Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"the Itch I Don't Want To Talk About" Anal Itching


seeking-wholeness

Recommended Posts

Columbo Newbie

Did this happen to anybody before the disease, and if so, with what foods?

Link to comment
Share on other sites
  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Windsurf Newbie

I know this is late to this topic. I have cut all gluten from my diet. But I felt I needed some grains so I started to eat a small amount of gluten free Cheerios. If I eat a very very small amount, like a quarter cup every few days,  I feel better and have no side effects but if I eat more often I will get a couple of hours later an itchy anus. When I stop eating the Cheerios (oats) the itchiness disappears within a day. Only the oats effects my anus. If for some reason I eat a small amount of gluten or a large amount of oats I will get itchy around my mid section , stomach and back. Hope this helps.

Link to comment
Share on other sites
kareng Grand Master
24 minutes ago, Windsurf said:

I know this is late to this topic. I have cut all gluten from my diet. But I felt I needed some grains so I started to eat a small amount of gluten free Cheerios. If I eat a very very small amount, like a quarter cup every few days,  I feel better and have no side effects but if I eat more often I will get a couple of hours later an itchy anus. When I stop eating the Cheerios (oats) the itchiness disappears within a day. Only the oats effects my anus. If for some reason I eat a small amount of gluten or a large amount of oats I will get itchy around my mid section , stomach and back. Hope this helps.

If you eat Cheerios, then you might be getting a small dose of gluten.  It will depend on if you get one of the boxes with a lot of gluten or are lucky and get one that is <20 ppm.

Link to comment
Share on other sites
  • 1 year later...
beemerw Rookie

Hey, I have Hashimoto’s Disease which is very similar being Autoimmune..I saw this because yeah, I experience this, but I found a way to relieve it..Hear me out..I tried hemorrhoid creams, Vaseline, etc, But you know, I started listening to my body when I ate..I eat Gluten Free now, but even Gluten Free processed has corn flour, or soy, things reactive...I started noticing hemorrhoids and constipation are not the same realm, they are not really like other people, but more triggered inflammation response from something you ate..solution..BENEDRYL or ZYRTEC..an allergy med..it brings down the reaction, the hemorrhoid, the body response, then you need to figure out what you ate.  I have 2 brain injuries and this and had to figure it out on my own and tell the doc to test me and I have to figure out diet and what way to go..BUT..it is very similar in response..Maybe aches, pains as well..I hope this helps..Good Luck..

Link to comment
Share on other sites
  • 2 weeks later...
Oneofhowmany Newbie

Beemerw, thanks for the discovery. 

Link to comment
Share on other sites
  • 1 month later...
youranut Newbie
On 8/23/2016 at 8:53 PM, Windsurf said:

I know this is late to this topic. I have cut all gluten from my diet. But I felt I needed some grains so I started to eat a small amount of gluten free Cheerios. If I eat a very very small amount, like a quarter cup every few days,  I feel better and have no side effects but if I eat more often I will get a couple of hours later an itchy anus. When I stop eating the Cheerios (oats) the itchiness disappears within a day. Only the oats effects my anus. If for some reason I eat a small amount of gluten or a large amount of oats I will get itchy around my mid section , stomach and back. Hope this helps.

Windsurf,

Hope you're still on the forum because you symptoms sound exactly like mine. I have not be diagnosed with celiac or gluten intolerance. I googled my issues and all results pointed to diet. I went paleo about a year ago and solved most of my issues. Or to be more accurate and blunt, paleo solved all my issues but causes me occasional constipation. Since I haven't been officially diagnosed with a problem I still cheat about once a month. When I go to family dinners I indulge on grains, gluten, and refined sugar. Within 12 hours my whole midsection is puffy, itchy, and has dry skin that flakes off. I'm guessing you call that eczema.

Anyway, have you had any revelations or have any advice for me?

(Others are welcome to chime in as well)

 

I'll list my original and current symptoms in case someone has advice for me. About 2 years ago I developed what I'll call chronic gas and itch a**. My farts were moist and I discovered that it was mucus that was leaking out. I passed gas about every 15 minutes on average. I reasoned that the itch was from a rash caused by the moisture. I noticed that it varied with what I ate. So I cut soda and candy from my diet. This helped just enough to prevent me from seeing a doctor. After about 6 months of this I started googling and thought I might have candida overgrowth in my digestive tract. Didn't go to a doctor. A few months later I went on the candida diet and it fixed the problem completely, but every time I tried to go back to my old diet the gas came back. The itch also came back but the mucus didn't. So now I realized that the itch was actually inflammation. So after more research I started the paleo diet and it works wonderfully for me except for the constipation. I haven't felt this energetic in 20 years. But every time I eat some grains I can tell it. At first I thought it was gluten but then a batch of homemade gluten free cookies set me off. In fact, if i binge on sugar (candy, chocolate, etc) the itch comes back.

 

So....should I avoid grains and refined sugar at all costs? I really hope not because it is affecting my social life.....

Edited by youranut
Added info
Link to comment
Share on other sites
  • 9 months later...
Margeie Newbie

I get this after gluten exposure as well. Someone here mentioned they have a tear beginning at the anus. My OB said it was called Lichen sclerosis which is often seen in multiple autoimmune issues. 

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jessica Prince Newbie

I totally forgot about this but yes I had this symptom too. To the point I couldn’t sleep sometimes. Now that I follow a strict diet and never cheat it has gone away completely. I believe when I asked my doctor he thought it was hemorrhoids. I do not miss that symptom!

Link to comment
Share on other sites
  • 3 weeks later...
weebl Apprentice

I have been wondering if this is related too. Seems to have reduced significantly for me since going gluten free. Not something I've ever sought treatment for before, or discussed with anyone. Is the correlation to DH specifically, or to Celiac disease in general?

Link to comment
Share on other sites
  • 1 month later...
GIchicago Newbie

Hi, everyone. 

I am new to this forum. I also have grappled with the itch issue and have found that certain toilet paper can cause the itch. 

A celiac friend of mine told me to avoid Charmin. And sure enough the itch went away. Through her research she found that Charmin is not gluten free. 

 

I am am currently testing out several brands. Scott does not cause any problems, although it is a bit abrasive. 

 

I hope this helps. 

Link to comment
Share on other sites
Hawthorn989 Newbie
45 minutes ago, GIchicago said:

Hi, everyone. 

I am new to this forum. I also have grappled with the itch issue and have found that certain toilet paper can cause the itch. 

A celiac friend of mine told me to avoid Charmin. And sure enough the itch went away. Through her research she found that Charmin is not gluten free. 

 

I am am currently testing out several brands. Scott does not cause any problems, although it is a bit abrasive. 

 

I hope this helps. 

FYI...toilet paper doesn't contain gluten.  Here is a page from Charmin that shows they don't use gluten either.  It may be something else in the toilet paper but not gluten that bothers you.  I found that wiping with a cotton pad with witch hazel after a bowel movement eliminates itching.  

https://www.charmin.com/en-us/about-charmin/faq/what-ingredients-are-in-charmin

 

Link to comment
Share on other sites
  • 11 months later...
Sleepless in Indiana Newbie

Its 5am and another night of no sleep due to discomfort from my itchy bottom. I have followed my gluten-free diet faithfully for 4 months now and I still suffer from this. I'm starting to wonder if the itching is a result from celiac or something else. Doctor visits have determined that I do not have pinworms, and I do have a small hemroid but nothing large enough to cause concern. Every since i have been back on my diet, I have had very loose, almost diarrhea like stools. At this point, it's a guessing game for me and I'm almost at a loss as it also seems like my doctor has no answers as well. Very discouraging.

Link to comment
Share on other sites
  • 1 month later...
Dave.I Newbie

I too suffered terribly from an  itchy anus. Neosporin +pain relief was my go to relief. Really worked well for me. What was even better was getting rid of it when I cut way back on gluten. Took ten years to figure that out. Doctor had no clue. Cutting back also got rid of DH on feet and forearms. I used to take loretedine to help with itching. But found out it was raising my blood pressure. So nice to be rid of these pesky itchy issues.

Good Luck

Link to comment
Share on other sites
  • 1 year later...
Mousey Newbie
On 7/2/2004 at 4:38 PM, Connie R-E said:

Alright, when I eat a food I'm allergic to (soy, specifically) I get the "itchy butt".

I have to be completely soy free to notice it.

 

Anybody else notice it happening with a certain food? I think it is a food allergy symptom.

 

Connie

I also experience this when I inadvertently eat something I’m allergic to ( like Gluten) Over the years, trial and error I’ve kind of worked out that it’s like an intestinal yeast infection/reaction. So I treat it with Canex cream ( vaginal yeast infections) for a few days and it clears up

Link to comment
Share on other sites
trents Grand Master

Itchy anus can be caused by many things. I have this sometimes but it's always associated with a little leakage of stool. One thing that can contribute to this is caffeine. Caffeine is thought to relax the sphincters in our digestive system and can cause both GERD and itchy butt. After I cut out coffee it got a lot better. Coffee and tea are also very acidic. I would wonder also about Candida. 

Edited by trents
Link to comment
Share on other sites
plumbago Experienced

Not to get too gross, but there are enzymes in stool that are irritating and perhaps causing itching. A good remedy is a bidet or bidet-type hose. That will do the trick for sure.

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,740
    • Most Online (within 30 mins)
      7,748

    deborahB
    Newest Member
    deborahB
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Patty harrigan
      That’s exactly what happens to me. I have been unconscious twice, vomiting afterwards for up to 9 hours and then the bone breaking chills start. I have never vomited while unconscious, thank god.  It’s an unusual presentation and my doctors were reluctant to think it was due to gluten ingestion. However, I know it was gluten as both times it happened within 2-2.5 hrs of eating. I no longer eat food that I haven’t prepared myself and it’s been 6 yrs since it happened.  I was behind the wheel once and was lucky to get off the road before I went out. I feel, and all my doctors reluctantly agree, that it’s a vasovagal reaction. If I can lay down it seems I don’t pass out but I still vomit and get the chills. It’s terrifying to say the least. I could have killed myself or others. I’m as strict as I can be for that reason. 
    • trents
      I assume you were on antibiotics for the E-coli infection? C-diff almost always is the result of prolonged and/or repeated antibiotic treatment. And there is a growing consensus that celiac disease is connected with gut dysbiosis which in turn is likely connected with first world overuse of antibiotics, preservatives and carbohydrate intensive/low nutrient diets. We are wrecking our gut microbiomes and those with genetic potential for celiac disease are reaping the fruit of it.  Can you repost post those antibody test scores but this time include the ranges for positive vs. negative. Each lab uses their own scale for these. There is no industry standard yet. Recently revised "gluten challenge" guidelines recommend the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the antibody testing blood draw. To be sure, I would extend that to four weeks. Sadly, many practitioners neglect to (or don't know to) inform their patients of this before testing and so much testing done results in unclear outcomes. In your original post you mentioned lab analysis done from a colonoscopy. Colonoscopies cannot be used to diagnose celiac disease because they cannot get into the small bowel from the bottom end. Celiac disease causes damage to the lining of the small bowel which is accessed by an endoscopy. They take biopsies and send them to a lab for microscopic analysis.
    • Scott Adams
      A simple blood test should be done, and is usually the first step in diagnosing celiac disease. To do this you need to be eating lots of gluten daily for 6-8 weeks before doing the test. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Sking
      Trents,  Thank you for the informative information. It's interesting that you suggested an infection or something 'triggers' celiac disease. I have been wondering if this happened because I was hospitalized with E-Coli last December and then hospitalized in June with C-Diff. So, they did do the Antibody Testing but never told me anything about needing to prep by eating a good amount of gluten for several weeks prior. My doctor thinks we would have to re-test as she isn't sure the results were entirely accurate. I did not 'abstain' from gluten but I didn't know I was supposed to purposely eat a certaim amount of gluten for 6 weeks prior. They failed to tell me this before I got the blood test. Here are the results of my antibody testing from September: Deamidated Gliadin Abs, IgG: 27 t-Transglutaminase (tTG) IgA: 3 Endomysial Antibody IgA: Negative Immunoglobulin A, Qn, Serum: 111   Thanks for any input, I appreciate this site.
    • Sking
      Hi Scott, I really appreciate you already welcoming me and answering my questions. I (very strangely) came down with C-Diff in June of this past year. It did a number on my body. It took several months for me to get back to normal. Because of this, they followed up with a Colonoscopy and during the colonoscopy, they took a biopsy. The results of that colon biopsy were: colonic mucosa with patchy prominence of intraepithelial lymphocytes noted When those results came back, my doctor suggested doing this gene test to start with. The only symptom I am having is lighter color stools that often float. I wondered though if that is attributed to chia seeds, fiber supplements, and other things in my diet. Other than that, I do not have any symptoms of celiac. I do realize that I could have it without symptoms. I am wondering what my doctor will suggest is the next step towards trying to see if I have it. Thank you for your time.
×
×
  • Create New...