Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Continual Gluten Consumption?


Solandra

Recommended Posts

Solandra Rookie

I tested positive on my AGA IGA test and my doctor said I should assume Celiac and go gluten free, so I have been good. My friend, on the other hand, even had a biopsy and still continues to eat gluten. She was talking about wheat germ in her oatmeal and eating toaster strudels sometimes and says that it doesn't seem to upset her. I tried to tell her that it could still cause autoimmune problems and other issues later on, but she doesn't seem to care or think that it will bother her. She also recommended that I eat wheat pasta from Italy because the wheat is "different" and wouldn't bother Celiac. So.. what issues could she face if she keeps doing this? It's kind of worrysome. And also I'm wondering why I'm bothering if it's not really an issue to have it sometimes.. haha. *eyes donut* I told her before that I think my dad was undiagnosed and that's why he got diagnosed with colon cancer at 60 and died at 62... but I don't know how else to convince her maybe she should go gluten free.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMRI Collaborator

She's an adult and there is only so much you can do.  It's her life.  Direct her to this website or another reputable site with good information and let her read.  Eventually it will catch up with her.  There had to be some reason she went to the doctor to get her initial diagnosis so something wrong with her whether she chooses to accept that or not.

kareng Grand Master

This would be a person I couldn't be around much. :(

Solandra Rookie

Yeah, it's tough. I actually have another friend with biopsy proven Celiac who is non chalant about it. I just have to remind myself to keep doing it.

BlessedMommy Rising Star

It always amazes me when DX'ed celiacs cheat. Cheating isn't an option for me and I'm not even DX'ed. I can't imagine actually knowing for 100% certain that my intestines were getting damaged and going ahead and cheating. 

LauraTX Rising Star

I met a lady who had a lot of health problems, multiple autoimmune issues and had just had a bout with cancer.  A while after meeting her she nonchalantly tells me she was diagnosed with Celiac disease 10 years ago, but just never went gluten-free, and maybe she will do it now.  I thought inside my head for a few seconds and decided I would just respond to her with complete kindness and not criticize her, let her know that there are a ton of risks and it is probably affecting her more than she knows, and offered to go to her house and do grocery shopping and such with her.  I hope she does, but with someone like that, you just can't force someone, just educate and hope for the best.  Sadly, with the age of easily accessible information on the internet, much of that is wrong, and many people will believe what they want to because they want it to be, as with the Italian wheat thing.  Italy has it's fare share of Celiacs, but people won't believe what they don't want to sometimes.  Same thing happens with morbidly obese people after  they have heart issues, diabetics who still eat an uncontrolled diet against what is needed... some people just will not take care of themselves.  A very sad thing to watch, indeed.  

SMRI Collaborator

I'm surprised in just a few short months how different I feel going gluten-free.  With all of the information out there, how can you get a diagnosis like that and not at least try.  I was thinking just yesterday how I haven't had my"normal" lower back pain for a few weeks and how I'm not just tired all the time any more.  If just those little things are better, imagine those that have had big issues and how they probably could be prevented.  I was reading elsewhere about someone that was trying to cook for someone with Celiac and several people commented that it was a nice thought but likely that person wouldn't eat what they made because they didn't now how you prepared the food--cc and such in the kitchen.  A few celiacs commented that they never worry about that stuff because it wasn't a big deal.   Ok, whatever.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Yeah, I knew a guy once who was DX'ed celiac (biopsy proven) and he would gladly go eat peanut butter and such after gluten eaters had dipped into them, because he "wasn't that sensitive."

 

I think that a lot of it is lack of education--they assume that it's like an allergy or something and therefore think that if they aren't having symptoms they're okay.

bartfull Rising Star

There's not a smoker alive who doesn't know about the risks of cancer, heart disease, stroke, lung disease, etc. Fear of possible health threats in the future will never convince anyone to take care of business. I think the possibility of feeling so much better is more likely to do the trick.

 

Trouble is, if someone is asymptomatic, even that won't work.

beth01 Enthusiast

Not sure how old your friend is but I'm 37 and was just diagnosed with Celiac 6 months ago and after reading my file, my doctor and I both believe it's been since birth. Here's what she possibly has in store for her; migraines, arthritis, nerve pain, severe muscle cramping, thyroid disorders, failed or inactive gallbladders/appendix, miscarriages, preterm births, depression, anxiety, OCD, brain fog, weight loss, weight gain, vitamin deficiencies, dyslexia...need I go on?

From Forrest Gump " stupid is as stupid does" and one of my personal favorites quoted from who knows who " you can't fix stupid". Like Karen said, I couldn't be around her for very long either.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    2. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how much gluten do I need to eat before blood tests?

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    4. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    5. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,255
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.