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- VinnieVan posted a topic in Introduce Yourself / Share Stuff0Question
Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 7... -
- cam6 commented on Scott Adams's article in Additional Concerns4Is Chipotle Gluten-Free? A Celiac's Guide to Safe Dining
@trents I’ve done this many times over many years, and that has never been a problem. I think they fill & bag the items on a ticket before they move on to the next one so it’s not likely to be a problem. My bag has my name on it from my account. It’s just my bowl inside the bag that says Gluten Allergy.- celiac disease
- chipotle
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- Katya773 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Previous Biopsy Results
Hello:). This a lengthy post. Just looking for some advice. I had the capsule study back in 2019 I tried the gluten challenge but got so horribly distended and could finish it, I had been gluten-free since 2016 except for occasional accidental ingestion. However In 2019 I saw a gastroenterologist due to nonstop diarrhea and bloating. No diagnosis of Crohns... -
- trents replied to trachelospermum's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7gluten challenge /tests/ discomfort
Bone demineralization would not be detectable via bloodwork. It would require a DEXA scan. The body keeps calcium levels pretty constant in the blood and will rob it from the bones if necessary because it is such an important mineral for many metabolic processes. -
- trachelospermum replied to trachelospermum's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7gluten challenge /tests/ discomfort
Yes. I am. Ty.
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Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 71, very healthy and I walk!! Has anyone ever heard celiac called that? I never eat gluten. If some slips by me, I know within a few minutes. It’s horrible, as all of you know! Anyway, thank you for letting me be here! Let me know if anyone else has ever heard celiac disease called Anglo Saxon disease! -
Hello:). This a lengthy post. Just looking for some advice. I had the capsule study back in 2019 I tried the gluten challenge but got so horribly distended and could finish it, I had been gluten-free since 2016 except for occasional accidental ingestion. However In 2019 I saw a gastroenterologist due to nonstop diarrhea and bloating. No diagnosis of Crohns or ulcerative colitis. After my biopsy I went to see the doctor and he said I could eat gluten bc my risk wasn’t high. However his nurse practitioner called me later and said I had Celiac?! What the heck??? So I stayed gluten-free. How confusing! These are partial-biopsy results from 2019. *Signifi retained food stomach/SB. Mult ulcers jejunum/ileum-petechiae, damaged villi, lymphangiectasia. I am DQ2.5 homozygous, my mom has Celiac. Apparently being DQ2.5 homozygous puts Celiacs at risk for refractory Celiac and EATL… How scary and this is another reason why I want to be sure of my diagnosis. Fast forward to now ,last year I lost 18 lbs bc I felt so full after small amounts of food and had constant nausea. It comes and goes. Usually I can trace my symptoms to accidental gluten ingestion. Didn’t know Wheatgrass is a no no 😕 I have a new Gastro and he said try another challenge and pill endoscopy. So I did my best but yet again I didn’t complete it. I’m torn if I should go ahead and try the challenge again like my Gastro recommended. This whole thing has been so draining. I lost my dad to suicide a few months ago and my twos cats died within 6 months of each other, my stress levels have sky rocketed. Not feeling well off and on makes it harder to stay positive.
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Bone demineralization would not be detectable via bloodwork. It would require a DEXA scan. The body keeps calcium levels pretty constant in the blood and will rob it from the bones if necessary because it is such an important mineral for many metabolic processes.
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Low B12, low iron stores and low D all scream of celiac disease as opposed to NCGS! You would not have those deficiencies with NCGS because NCGS does not damage the villous lining of the small bowel. Of course, some or all of those deficiencies could be due to other medical conditions but the fact that you can't do gluten sure points to celiac disease. I do understand that you rely on the NSAIDs for pain control but they are also known to be hard on the gut and I wonder if it is the cause of the intermittent bleeding you mention. Concerning bariatric surgery for weight control, I have know a number of people who had that done and none of them were happy with it in the long run. It can create a number of other health/nutrition related problems and when you already are starting out with some significant preexisting medical issues I would be skeptical of it.
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