Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Get Creative Describing Your Symptoms - Zombie Porcupines!

Harpgirl

By Harpgirl
in Coping with Celiac Disease

Recommended Posts

Harpgirl Explorer
Harpgirl
Posted

I've been suffering from gluten exposure recently and because I don't "look sick," I started coming up with ways to describe how I feel. I have several symptoms, but the best thing I've found to get my point across about the pain is to say that it feels like I swallowed a porcupine.

 

I stepped it up by doing something fun. On my author blog, I dressed up a picture of a porcupine to "zombify" it. Green eyes and everything. ;) "Forget brains...must destroy guts." Because there's no mercy to the pain and no perfect way to stop it than time. I'd post it here if you guys want me to, but I haven't even showed it to my boys because my 6-year-old is afraid of "zombies." lol. Didn't know if it would be okay here.

 

Anyway, creating the picture turned out to be fun. Kind of like hitting the bulls-eye on a dunk tank with a someone who knows how to throw insults.

 

So what are some creative ways that you can come up with to describe what gluten does to you?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Serielda Enthusiast
Serielda
Posted

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

1desperateladysaved Proficient
1desperateladysaved
Posted

Sometimes I say that I look like the Pillsbury Doughboy!

Harpgirl Explorer
Harpgirl
Posted
  • Author

One night the hubby and I was watching Cloverfield and he made a funny, at the time it wasn't so funny as we had in july an incident with a local PF Changs mentioned in a past post but that is another ball of wax. So back to the cloverfield deal, in the movie where the one actor Lizzy Caplan plays as Marlena Diamond gets bit and they are in the  army lab and she states I do not feel so good, and they grab her yelling we have a bite and she starts to swell and explode. Well I  obviously do not physically explode, but I cry, and turn emo, and ragey and have terrible bloating and other not nice things to  speak on. So  we refer to gluten and glutening as "glutenfield."

:lol: Too funny! I haven't seen Cloverfield yet, but isn't it funny how gluten is like a horror movie? I literally have nightmares about eating gluten.

Harpgirl Explorer
Harpgirl
Posted
  • Author

Sometimes I say that I look like the Pillsbury Doughboy!

Oh yeah, I get that too. Whenever I get glutened, at some point I will also be menstruating since my symptoms tend to last 5 weeks. I have certain clothes that just will not fasten during those weeks.

Serielda Enthusiast
Serielda
Posted

I am over joyed that I don't have the monthly ordeal anymore since my hysterectomy. But before that I can remember it was absolutely horrific. I

bartfull Rising Star
bartfull
Posted

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Harpgirl Explorer
Harpgirl
Posted
  • Author

Just call me "Patty Poopy Pants with dementia and a rash" :lol:

:lol: You should put that in a song and play it on your guitar!

bartfull Rising Star
bartfull
Posted

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

Harpgirl Explorer
Harpgirl
Posted
  • Author

They call me Patty Poopy Pants

And I don't feel so hot

My brain is in a constant fog

My rash itches a lot

 

It's hard to get to sleep at night

Although I'm always tired

My doctor thinks I'm crazy so

It's time that he was fired

 

My feet are swollen every night

My joints all really ache

I get the hiccups every day

I just can't catch a break

 

I need to keep a bathroom near

Except when I'm constipated

The gas pains have me doubled over

No wonder I'm so frustrated

 

The doctor says it's IBS

Or else all in my head

Sometimes I think if I had a gun

That doctor would be dead

 

For years I've suffered needlessly

With nausea and tootin'

When all I really had to do

Was take myself off gluten

That is awesome!  :lol:

GottaSki Mentor
GottaSki
Posted

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Harpgirl Explorer
Harpgirl
Posted
  • Author

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

lol, my hubby and I use BubbleGirl too. When I'm making dinner, I hold at least one thoroughly washed hand up as if I were a surgeon avoiding contamination of my patient.

lmj623 Apprentice
lmj623
Posted

On Tuesday when i was hitting the peak of my emotional madness (post glutening) at work I wanted to put a sign around my neck that said "warning: volatile specimen. Approach with caution" or something along the lines of me being a psycho b. sigh.. now I am just to the week long lingering of nausea and multiple trips to the bathroom. Happy wedding anniversary!

 

something weird is going on in there...

Serielda Enthusiast
Serielda
Posted

Lol@the "bubble girl" comments. My baby has in several occasions that he's opted sticking me in a bubble. It usually ends up with me saying nih uh, let's no be ridiculous.

During my worst flares we use my least favorite, yet extremely accurate nickname....'Human Amoeba'.

'BubbleGirl' takes care of my "allergic" reactions to environment and exercise.

And then there is one many of us like to use...I'm feeling froggy...started when someone with brain fog mistyped...and it fits.

Pegleg84 Collaborator
Pegleg84
Posted

Bartful, you're the best!

 

And aside from my boyfriend singing silly songs about me pooping (which is kind of endearing in a gross annoying way), I just say that, when it really bad post-glutening emotional rages, "Either it'll kill me or I'll kill someone, whichever comes first"

 

Yep, my gut hates me.

Sock Newbie
Sock
Posted

Lava diarrehia. Sometimes with constipation at the same time. Yeah, I didn't think it was possible either, but I'm on the cutting edge of bathroom science. Boldly going where no man will admit to having gone before...

 

"Either it'll kill me or I'll kill someone, whichever comes first"  ...I'm stealing that.

beth01 Enthusiast
beth01
Posted

I can finger paint with my poop from one day and have every color of the rainbow available to me.  Enough said.

across Contributor
across
Posted

,

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,217
    • Most Online (within 30 mins)
      7,748
    llisa
    Newest Member
    llisa
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten free vitamins

      By trents · Posted

      Welcome to the forum, @llisa! If you are near a Costco, their Kirkland Signature brand, Nature Made and others are often gluten free and, if so, will state so on the packaging. They are economically priced as well. 
    • llisa
      Gluten free vitamins

      By llisa · Posted

      Looking for gluten free multi-vitamin for 70-year-old woman. Also D3, Calcium, and B complex. Thank you.
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      @Milarynn,  Welcome to the forum!   Many undiagnosed, untreated Celiac Disease patients have vitamin and mineral deficiencies.  Be sure to have your Vitamin D level checked.  Vitamin D helps prevent bone loss, including loss from the jaw and teeth.   Magnesium and calcium are both important to bone health as well.  Magnesium helps keep the calcium from leaving your bones.  Magnesium helps make life sustaining enzymes with Thiamine Vitamin B1.  Low Magnesium and/or low Thiamine results in muscle cramping.   Thiamine deficiency is found in Pre-diabetes and Diabetes.  Poor absorption of the eight water soluble B vitamins and Vitamin C are found in Celiac Disease.  Insufficient Vitamin C can cause poor oral health, resulting in poor gum health such as receding and bleeding gums.  Vitamin C is needed to fight bacteria that cause plaque which causes cavities.  Vitamin C helps rebuild tooth enamel.   I've had jaw muscle cramping, TMJ problems, tooth loss and gum problems.  Do talk to your dentist about having Celiac Disease.  Practice good oral hygiene.  I'm also Diabetic and take Benfotiamine (a form of Thiamine) that helps regulate blood glucose and heal the intestines. Do keep us posted on your test results and your progress!
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Milaryrnn, your post is confusing. First, your celiac disease antibody testing is negative. By any chance had you already been on a gluten free diet before the blood draw for these tests was done? That would result in negative antibody testing even if you had celiac disease. Or, had you previously been diagnosed with celiac disease and had the antibody testing done to check for compliance with the gluten free diet? Second, DNA testing cannot be used to confirm celiac disease. 40% of the general population has the genetic potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. It takes both the genetic potential and some triggering biological stress event in order to develop active celiac disease. Otherwise, the genes remain inactive. High lipase levels would indicate some problem with your pancreas. 
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Thanks, yes, I've gone back and forth.  There is a lot of autoimmune disease in my family, so primarily I was thinking a real diagnosis might be helpful for other family members -- especially as I have two young biological nephews.  I feel like I am at a crossroads, where if I'm going to test now would be the time, since I've been in a less-than-perfect eating period.  I'm either going to just going to use what I've learned in these last few months to purposely never cheat again (obviously there is the accidental glutening situations) or test first, and then do that.  I don't need an official diagnosis so much that if I'm doing well I'm going to sabotage that by then starting to eat gluten again. I'm so glad you said this.  Even from what I've read so far, it makes sense to me that this is a misconception.  But growing up with all kinds of allergies, I can see how, as for the general population it's just easier for everyone to simplify it down to a type of "allergy," people would assume this.  It's just how most people look at allergies and diets and gluten avoidance has been painted as both.  I even see it in my journey to date, when I say I want a gluten free selection at a restaurant and I am asked "is it an allergy?" and it is so much easier just to say yes (even if the answer is actually well, no, it's autoimmune).  Because the "yes" answer is the "this is serious" answer.
×
×
  • Create New...