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Gluten Free Cruise


iceman721

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iceman721 Newbie

I took my first cruise in December since being diagnosed with Celiac Disease. This was my 10th cruise, the 3rd with Holland America and the 1st on the Noordam.  I was very apprehensive about cruising with this rigid diet. I was advised to select fixed dining thereby having the same servers each day. This proved to be excellent advise. I met my dining steward Josie that first night and he assured me that being on a gluten-free diet was not going to be a problem. He explained that he will show me each night the following night's menu and that I could select ANYTHING on the menu and they would prepare it for me gluten-free. That is exactly what happened.  I could not believe it! 

 

Midway through the cruise Josie asked me what my favorite desert was and I answered black berry cobbler which I have not had since going on the diet. The next night he presented me with a delicious gluten-free cobbler. Now, that had to be made from scratch just for me! I have no knowledge if other cruise lines offer this kind of service but I wanted to make this known to all gluten-free cruisers.    


 


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GF-Cheetah Cub Contributor

That's good to hear!!

 

We will be going on our 1st cruise with our daughter's celiac diagnosis in April.   I have a question: when you disembark for land for the day, do you ask the cruise ship to pack a gluten-free lunch with you?  Or how do you handle outings on land?

cyclinglady Grand Master

I cruised RC this past summer (Baltic Sea). Hubby and I took our own food, supplemented with fruit from the cruise ship on port days. Even with the gluten-free language cards, we were not able to dine at restaurants. Just our luck maybe. We ate when we got back to the ship. Our headwaiter made sure we had gluten-free foods to eat at the coffee shop when the main dining room was closed. He did not recommend ordering room service.

iceman721 Newbie

I suppose I could have had a gluten-free lunch put together for shore excursions but never thought of it.  I was always back on ship before I was starving!   

I'm guessing that if you sign up for an excursion that include lunch,  it will NOT be gluten-free.  These lunches  are usually sub-contractedby the cruise line  to locals.

GF-Cheetah Cub Contributor

We will be on a Norwegian cruise to the Carribean Islands.   They already emailed me that they will accomodate our gluten-free diet, but said that we are not allow to bring our own food onboard.   I am worried about not finding food for my 11 year-old on the various islands.   So, I don't know if the cruise will provide a gluten-free brown bag lunch for us?  

cyclinglady Grand Master

I brought Lara bars in my luggage and other food that we picked up in the UK before our departure. No one bothered us. I would not take on produce -- just packaged items in your checked luggage.

Eat a big breakfast on port days (no room service and note their scrambled eggs have gluten in them, so ask for fresh scrambled). Check out local port grocery stores for fresh fruit, etc. Meet with your headwaiter as soon as you board ship (or some headwaiter). On RC they only have the buffet open during departures. The headwaiter found safe food for us there on that first day. Otherwise, we never ate anywhere but the main dining room. Plus, they sent Udi's rolls and cookies individually wrapped to our stateroom. We took those in our backpacks on port days. We washed whole fruit from the buffet line in our stateroom for snacks and stored them in our room frig.

I even asked for soy milk at the Starbuck's counter when I got my free mug of coffee. No extra charge for that! Udi's pizza at the coffee shop. Had to wait, but it was worth it!

I am pretty sure you will not get a brown bag. I am sure it is against regulations. But they only check purses and backpacks when you reboard. Some yahoos are always trying to smuggle on shells, booze and fruit.

The Carribean cruise is super fun for the kids. Check out the kid's clubs.

iceman721 Newbie

Try going to the buffet before leaving the ship.  They should have gluten-free bread and buns for sandwiches that you can take with you.

If you port in Grand Caymans, Cozumel or other large ports you might be surprised at the gluten-free finds.

Best advise is to make good friends with your head steward in the dining room.  He can make things happen.

Don't Worry - Be Happy  


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    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
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