Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results "normal"


darkangel

Recommended Posts

darkangel Rookie

My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



danikali Enthusiast
My doctor just called. No sign of celiac disease or even any gluten sensitivity on my blood tests. B12 levels good, magnesium levels good. Red blood cell count a little low, but not anemic. So, I still have no answers.

<{POST_SNAPBACK}>

may i ask what your symptoms are?

Jnkmnky Collaborator

I came up normal with no sensitivities as well. However, being gluten free means I DO NOT have the endometriosis pain I experienced for a year+. Have you read the book Dangerous Grains? It's helpful in explaining why our bodies do not do well ingesting gluten. It was all the proof I need to believe my body does NOT like gluten....no matter what the current tests say about my reaction to gluten. Let's also not forget that testing for Celiac *while improved* is not as good as it will one day be.

darkangel Rookie
may i ask what your symptoms are?

<{POST_SNAPBACK}>

I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints aching, fatigue, sleepiness... you name it.

A couple of weeks ago, I woke up and eliminated all gluten and casein and am feeling better, but still not 100%. I had been taking a whey protein isolate supplement because I weight train. When I started losing weight, I upped my intake and it finally dawned on me, if I had a casein sensitivity, this could explain my sudden turn for the worse. So, I stopped it completely and it helped alot.

I just don't understand why all these things can bother me so much, but nothing shows up on the tests. However, I will listen to my body... not the blood test results.

My brother said I should be happy I wasn't dxed celiac disease or gluten intolerant, but it would be nice to have some answers and to KNOW what I need to do to get well.

danikali Enthusiast

I know what you are saying about having answers. You feel like you're are going nuts sometimes when they can't find anything, but SOMETHING is OBVIOUSLY going on!

My question is, what kind of tests did you just take? Blood tests? Were you off the gluten when you took the tests?

And also, have you tried going through enterolab and giving them a stool sample instead of a blood test?

But it's also true, no matter what, we know our bodies best, and if you are feeling better, than you should just keep it up. I'm actually back on the gluten for testing, and I can't believe how crappy I feel every single day again. I'm so jealous of people who can actually concentrate on life instead of their health every day!

Jnkmnky Collaborator
I have a long history of gut trouble: tummy aches and constipation as a child, dxed with IBS in college, upgraded to ulcerative colitis in my 20s. I've been in "remission" for a couple of blissful years, but here lately the old symptoms have cropped up again and have gotten worse and worse... diarrhea, gas, cramping, bloating, allergic reactions, rash, joints aching, fatigue, sleepiness... you name it.

A couple of weeks ago, I woke up and eliminated all gluten and casein and am feeling better, but still not 100%. I had been taking a whey protein isolate supplement because I weight train. When I started losing weight, I upped my intake and it finally dawned on me, if I had a casein sensitivity, this could explain my sudden turn for the worse. So, I stopped it completely and it helped alot.

I just don't understand why all these things can bother me so much, but nothing shows up on the tests. However, I will listen to my body... not the blood test results.

My brother said I should be happy I wasn't dxed celiac disease or gluten intolerant, but it would be nice to have some answers and to KNOW what I need to do to get well.

<{POST_SNAPBACK}>

There's an awful lot of healing you'll have to do. A few weeks is not enough time. Give it 6 months....at least. Just be 100% gluten-free or your efforts are wasted.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,121
    • Most Online (within 30 mins)
      7,748

    jenr8er
    Newest Member
    jenr8er
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
    • captaincrab55
      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
    • Colleen H
      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.