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I'm Always Tired.

newo ikkin

By newo ikkin
in Related Issues & Disorders

Recommended Posts

jen3899 Apprentice
jen3899
Posted

Thanks! That makes a lot more sense!

-Jennifer

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  • Replies 69
  • Created
  • Last Reply
Mr J Rookie
Mr J
Posted

i'm another one who is always tired although the worst of the feeling of chronic fatigue has now been replaced by just feeling really sleepy and lazy. The sequence of events is that before realising the gluten connection to my problems i was always feeling stressed and rushed and in fact tests done when i lived in Australia had shown that i had elevated cortisol stress hormone levels, but not quite enough to qualify for Addisions. then after going gluten free there was a big positive in that my stomach smooth muscles started to churn food for the first time in years but a really heavy fatigue set in which lasted weeks. Used to just sit in front of tv feeling wasted, frequently with a headache. Then that heavily fatigued feeling turned into just feeling sleepy and lethargic - its still with me today, but i've always forced myself to maintain some physical activity. I'm really hoping to get out on my stomach motility encouraging device tonite (skateboard) - been raining the last few days, but i know i will have to force myself once the post evening meal sleepyness sets in. Once i get outside i know that in a few minutes some life will kick in to my body and there will be a definate mental health benefit too. Some ppl who know me have remarked that i am incredibly disciplined, i suppose i am when it comes to maintaining my daily activities but i do have a number of personality limitations which probably are reactions to my selfish discipline so i would not describe myself as a well balanced individual!

cheers,

Mr J

Mr J Rookie
Mr J
Posted

a friend sent me these 2 links. a combo of thyroid and adrenal insufficiency is causing her fatigue. The first link contains a page on adrenal insufficiency too. I don't have thyroid probs and if i had to bet i would say i don't have adrenal insufficiency either - its all too easy to look at a list of vague symptoms and convince myself thats the problem, nevertheless i 'm feeling a lot of low grade versions of the symptoms of adrenal insufficiency. The info says that some modereate excercise is ok :-) however i'm not ready to give up my ration of 1 cup of coffee a dayjust yet though.

cheers,

Mr J

symptoms of hypothyroidism not acknowledged by the medical community

http://www.stopthethyroidmadness.com/long_and_pathetic.html

also this site is about adrenals: http://www.vitaminmd.com/isocort.htm

  • 5 years later...
FernW Rookie
FernW
Posted

I am always tired too any the doctors have no clue why.

FernW Rookie
FernW
Posted

I wish there was a pill that can help us all no matter what the issue is.

  • 5 weeks later...
robertarosecollins Newbie
robertarosecollins
Posted

I was recently diagnosed with Celiac. I am from Trinidad and Tobago (Caribbean) and its not a very common disease here. I am tired all of the time. By 2pm I am ready to find a bed..anywhere!

I am awaiting blood test results for thyroid functions, iron, calcium and a lot of other things that I cannot remember right now. I have also signed up with a nutritionist.

After reading some of the comments, I think that I will start slowly to do some physical activity...maybe I will start by walking. I hope that helps.

rosetapper23 Explorer
rosetapper23
Posted

I would also recommend thyroid testing--when I read your post, that was the first thing to come to mind. Hashimoto's Thyroiditis is very common in people with celiac....and one of its principal features is fatigue and sleepiness.

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maximoo Enthusiast
maximoo
Posted

this thread is 6 yrs old.

NoodleUnit Apprentice
NoodleUnit
Posted

this thread is 6 yrs old.

...and still very relevant to me at least :). I'm experiencing serious fatigue about 2 months in to my gluten-free diet. This is my first week back at work after 7 weeks off and it's doing me in. I'm up at 6 - okay until about 2pm, then I seem to hit the wall and am completely incapable of functioning from then on. Good to know it's common enough to warrant 3 pages. This place is a mine of information for frightened rabbits like me \o.

Jungle Rookie
Jungle
Posted

Over 10 000 people viewed this. Wow, that is a lot of tired people!

I am so tired too. Will I ever have energy?

jackay Enthusiast
jackay
Posted

I don't even know what it feels like anymore to not be tired.

:(

RL2011 Rookie
RL2011
Posted

Over 10 000 people viewed this. Wow, that is a lot of tired people!

I am so tired too. Will I ever have energy?

Everyone is tired from viewing this thread so much...

I got real tired after eating gluten for a few months and killing my intestines. It has been 3 weeks now since not eating any gluten and for the first time in over 2 months I felt like I have more energy. I am heading out on a 2 day 1,000 mile motorcycle ride tomorrow and hope I have the energy level I started today with.

I have a warped plan... If I continue to be tired after eating and sleeping right I will just push myself until I have a real reason to be tired.

Marilyn R Community Regular
Marilyn R
Posted

Noodle, jungle, jac & RL...

Are you eating plenty of protein? And I mean intermentently throughout the day. It seems to help. I'm worthless if I don't get my protein every few hours.

jackay Enthusiast
jackay
Posted

Noodle, jungle, jac & RL...

Are you eating plenty of protein? And I mean intermentently throughout the day. It seems to help. I'm worthless if I don't get my protein every few hours.

It doesn't seem to make any difference how often I eat protein or how much of it I eat.

Part of my fatigue comes from the fact that I do suffer from insomnia. About one out of every three nights nights I don't sleep at all. However, when I do get a night with eight hours of sleep, I am often just as tired the next day.

love2travel Mentor
love2travel
Posted

It doesn't seem to make any difference how often I eat protein or how much of it I eat.

Part of my fatigue comes from the fact that I do suffer from insomnia. About one out of every three nights nights I don't sleep at all. However, when I do get a night with eight hours of sleep, I am often just as tired the next day.

Insomnia is truly a horrid thing. Like you, I am lucky if I have one good sleep per week. However, for some reason (perhaps the B12 sublingual and/or B complex and/or Vitamin D3) when I do sleep well (rare) I feel like I could conquer the world. I am full of energy. But with chronic pain it is so difficult to get in a comfortable position and fall asleep. Pain wakes me up often. Feeling so exhausted and draggy is not a way to start the day so I really empathize with you. I was recently diagnosed with Fibromyagia which has many crazy symptoms include MAJOR chronic fatique. Could that be a possibility?

So, I commiserate with you. Hopefully we will be able to rest well tomorrow and feel refreshed.

NoodleUnit Apprentice
NoodleUnit
Posted

Noodle, jungle, jac & RL...

Are you eating plenty of protein? And I mean intermentently throughout the day. It seems to help. I'm worthless if I don't get my protein every few hours.

It's actually improved for me over this week. I was pretty destroyed at the beginning of the week but by last night I was able to stay up most of the night. I've been having the usual newbie problems as I find more ingredients that dont agree with me, and that plus a return to work ( I get up at 6am to go to work ) did for me I believe. That said, I had a massive problem with dairy yesterday ( I keep on giving in and having things with a little dairy in the ingredients even though I know I shouldn't ) and that wiped me out for a chunk of the early evening.

I don't work on Fridays, so I've caught up on my sleep pretty much, so I feel almost human again. Hopefully I can recover and refresh fully over the weekend, something that never happened before I went gluten-free.

  • 11 months later...
razzle51 Apprentice
razzle51
Posted

wow me too tried alot . Is it the diet ? Is there anything that can help.

GF Lover Rising Star
GF Lover
Posted

wow me too tried alot . Is it the diet ? Is there anything that can help.

Razzle, just so you know, this thread is a year old. Be well

  • 2 months later...
nomoregluten Newbie
nomoregluten
Posted

daily short excercise is improving my overall health. if you can manage it i would recommend it. daily short dosages are better and easier to maintain then more irregular and or longer excercising. i workout sometimes but do a lot of running because it's so extremely convenient. i get out the door and i'm going. run a couple of laps around the block and crash at home.

  • 8 months later...
LadyK Rookie
LadyK
Posted

Yeah. I sleep until around 8:30 in the morning, then usually take a nap in the afternoon. I feel drained and tired pretty often.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Just to note this is an old thread, and the original posters may not be about.

You are welcome to start a new one :)

  • 4 weeks later...
Geoff Griffith Newbie
Geoff Griffith
Posted

Ever since I started my gluten-free diet in about May 05 I've been extremely tired all the time.

At night I get about 7-8 hours of sleep, wake up at 6 and go to school for about 7 hours. Then as soon as I get home from school I'm too tired to stay awake and take 4-5 hour nap, then wake up to eat dinner, do homework, take a shower, then I get extremely tired again and go to bed.

I have noticed that when I wake up I don't feel well rested unless I get 14-16 hours of sleep at a time.

I started taking vitaims for some more enegry and eating a bigger, healthier breakfast but it doesn't really seem to help.

I hate this because if I don't take a nap during the day and I go out I feel dead and if I sleep I miss out on the whole day.

Is this a side affect of celiac disease or a gluten-free diet? Does anyone else feel like this?

I used to feel the same way. Spent years just dragging. I changed out my household products to all natural to eliminate toxins and started taking really good vitamin supplements. Especially extra Vitamin D.  I have no issues now. I feel like I gained back 10 years of my life! I got to bed about 11pm and wake up at 5:30 with no alarm!! I am more than willing to talk with anyone who wants to know more about how I turned it around.

kareng Grand Master
kareng
Posted

I used to feel the same way. Spent years just dragging. I changed out my household products to all natural to eliminate toxins and started taking really good vitamin supplements. Especially extra Vitamin D.  I have no issues now. I feel like I gained back 10 years of my life! I got to bed about 11pm and wake up at 5:30 with no alarm!! I am more than willing to talk with anyone who wants to know more about how I turned it around.

 

 

You know you are responding to someone who hasn't been on since 2005?

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

They might be lurking  :)

kareng Grand Master
kareng
Posted

They might be lurking  :)

If they are, they are not signing in using the account they were posting with.

Archived

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    • Jason Hi
      Need Advice on Doctors

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      Well, the next step would logically be to commit in a serious way to the gluten-free diet and see if you have significant improvement in your symptoms. You should see improvement very soon with regard to GI issues and within weeks if there are other symptoms if gluten is indeed the issue. If there is significant improvement after going gluten free, that would tell you that you must avoid gluten and given the test results you already have, the logical conclusion is NCGS. As I said, an NCGS diagnosis is arrived at by first ruling out celiac disease, which seems to have been done. Then you could go back to that doctor with the other evidence component (improvement of symptoms with gluten-free eating) and ask if he/she would now be willing to declare an official dx of NCGS and give you a note. Or, you could book an appointment with another doctor who could look at your test results online, together with symptom improvement after going gluten-free, who might be more cooperative. I would seek out a younger practitioner as they are more likely to not be operating on outdated info about gluten disorders. By the way, NCGS is about 10x more common than celiac disease. 
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    • trents
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      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
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