Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did You Heal Your Gut? Besides Giving Up Gluten...


icelandgirl

Recommended Posts

IrishHeart Veteran

A study showing that grains can be contaminated: Open Original Shared Link

 

Tricia Thompson RD  (whom I have conversed with via email) and Anne Lee, RD who I had the pleasure of meeting and talking with for over an hour at a Gluten Free Living conference inOrlando last spring co-authored that article and I specifically asked Ms. Lee about this study. She had presented a lecture earlier that day about the need for incorporating grains into the G F diet because she knows their nutritional importance.

 

She stressed that certified G F grains are not the problem.

 

Let's look at the conclusion of the study:

 

 

We concluded that “the findings of the current study indicate that some inherently gluten-free grains, seeds, and flours not labeled gluten-free are contaminated with gluten. This potential risk of contamination is a health concern for people with celiac disease, who must follow a gluten-free diet. The consumption of these products can lead to inadvertent gluten intake.”

 

1) some inherently G F grains, seeds and flours

2) NOT LABELED G F

3) "potential" risk

 

 

In other words, just to be safe, celiacs may wish to avoid THOSE not labeled G F......and eat  grains for their nutritional value. 

 

The vast majority of celiacs can and do heal their gut lining while eating G F grains. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

 

A study showing celiacs continuing to experience symptoms when they were on a special diet: Open Original Shared Link

They do allow rice.

"All cereal grains aside from rice are prohibited."

 

 

yes, however, after the trial of that "Fasano diet" as it is now dubbed, the conclusion was 

 

"Of the 14 patients who responded to the diet, 11 (79%) successfully returned to their previous traditional GFD without resurgence of symptoms or elevated serology."

 

Eating mass-market  G F grains. 

 

Even the leading celiac researchers think it's okay to eat rice. The people in the study did not cut out grains and they still healed their gut linings, so I am sorry but I honestly do not see why you use these two small studies as refutation of the statement gemini made.

Pauliewog Contributor

When I went gluten-free I struggled with what to eat. Then on the forum here I read about Paleo and Mark's Daily Apple. It wasn't until I started eating that way that I started to feel better. I eat all whole foods that I prepare myself. Any sweets (except for chocolate) I make myself. Any baked goods I make myself. Nothing processed other than the raw ingredients I need to make things. My meals center around a lot of vegetables with a bit of meat/fish. I do eat rice sometimes and I eat rice crackers every now and then.

icelandgirl Proficient

Hi Pauliwog...what do you bake with? Since you're not doing grains do you do almond flour?

dilettantesteph Collaborator

The comments from Irishheart make realize that I need to work harder to be more clear.  I gave the references to those studies because I thought the OP might want to read them because they are relevant to her question to me asking if I cut grains from my diet to heal.

IrishHeart Veteran

The comments from Irishheart make realize that I need to work harder to be more clear.  I gave the references to those studies because I thought the OP might want to read them because they are relevant to her question to me asking if I cut grains from my diet to heal.

 

Actually, no.. I thought you were pretty clear.  That's not why you posted them originally.. You posted them to refute a statement Gemini made earlier in the thread.

I say this because you quoted her before answering with those study links (why else would you post them directly after her comment?). 

 

And anyone reading the thread knows that you quoted Gemini's sentence because they saw it. Now, you are changing what you are saying was your intention because I raised some points that show the studies did not really support your attempt to  refute her comment.

 

You have since come back and edited that part out. 

 

but I have the email notice right here:

dilettantesteph  has just posted a reply to a topic that 
you have subscribed to titled "How Did You Heal Your Gut?  
Besides Giving Up Gluten...".

----------------------------------------------------------------------
------------ QUOTE ----------
There is no proof that cutting out all grains will help a person heal faster. 
-----------------------------

 
A study showing that grains can be contaminated: 
https://www.glutenfreewatchdog.org/blog/Naturally-Gluten-Free-Grains-and-
Gluten-Contamination/6 (https://www.glutenfreewatchdog.org/blog/Naturally-
Gluten-Free-Grains-and-Gluten-Contamination/6)
 
A study showing celiacs continuing to experience symptoms when they 
were on a special diet: http://www.biomedcentral.com/1471-230X/13/40
They do allow rice.
"All cereal grains aside from rice are prohibited."

***********************************

I would not have posted a lengthy response to you for no reason. That would make no sense and I would not waste my time or the reader's time.   

dilettantesteph Collaborator

I didn't edit that out to try to hide something.  I edited it out to try to make my meaning more clear.  Please don't make accusations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I would like to remind everyone of Board Rule #1:

  • 1) Do not be abusive or otherwise out of line towards other board members. Show respect for each board member, no matter what you think of their views. This is not a place to quarrel.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,206
    • Most Online (within 30 mins)
      7,748

    DreDre
    Newest Member
    DreDre
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kopiq
      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...