Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Doctors Test For Celiac?


whtswrongwithme32

Recommended Posts

whtswrongwithme32 Apprentice

Can/Will GI doctors test for Celiac?

                                     Thanks.

p.s. I had a good doctors appointment today with many tests either done via lab work or scheduled, but none for celiac. CNP want's to make sure I get the right specialist to do the right test in my rural area. thanks, 

                                                                     me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Yes, a GI can order a celiac blood panel, but any Medical doctor can do it. Our GP/PCP ordered tests for my daughter.

Go to this site (University of Chicago's celiac website) for the exact tests needed:

Open Original Shared Link

whtswrongwithme32 Apprentice

My CNP stated that she would really rather me get reffered to GI so that they could correlate my symptoms with the proper tests. She said that she has had patients she tested have negative results, then go to our GI doctors in our lil town here and then she received word back that they do indeed have celiac. I also asked her if the endoscope would have shown anything (I did not have a biopsy) and she said, it depended on what stage it was in. But they are considering this among other autoimmune issues right now(and also looking at my liver for some reason). She works with an Internist so he is helping us through all of this....I do have a funny story to share...I went into the doctor's office knowing I would not bring up celiac until the CNP came in to see me. They do have it on their records though...the assistant asked me a bunch of questions and said, "whoa, that sounds like my sister. Everything you described is what she goes through when she has glueten. She is glueten intolerant.". I sometimes wonder if I should stop with all this testing and see if going off of it would end my misery. I guess it's good they make sure it's nothing else though. 

Spazoid Newbie

My CNP stated that she would really rather me get reffered to GI so that they could correlate my symptoms with the proper tests. She said that she has had patients she tested have negative results, then go to our GI doctors in our lil town here and then she received word back that they do indeed have celiac. I also asked her if the endoscope would have shown anything (I did not have a biopsy) and she said, it depended on what stage it was in. But they are considering this among other autoimmune issues right now(and also looking at my liver for some reason). She works with an Internist so he is helping us through all of this....I do have a funny story to share...I went into the doctor's office knowing I would not bring up celiac until the CNP came in to see me. They do have it on their records though...the assistant asked me a bunch of questions and said, "whoa, that sounds like my sister. Everything you described is what she goes through when she has glueten. She is glueten intolerant.". I sometimes wonder if I should stop with all this testing and see if going off of it would end my misery. I guess it's good they make sure it's nothing else though. 

Don't go off it until you have your test results in hand!!!!  I went off it, felt amazing, and my blood work/biopsy came back negative...  So I have zero documentation and a psych history - ugh.  I just got sick from a date's lip balm (or what they ate)!  I am twitching and have the "steel-wool-like" pains-  with no one to turn to... :(  

 

Those positive test results are hard to nail down - and they will be invaluable for your treatment! (getting gluten-free meds, people taking your diet restrictions seriously, not accusing you of being a hypochondriac, etc...)

Tomislav Newbie

I didn't quite get any information about your symptoms so if u do have some free time i would rather read them. And about the GI doctors, I'm a second year Medical student, as well a Celiac since I have been 2 years old, a lot of GI experts couldn't diagnose me with Celiac (but that was in the past due Celiac disease wasn't extended), so basically even if he is GI it doesn't mean that he's going to diagnose you right..Diagnosing Celiac is by 2 test, the one is endoscopy and the second is a blood test, if the blood test is negative than you definitely don't have Celiac..but as I read above you said something about other autoimmune issues, Celiac is related with Rheumatoid arthritis, so if u do have the gene for Celiac there's a possibility that you might get Rheumatoid arthritis as well (if u stay in a colder places), but I dont think that's quite important at the moment.. What I do wanna ask you is, are you on a Gluten free diet atm or not, and if you are, do you have any symptoms...and in case if your not on a gluten free diet, do you as well have any symptoms..I'm looking forward into contacting you ASAP. :)

GottaSki Mentor

Neither of the tests listed were the

Total Serum IgA...this is run to make sure you have enough for the celiac antibody tests to be as accurate as possible.

I would ask for The Total Serum IgA along with Deamidated Gliadin Peptide tests:

DGP-IgA

DGP-IgG

Nutrient (vitamins and minerals) testing can also be helpful as celiac prevents proper absorption so low nutrient levels is a part of the diagnostic puzzle.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,600
    • Most Online (within 30 mins)
      7,748

    Stephanie1964
    Newest Member
    Stephanie1964
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibee
      I haven’t been diagnosed formally. My doctor always called it eczema but over the years I have figured out it isn’t.  I’ll do some research on iodine. Thanks for that info. 
    • trents
      I would not think abstaining from commercially processed food would have any effect on dermatitis herpetiformis. What can help with dermatitis herpetiformis is reducing iodine in your diet and, of course, you must completely abstain from gluten.  Many who suffer from dermatitis herpetiformis cannot find relief until they get on a med called Dapsone. It seems to be pretty effective but stresses the liver. So, anyone taking it must have their liver enzymes monitored regularly. By the way, celiac disease is the only know cause for dermatitis herpetiformis. Has your rash been officially diagnosed as dermatitis herpetiformis? It can be a challenge to find a dermatologist who knows how to properly biopsy dermatitis herpetiformis when seeking a diagnosis.
    • Alibee
      I was eating gluten at the time it was done. I do not eat commercially processed food and we make it all from scratch so I wonder if that might cause an issue. 
    • trents
      When you had the blood draw done for the antibody testing, had you already been practicing a gluten free diet? If so, that would also sabotage the results of the tTG-IGA.
    • Alibee
      The rash on my hands is the little blisters or  dermatitisherpetiformi you are referencing. They itch like crazy and no doctor has ever been able to get them to go away. When I remove gluten from my diet they go away. I decided to do the test for that reason. It’s really my only symptom but my sister has celiac disease and the same hand rash. her doctor recommended I get tested. 
×
×
  • Create New...