldn't have to buy expensive crap to hold them over until dinner.  On trips, I have usually been eating something I brought for lunch, and that has saved me a bunch of money.  Only have to worry about dinner.

SMRI Collaborator

Just don't tell them.  No one has to know...  Muahahahahahahahh!

 

We went to a con last year and I brought in my own lunch food, once all our friends found out I could smuggle in granola bars they had me take some in for them too, so they wouldn't have to buy expensive crap to hold them over until dinner.  On trips, I have usually been eating something I brought for lunch, and that has saved me a bunch of money.  Only have to worry about dinner.

 

I figure the cleaning people might see it though :D.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraTX Rising Star

I figure the cleaning people might see it though :D.

Stuff it back inside a bag of suitcase.  They aren't -supposed- to dig in your stuff.  But yeah if you leave it out they may say something, hehe.

Adalaide Mentor

If they say anything just be like oh... I didn't realize I wouldn't be allowed to have it. Blah blah celiac... blah blah ADA accommodation... blah blah but if I have to I'll just put it away til I leave. Then just put it away after it cools off after every use. :lol:

kareng Grand Master

Put up the do not disturb sign?

Georgia-guy Enthusiast

But then you don't get more FREE soap and shampoo to take home!

Adalaide Mentor

But then you don't get more FREE soap and shampoo to take home!

 

Ewww... unless it's one of the more fancy hotels that stuff is usually stuff I wouldn't use. Well, wouldn't have used before I turned into a hippie that doesn't use soap or shampoo. Then again I was always prissy about my care products.

africanqueen99 Contributor

So, do you guys ask for permission to bring in food when places state no outside food? I feel like I need to ask since my kids generally can't be accommodated at museums, children's events, etc, but it's a pain to find the right person to get permission. Maybe I just ask for forgiveness over permission...??

Eta: I'm talking about asking someone before I get there via email, not the teenager at the door collecting money.

Adalaide Mentor

It depends on the situation and what I'm going to. With comic con, it's right in their faqs that people with food issues can bring their own so I don't see the point in bothering anyone. Although it wasn't in their faqs in April until after I bothered someone via email and had gotten a response that bringing my own was okay. When we were going to a midnight release I stopped in early to talk to the manager because it was important to me not to run into issues that would make getting a good seat difficult when it was time for the movie. I told him I just wanted to be able to have popcorn like everyone else. (The theater serves hot dogs and so many other wheat things and is staffed by teenagers and college kids and I trust them not at all, as my daughter who works at a theater told me not to because she said nearly everyone who works at theaters cares about as much as you imagine they do about food safety and handling.) The manager was really cool about it, I don't always need food for a movie but we rarely go to the full price theater and I just wanted the "normal" experience with drinks and popcorn. If it was a museum I would ask, not because it's an outside food thing but because they may not allow food period. If their policy is simply no food, ever, in the museum then that's that. Don't bring food. If they serve food there though, then it shouldn't be an issue for you to bring your own. For the most part though, I'm an ask forgiveness kind of person. I'm really good that playing innocent, then getting indignant about how I have celiac and it isn't like I could just buy my food like a regular person and if they get pissy I'll get all ADA on them and the conversation shuts down real fast then.

cap6 Enthusiast

I love this!!!  The perks of being Celiac and why it is awesome!!!

 

I have learned how to eat healthy and how to cook.  We now eat Paleo and organic and even my non-celiac partner's health has improved. 

 

If we have dinner at a friend's house sometimes my dinner looks better than what everyone else is eating (hee hee)

 

And yes, we save a lot of money when attending events!!  Whew!  More shopping money in our pockets for sure. 

I have a letter from my doctor stating that I have Celiac and must carry my own food.  Have only needed to use it a couple of times, once was when flying, but it has come in handy.   I have mentioned that I have food "allergies" when entering an event if it looks like I might have trouble and offer to show them my doctor letter but have never met with any rudeness or anything like that. 

LauraTX Rising Star

....Maybe I just ask for forgiveness over permission...??.....

 

Yep.  Especially if there is other food around, I just take it in with me.  I have a doctors note as well, I get her to re write it at every annual exam so it has a current date.  If it is a really strict place where bags are checked and such, I just make sure I have my note on me, I don't call ahead.  Especially with kids and food allergies, I would think staff would be less intrusive than with an adult.  I always carry food in discreetly, be respectful, etc.  I have brought my own burger bun into restaurants and I never say anything, just pull it out of my purse once the waitperson walks off :) 

Georgia-guy Enthusiast

Haha, I love the doctor's note idea, but some of us can't get that. :-/

LauraTX Rising Star

Haha, I love the doctor's note idea, but some of us can't get that. :-/

 

If you can't get a doctors note easily, get some of those dining cards.  With the giant red writing of what you can't have, they should be able to figure out what is going on is legitimate.  I have never had to show my doctors note yet, in a year and a half.

Georgia-guy Enthusiast

If you can't get a doctors note easily, get some of those dining cards. With the giant red writing of what you can't have, they should be able to figure out what is going on is legitimate. I have never had to show my doctors note yet, in a year and a half.

I'm not really concerned about it too much, I can throw legal threats around in most circumstances (such as a theater or con), the only time I would be worried about it would be if I were to fly.

BlessedMommy Rising Star

Why the worry over flying?

 

Aren't people allowed to bring their own food in a carry on?

notme Experienced

as long as it's not peanuts (or nuts).  i notice the airlines don't give out nuts as snacks anymore.  

 

i have had no problem getting food onto the plane.  i guess they are not worried ima blow up the plane with my turkey sammich.  i did, however, get detained when i tried to 'smuggle' a bag of masa harina home from new mexico.  can't remember if they took it away or not.  turns out, they sell it at my local grocery store.   <_<

notme Experienced

That's great, except when you need a scapegoat. :P

we were over at a friend's house sunday night, and he grabbed a redbridge instead of his oktoberfest (and put it in a bottle wrap, so, he didn't notice - he is farsighted and the bottle labels were similar) so, hahaha, he is my scapegoat!!  :D  

 

(ironically, one of his long time nicknames is "goat boy" lololz couldn't have worked out better!!!)  :D

SMRI Collaborator

Why the worry over flying?

 

Aren't people allowed to bring their own food in a carry on?

 

It depends....you can bring food on that you purchase after you go through security or anything you bring through security that meets TSA guidelines so just make sure you check those before you load up on food for flying or you may have to toss it all at security.  There are some exceptions for medical reasons but not everything is accepted even for medical reasons.

africanqueen99 Contributor

Lordy, the last time I flew with the kids we had several lay-overs and a full day's travel.  I had an entire backpack full of Go Picnics and snacks and desserts and...  We just bought drinks once we got through TSA.  Much lighter by the end of the trip.

Georgia-guy Enthusiast

I'm not looking at flying any time soon, I prefer to drive and enjoy the scenery. But I am NOT the type to "throw food away" at security. They would have to stand there and wait while I eat every bit of it before walking through the stupid sensors. (And as far as buying food after passing through TSA, I don't trust places in the airport to begin with, plus regular food is ridiculous, I would probably have to sells soul to get a crumb of something that is gluten free.) Speaking eating every bit of food before going through security, I went to 6 flags last summer and they said I couldn't bring my still sealed bottle of soda in with me (that way they could charge $10 for a 20oz bottle), I stood there blocking the line up and guzzled down 6-20oz bottles of soda and handed the empty bottles to "security" before walking though....not the smartest choice to guzzle 6 bottle of soda and then spend the day in the heat, but they let me bring the other 6 in with me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,079
    • Most Online (within 30 mins)
      7,748

    Geraldine Selenne
    Newest Member
    Geraldine Selenne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...