Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Continual Gluten Consumption?


Solandra

Recommended Posts

Solandra Rookie

I tested positive on my AGA IGA test and my doctor said I should assume Celiac and go gluten free, so I have been good. My friend, on the other hand, even had a biopsy and still continues to eat gluten. She was talking about wheat germ in her oatmeal and eating toaster strudels sometimes and says that it doesn't seem to upset her. I tried to tell her that it could still cause autoimmune problems and other issues later on, but she doesn't seem to care or think that it will bother her. She also recommended that I eat wheat pasta from Italy because the wheat is "different" and wouldn't bother Celiac. So.. what issues could she face if she keeps doing this? It's kind of worrysome. And also I'm wondering why I'm bothering if it's not really an issue to have it sometimes.. haha. *eyes donut* I told her before that I think my dad was undiagnosed and that's why he got diagnosed with colon cancer at 60 and died at 62... but I don't know how else to convince her maybe she should go gluten free.

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMRI Collaborator

She's an adult and there is only so much you can do.  It's her life.  Direct her to this website or another reputable site with good information and let her read.  Eventually it will catch up with her.  There had to be some reason she went to the doctor to get her initial diagnosis so something wrong with her whether she chooses to accept that or not.

kareng Grand Master

This would be a person I couldn't be around much. :(

Solandra Rookie

Yeah, it's tough. I actually have another friend with biopsy proven Celiac who is non chalant about it. I just have to remind myself to keep doing it.

BlessedMommy Rising Star

It always amazes me when DX'ed celiacs cheat. Cheating isn't an option for me and I'm not even DX'ed. I can't imagine actually knowing for 100% certain that my intestines were getting damaged and going ahead and cheating. 

LauraTX Rising Star

I met a lady who had a lot of health problems, multiple autoimmune issues and had just had a bout with cancer.  A while after meeting her she nonchalantly tells me she was diagnosed with Celiac disease 10 years ago, but just never went gluten-free, and maybe she will do it now.  I thought inside my head for a few seconds and decided I would just respond to her with complete kindness and not criticize her, let her know that there are a ton of risks and it is probably affecting her more than she knows, and offered to go to her house and do grocery shopping and such with her.  I hope she does, but with someone like that, you just can't force someone, just educate and hope for the best.  Sadly, with the age of easily accessible information on the internet, much of that is wrong, and many people will believe what they want to because they want it to be, as with the Italian wheat thing.  Italy has it's fare share of Celiacs, but people won't believe what they don't want to sometimes.  Same thing happens with morbidly obese people after  they have heart issues, diabetics who still eat an uncontrolled diet against what is needed... some people just will not take care of themselves.  A very sad thing to watch, indeed.  

SMRI Collaborator

I'm surprised in just a few short months how different I feel going gluten-free.  With all of the information out there, how can you get a diagnosis like that and not at least try.  I was thinking just yesterday how I haven't had my"normal" lower back pain for a few weeks and how I'm not just tired all the time any more.  If just those little things are better, imagine those that have had big issues and how they probably could be prevented.  I was reading elsewhere about someone that was trying to cook for someone with Celiac and several people commented that it was a nice thought but likely that person wouldn't eat what they made because they didn't now how you prepared the food--cc and such in the kitchen.  A few celiacs commented that they never worry about that stuff because it wasn't a big deal.   Ok, whatever.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Yeah, I knew a guy once who was DX'ed celiac (biopsy proven) and he would gladly go eat peanut butter and such after gluten eaters had dipped into them, because he "wasn't that sensitive."

 

I think that a lot of it is lack of education--they assume that it's like an allergy or something and therefore think that if they aren't having symptoms they're okay.

bartfull Rising Star

There's not a smoker alive who doesn't know about the risks of cancer, heart disease, stroke, lung disease, etc. Fear of possible health threats in the future will never convince anyone to take care of business. I think the possibility of feeling so much better is more likely to do the trick.

 

Trouble is, if someone is asymptomatic, even that won't work.

beth01 Enthusiast

Not sure how old your friend is but I'm 37 and was just diagnosed with Celiac 6 months ago and after reading my file, my doctor and I both believe it's been since birth. Here's what she possibly has in store for her; migraines, arthritis, nerve pain, severe muscle cramping, thyroid disorders, failed or inactive gallbladders/appendix, miscarriages, preterm births, depression, anxiety, OCD, brain fog, weight loss, weight gain, vitamin deficiencies, dyslexia...need I go on?

From Forrest Gump " stupid is as stupid does" and one of my personal favorites quoted from who knows who " you can't fix stupid". Like Karen said, I couldn't be around her for very long either.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      41

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      41

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,381
    • Most Online (within 30 mins)
      7,748

    Becky Coleman
    Newest Member
    Becky Coleman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.