Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results "normal"


darkangel

Recommended Posts

darkangel Rookie

My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



danikali Enthusiast
My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.

<{POST_SNAPBACK}>

may i ask what your symptoms are?

Jnkmnky Collaborator

I came up normal with no sensitivities as well. However, being gluten free means I DO NOT have the endometriosis pain I experienced for a year+. Have you read the book Dangerous Grains? It's helpful in explaining why our bodies do not do well ingesting gluten. It was all the proof I need to believe my body does NOT like gluten....no matter what the current tests say about my reaction to gluten. Let's also not forget that testing for Celiac *while improved* is not as good as it will one day be.

darkangel Rookie
may i ask what your symptoms are?

<{POST_SNAPBACK}>

I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints aching, fatigue, sleepiness... you name it.

A couple of weeks ago, I woke up and eliminated all gluten and casein and am feeling better, but still not 100%. I had been taking a whey protein isolate supplement because I weight train. When I started losing weight, I upped my intake and it finally dawned on me, if I had a casein sensitivity, this could explain my sudden turn for the worse. So, I stopped it completely and it helped alot.

I just don't understand why all these things can bother me so much, but nothing shows up on the tests. However, I will listen to my body... not the blood test results.

My brother said I should be happy I wasn't dxed celiac disease or gluten intolerant, but it would be nice to have some answers and to KNOW what I need to do to get well.

danikali Enthusiast

I know what you are saying about having answers. You feel like you're are going nuts sometimes when they can't find anything, but SOMETHING is OBVIOUSLY going on!

My question is, what kind of tests did you just take? Blood tests? Were you off the gluten when you took the tests?

And also, have you tried going through enterolab and giving them a stool sample instead of a blood test?

But it's also true, no matter what, we know our bodies best, and if you are feeling better, than you should just keep it up. I'm actually back on the gluten for testing, and I can't believe how crappy I feel every single day again. I'm so jealous of people who can actually concentrate on life instead of their health every day!

Jnkmnky Collaborator
I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints aching, fatigue, sleepiness... you name it.

A couple of weeks ago, I woke up and eliminated all gluten and casein and am feeling better, but still not 100%. I had been taking a whey protein isolate supplement because I weight train. When I started losing weight, I upped my intake and it finally dawned on me, if I had a casein sensitivity, this could explain my sudden turn for the worse. So, I stopped it completely and it helped alot.

I just don't understand why all these things can bother me so much, but nothing shows up on the tests. However, I will listen to my body... not the blood test results.

My brother said I should be happy I wasn't dxed celiac disease or gluten intolerant, but it would be nice to have some answers and to KNOW what I need to do to get well.

<{POST_SNAPBACK}>

There's an awful lot of healing you'll have to do. A few weeks is not enough time. Give it 6 months....at least. Just be 100% gluten-free or your efforts are wasted.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,645
    • Most Online (within 30 mins)
      7,748

    Laraine
    Newest Member
    Laraine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @yellowstone! The most common ones seem to be dairy (casein), oats, eggs, soy and corn. "Formed" meat products (because of the "meat glue" used to hold their shape) is a problem for some. But it can be almost anything on an individual basis as your sensitivity to rice proves, since rice is uncommonly a "cross reactor" for celiacs. Some celiacs seem to not do well with any cereal grains.
    • yellowstone
      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.