Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Far Will Ya Go?


Georgia-guy

Recommended Posts

Georgia-guy Enthusiast

So here's the big question of the day:

If you found out there was a 100% gluten free restaurant owned and operated by a celiac, how far would you be willing to drive to eat there?

The benefit of such a place would be obvious: you know you can eat anything on the menu without worrying about getting glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I have gone 30-40 minutes up the freeway for exactly that. There is a place that is half bakery, half restaurant that is amazing. I always get a sandwich and a bunch of baked goods every time I go up. A bit farther up the freeway is The Pie. They're the pizza place that while not 100% gluten free precisely, they have a separate kitchen which is completely safe. It's not just a separate area, but sectioned off to be safe from CC. So I do consider them to be gluten free for my purposes since they have a gluten free kitchen for people like us. I've gone up there a few times also. As a general rule though, I just don't have money to spend on this sort of stuff. These are always special occasion trips. It's an hour or more driving and $10-15 in gas on top of the money for the food. Most of the time I settle for just stopping in when I'm already making a trip up to the city.

GF Lover Rising Star

I would go to my Kitchen.

cap6 Enthusiast

I love this!!!   I would have to agree with this response.  Altho I love to eat out but my kitchen is best!  

Georgia-guy Enthusiast

Just to let it be known, I do have a reason behind this question. I'm trying to figure out how far someone is seriously willing to drive.

LauraTX Rising Star

I would drive an hour, or stop by when I was in that area.  For just dinner nothing else, I have driven 45 minutes, it is worth it if it is that good.  

RMJ Mentor

I've driven 20 minutes to a gluten free cafe.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMRI Collaborator

It depends.....

 

If we are making a night of it and it's a good "date" type place, we've driven an hour to do something like that.  We used to have an amazing steak place about an hour away from our old house.  We would go there a few times/year.  If it's just a lunch place and I'm going out with friends, it would probably have to be in town or within 30 miles or so, near the mall :D.

 

I would need more information to give a good answer...

bartfull Rising Star

I wouldn't do it FREQUENTLY but I would drive an hour, maybe once a month.

africanqueen99 Contributor

Well, I have a dedicated gluten-free restaurant within 10 minutes of my house.  The food is good and the prices aren't crazy high (still high, though).

 

I'm in a fairly large metro area so I'd probably drive 20 minutes.  Tops.

love2travel Mentor

The closest one to me is about six hours away.  Seriously - there are very, very few gluten-free places to eat in Croatia and it is equally impossible to find gluten-free flours (other than rice flour) so am struggling.  We drive to Italy to pick up chestnut and buckwheat flours (as we did today).  Oh, and almond flour which you cannot get in Croatia.  It is strange - there is so much more "real" food grown here without GMOs, yet there is sooooo little gluten-free choice.  Thankfully, I brought about 10 kg of various flours from Canada but as I am not returning until next summer, will soon be out. 

 

So, to answer your question, I would honestly drive three or four hours.  Wait a moment - there is a place in Venice that serves gluten-free food but it is not strictly gluten-free.  Venice is about 2.5 hours away.

SMRI Collaborator

The closest one to me is about six hours away.  Seriously - there are very, very few gluten-free places to eat in Croatia and it is equally impossible to find gluten-free flours (other than rice flour) so am struggling.  We drive to Italy to pick up chestnut and buckwheat flours (as we did today).  Oh, and almond flour which you cannot get in Croatia.  It is strange - there is so much more "real" food grown here without GMOs, yet there is sooooo little gluten-free choice.  Thankfully, I brought about 10 kg of various flours from Canada but as I am not returning until next summer, will soon be out. 

 

So, to answer your question, I would honestly drive three or four hours.  Wait a moment - there is a place in Venice that serves gluten-free food but it is not strictly gluten-free.  Venice is about 2.5 hours away.

 

Ok, I was starting to feel sorry for you until I got to "we had to drive to Italy..."  :D.  

Adalaide Mentor

The closest one to me is about six hours away.  Seriously - there are very, very few gluten-free places to eat in Croatia and it is equally impossible to find gluten-free flours (other than rice flour) so am struggling.  We drive to Italy to pick up chestnut and buckwheat flours (as we did today).  Oh, and almond flour which you cannot get in Croatia.  It is strange - there is so much more "real" food grown here without GMOs, yet there is sooooo little gluten-free choice.  Thankfully, I brought about 10 kg of various flours from Canada but as I am not returning until next summer, will soon be out. 

 

So, to answer your question, I would honestly drive three or four hours.  Wait a moment - there is a place in Venice that serves gluten-free food but it is not strictly gluten-free.  Venice is about 2.5 hours away.

 

Tragic... 2.5 hours to Venice. I'm sure we all are feeling sorry for you. :P

BlessedMommy Rising Star

I would drive about an hour out of my way for a dedicated gluten free restaurant. 

Gemini Experienced

The closest one to me is about six hours away.  Seriously - there are very, very few gluten-free places to eat in Croatia and it is equally impossible to find gluten-free flours (other than rice flour) so am struggling.  We drive to Italy to pick up chestnut and buckwheat flours (as we did today).  Oh, and almond flour which you cannot get in Croatia.  It is strange - there is so much more "real" food grown here without GMOs, yet there is sooooo little gluten-free choice.  Thankfully, I brought about 10 kg of various flours from Canada but as I am not returning until next summer, will soon be out. 

 

So, to answer your question, I would honestly drive three or four hours.  Wait a moment - there is a place in Venice that serves gluten-free food but it is not strictly gluten-free.  Venice is about 2.5 hours away.

It's love2travel.........she's back!!!!!!!!!! Missed you on here......how are things in your new country?

I drive an hour from my house to have gluten free fried clams with fries and onion rings about twice a year. It is not a dedicated place but the family which have run this business for years, have Celiac family members and do this out of love. They have a totally dedicated Celiac fryer and I have never been sick, ever, from their food. The coating is corn based and is gluten free anyway. It's the best fried food around...not greasy. I will drive an hour for well prepared gluten-free food. Although I would drive to Venice if I could........

Georgia-guy Enthusiast

The closest one to me is about six hours away. Seriously - there are very, very few gluten-free places to eat in Croatia and it is equally impossible to find gluten-free flours (other than rice flour) so am struggling. We drive to Italy to pick up chestnut and buckwheat flours (as we did today). Oh, and almond flour which you cannot get in Croatia. It is strange - there is so much more "real" food grown here without GMOs, yet there is sooooo little gluten-free choice. Thankfully, I brought about 10 kg of various flours from Canada but as I am not returning until next summer, will soon be out.

So, to answer your question, I would honestly drive three or four hours. Wait a moment - there is a place in Venice that serves gluten-free food but it is not strictly gluten-free. Venice is about 2.5 hours away.

Next time you need to drive to Italy, just buy me a plane ticket to Croatia and I will be more than happy to be your chauffeur to and from Italy.

LauraTX Rising Star

Honestly, I wouldn't buy a house based on the location of one restaurant.  If you are renting that may be different.  There is an asian restaurant in Seattle, WA that makes me want to move there within delivery range, haha.  But I would say to look more for overall Celiac friendliness in a community.  Like grocery stores, doctors, hospitals, and restaurants, preferably many.

Georgia-guy Enthusiast

Honestly, I wouldn't buy a house based on the location of one restaurant. If you are renting that may be different. There is an asian restaurant in Seattle, WA that makes me want to move there within delivery range, haha. But I would say to look more for overall Celiac friendliness in a community. Like grocery stores, doctors, hospitals, and restaurants, preferably many.

You are close, but you may be looking at the wrong end of the scenario...
SMRI Collaborator

Well, it sounds like you are trying to open a restaurant or get the owners to open one closer to you :D.  If I lived near a gluten-free restaurant, I would go there often if the menu changed frequently or had daily specials to keep the menu fresh.  Even the draw of being a totally safe gluten-free place would get stale if the offerings were the same week after week.

 

If it were a gluten-free bakery where I could get good bread and other baked goods, I would drive an hour every couple weeks easy.

cap6 Enthusiast

Ok, Seriously...(sorry for being smarty. :D )   For a dedicated g,f, place maybe 45 minutes for like my b'day celebration or something really really special, like once a year.  Otherwise 20 minutes.  A couple of years ago it would have meant more to me but now it just isn't that important any more.  I think that after 4.5 years I am more comfortable with myself, what I can or can't eat, and just the entire diet as a whole.  Plus I enjoy cooking a g.f. meal for friends and having them amazed that they can enjoy an entire meal with no grains!   My entire mind set is very different now than a few years ago. 

Georgia-guy Enthusiast

Well, it sounds like you are trying to open a restaurant or get the owners to open one closer to you :D. If I lived near a gluten-free restaurant, I would go there often if the menu changed frequently or had daily specials to keep the menu fresh. Even the draw of being a totally safe gluten-free place would get stale if the offerings were the same week after week.

If it were a gluten-free bakery where I could get good bread and other baked goods, I would drive an hour every couple weeks easy.

At this time, all I can say is that there is a door down the hall. Whether the door will open or not, time will tell.
linen53 Rookie

I live in a smallish town and the grocery stores are just now stocking some gluten free foods.  Each week I go in and find new stuff!!  So no, we don't have a gluten free restaurant where I live.  And I wouldn't drive out of town to a larger metropolis to just eat at a restaurant.  I'm not that bad of a cook and can whip up some pretty good meals myself.  

 

I did eat a Village Inn (here in town) one morning and ordered one of their Ultimate Skillet (no bread) and wasn't glutened!  But that was back when I was new to this and dumb.  I don't think I'd try it again.  Chances are it wouldn't happen again.

Adalaide Mentor

Ok, Seriously...(sorry for being smarty. :D )   For a dedicated g,f, place maybe 45 minutes for like my b'day celebration or something really really special, like once a year.  Otherwise 20 minutes.  A couple of years ago it would have meant more to me but now it just isn't that important any more.  I think that after 4.5 years I am more comfortable with myself, what I can or can't eat, and just the entire diet as a whole.  Plus I enjoy cooking a g.f. meal for friends and having them amazed that they can enjoy an entire meal with no grains!   My entire mind set is very different now than a few years ago. 

 

This is usually how I end up at one of the places I go. Because they're "so far away" (first world problems) I rarely go. It's just so expensive already to eat at a place that is dedicated gluten free that the added expense of traveling to such a place makes it something that just doesn't really interest me in the day to day. Now, the safety net I get of not having to worry a bit or even think about the fact that I have celiac, is this safe? is something I'm all for on my birthday, anniversary, things like that. Day to day if I go out I stay in town. Even so, we've been known to go to a Brazilian steakhouse, which is mostly gluten free, instead of a place that is 100% gluten free because cheese bread. On weekends the best one around here also does deep fried polenta with parmesan sprinkled on top. So it's not weird for me, and I can eat everything everyone else does with one or two (literally, that's all) exceptions.

 

Well, it sounds like you are trying to open a restaurant or get the owners to open one closer to you :D.  If I lived near a gluten-free restaurant, I would go there often if the menu changed frequently or had daily specials to keep the menu fresh.  Even the draw of being a totally safe gluten-free place would get stale if the offerings were the same week after week.

 

If it were a gluten-free bakery where I could get good bread and other baked goods, I would drive an hour every couple weeks easy.

 

I agree with this too. If there were a gluten-free place in my city I'd be there pretty regularly. Probably once or twice a month. Depending on the prices and what was available I'd even consider giving up things like In N Out for it, even though I consider them to be 100% safe.

moosemalibu Collaborator

I'm fortunate that I have a gluten-free and dairy free dedicated bakery in Sacramento (Pushkin's) that is owned and operated by husband(celiac)/wife(non-celiac). They serve pastries as well as vegan sandwhiches that are sooo good. Napa also has several dedicated gluten-free restaurants in the Oxbow Market (Pica Pica and C. Casa, CA Cate and Co). I just discovered Pica Pica and they have amazing arepas! So I drive like 26 miles. Worth it for special occasions or the occasional one-off lazy cooking day.

squirmingitch Veteran

Well Georgia_guy, I sure hope you are just over the Fl./Ga. line directly above the "Gateway To Florida" b/c I would drive that 35 miles to the Ga. line to eat at a totally gluten-free restaurant. Or should I say my hubs and I would do that as he is celiac also. How often would we do this? Once a month, perhaps more often. There aren't even any dedicated gluten-free restaurants in Gainesville nor in Jacksonville. Sigh. 

We would just love to go out to dinner or lunch once in a while & get a break from the kitchen. Not to mention how wonderful it would be to go out on our anniversary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      327

      Terrible Neurological Symptoms

    2. - cristiana replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Concerning GP advice

    3. - EssexMum posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Concerning GP advice

    4. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,633
    • Most Online (within 30 mins)
      7,748

    envydaddy
    Newest Member
    envydaddy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
    • knitty kitty
      @HectorConvector, Here are some articles about "dry Beriberi" and neuropathy.  I hope you've been able to acquire thiamine hydrochloride or Benfotiamine.  I'm concerned.   Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke's Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pubmed.ncbi.nlm.nih.gov/30862772/ Dry Beriberi Manifesting as Acute Inflammatory Demyelinating Polyneuropathy in a Patient With Decompensated Alcohol-Induced Cirrhosis https://pmc.ncbi.nlm.nih.gov/articles/PMC7707918/ A Rare Case of Thiamine Deficiency Leading to Dry Beriberi, Peripheral Neuropathy, and Torsades De Pointes https://pmc.ncbi.nlm.nih.gov/articles/PMC10723625/
    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
    • EssexMum
      Hi, I am after some advice re my step daughter and her Coeliac Disease. She is 9 years old and had a very limited diet before being diagnosed (very fussy and very lenient parents), since being diagnosed it has become hard to find places out that will cater for her, but we manage.  History: She had been having severe tummy pains on and off every few months so had a bunch of tests and eventually was diagnosed with celiac disease a number of months ago. We was told that she is at a very high level and should avoid gluten for the rest of her lift, we was told that the gluten she has been eating has damaged the 'fingers' inside her and they will not replenish. We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesnt react to the gluten straight away, it will be a build up and then the pains start. We was advised that by her not reacting straight away, it did not mean it wasnt harming her inside. We was given literature about buying a separate toaster and cutting board etc to avoid cross contamination and have been checking all food labels etc.  Problem: the issue is the novelty seems to have worn off with her Mum and we are now posed with a situation. They are going on holiday to Disneyland Paris for 3 nights and she phoned the hotel who said they cannot cater for gluten free. She phoned the GP and had a conversation and then told my partner that the GP had said it was fine for her to have gluten for the 3-4 days. He questioned it and she said no its fine, she hasnt had it for months so a few days wont hurt and she exposed to it anyway without knowing so it will be fine and shes not ruining her holiday etc.   My partner could see from the online notes that his ex wife had told the doctor that the child does not follow a strict gluten-free diet anyway - not true. At least not with us! My partner requested a call with the same doctor who told him that it is the mums discretion and that the child should be monitored for reactions - he explained that the issue is she doesnt react straight away. The GP said no its all mums discretion and she knows best. We are going to try to speak to the consultant at the hospital, but I just wanted to gauge some thoughts. It just seems bizarre to me that we can go from being told to avoid gluten for the rest of her life and how harmful it is to her body, to now it being ok for her to have it for a few days. Thanks in advance  
    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.