Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


danikali

Recommended Posts

danikali Enthusiast

Just a quick few questions:

1. How long does it usually take to get the test results back from enterolab?

2. Are they more accurate than the tests taken by your GI?

3. Is it hard to do them yourself?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Just a quick few questions:

1. How long does it usually take to get the test results back from enterolab?

2. Are they more accurate than the tests taken by your GI?

3. Is it hard to do them yourself?

Thanks!

<{POST_SNAPBACK}>

1. It can take up to 3 weeks. I got mine back in 2 weeks.

2. Dr. Fine (from Enterolab) claims they are more sensitive...meaning where a blood test may be negative the stool test might come back positive. The stool test can be positive after months on a gluten-free diet whereas a bloodtest would most likely be negative once on a gluten-free diet. The biopsy done by a GI is kind of a hit or miss if its positive you have Celiac...no doubt. If its negative...it doesnt mean you dont have Celiac or gluten sensitivity....it just means they didnt see any damage. Maybe there *is* no damage yet or maybe they missed it.

3. The test is easy to do. Its just a stool sample. If you ordered the gene test its easy to do...you just follow the directions.

Did you read the info on Enterolabs website? There is alot of good info on there.

Here is a link to FAQ

Open Original Shared Link

Here is the link to Dr. Fines essay

Open Original Shared Link

The stool tests are not recognized by all doctors yet. The jury is still out as far as which tests are better. Someday these tests may be more recognized. There was a recent discussion about that on this board.

Open Original Shared Link

Hope this helps. :)

danikali Enthusiast

Thanks for replying! I actually got the Gluten Sensitivity Stool Panel Complete, without the gene test, just because of the expense. Which one did you get when you went through enterolab? I hope this test is as good as the one WITH the gene test. The gene test is specifically to see if you have the gene for celiac, and may have it, or one day have it, am I right? I just really want proof that I am not crazy, ya know? LOL

Rachel--24 Collaborator
Which one did you get when you went through enterolab? I hope this test is as good as the one WITH the gene test. The gene test is specifically to see if you have the gene for celiac, and may have it, or one day have it, am I right?

<{POST_SNAPBACK}>

I got IgA, tTG, malabsorption, and gene testing. It was the complete panel or whatever...it also came with the milk test (casein). Last month I ordered the egg and yeast tests..they were negative. My casein test was neg. as well. Everything having to do with the gluten testing was positive. I did not have either of the main Celiac genes...I had 2 gluten sensitivity genes. If you have the genes they can be triggered at any time or you can go your whole life without ever developing a problem. They don't know all of the genes linked with Celiac yet. My GI disregarded my gene test saying he cannot rule out celiac based on the genes cuz they don't know all the genes involved yet. It was a rough road for me and bascially at this point I'll probably never know exactly what I have unless I do a gluten challenge...which my doctor doesnt reccommend and I have no desire to do it anyways. All I know is my health improved dramatically after going gluten-free. Enterolab said to stay on strict gluten-free diet based on the results..so thats what I'm doing. :)

danikali Enthusiast

Okay, good, thanks! May I also ask what your symptoms were? I am so intrigued by all of these things that I am learning, but I want to know more about people's symptoms. I feel like I have almost every single one listed!

Also, what is the gluten challenge?

And do you feel better now that you are gluten free?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,817
    • Most Online (within 30 mins)
      7,748

    ydderffool
    Newest Member
    ydderffool
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AuntieAutoimmune
      Great tips, Deb. Thanks.  What a pity that they no longer mark items as gluten-free. And it is even more of a shame that you must bring protein bars instead of the crew helping you with your needs. Are you planning on sailing Royal again? 
    • Scott Adams
      I've not heard of any issues with Primal Kitchen, but it certainly would be worth not using the brand for a while to see if this helps. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      If you are super sensitive you may want to look for only Certified Gluten-Free Products, as @trents mentioned.
    • Scott Adams
      I'm not sure about low calorie, as puddings are typically a dessert, but we do have this category: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-pudding-recipes/ This one might work if you cut back on the sugar:    
    • DebJ14
      We are off next week on our 9th RCCL cruise since our diagnoses.  I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free.   Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu.  Instead of having a dedicated person take gluten-free orders, it now falls to your regular wait staff.  Some have been great and some not so good.  We had a great cruise in May and hit it off with our head waiter.  She went the extra mile and ordered gluten free desserts that were not on the menu.  My problem arises from other food allergies.  I am allergic to dairy, beef, and several types of fish.  On those days my husband is a happy camper with a steak or salmon, veggies and a baked potato.  I end up not getting enough protein, so I bring protein bars.  I also bring snacks for the room. As long as the food is commercially prepared and unopened, you can bring it. Often the only dessert choices that are gluten free contain dairy, so I am out of luck.  But, if you are just gluten free, they have plenty of choices.  See the head chef in the Windjammer buffet and he will give you a tour of the gluten-free choices.  They usually have 2 gluten free desserts out at lunch and they are labeled gluten free. We have found that it works best to have assigned dining rather than anytime.  That way the waiters learn from the get go what our needs are, and we don't have to explain ourselves every night.  We also get a private table for 2.  I frankly got sick and tired of tablemates telling me a little bit of gluten would not hurt me.
×
×
  • Create New...