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Hello New Here

SillyYakMom

By SillyYakMom
in Coping with Celiac Disease

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SillyYakMom Rookie
SillyYakMom
Posted

Hello, I will introduce myself. My name is Jessica and I am married with a 20 month old daughter Emily. I have been diagnosed with celiac since I was 11. There are 10 kids in my family, all who have celiac disease. My mom's dad died of Chrone's disease when he was 33 and my mom was 6. We have all had to deal with it and learn how to cook gluten-free so that we could when we were older. The youngest child has it worse than all of us. She can't have eggs, nuts or even a spec of gluten or she is covered in DH. We waited until Emily was a year old to give her any gluten. She has not shown any symptoms until recently. She gets hives on her face right after eating something high in gluten. It doesn't last long, but concerns me. We are thinking we should get her tested just in case.

The University of Maryland has mine and all my families blood for celiac testing and sends us all sorts of interesting stuff on it. Anyway, I look forward to getting to know all of you and supporting each other with dealing with celiac disease.

SillyYakMom

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KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board :)

I am sure you will find the people here to be supportive and knowledgable. Feel free to contact me if you ever need anything.

Do you see Dr. Fassano at the University of MD? I live in MD...from your post I assume you do but I am not sure because so many people travel just to go there.

SillyYakMom Rookie
SillyYakMom
Posted
  • Author
Welcome to the board :)

I am sure you will find the people here to be supportive and knowledgable. Feel free to contact me if you ever need anything.

Do you see Dr. Fassano at the University of MD? I live in MD...from your post I assume you do but I am not sure because so many people travel just to go there.

<{POST_SNAPBACK}>

Actually I don't live in MD I live in UT, but they came to our house and took all of our blood and sent it there. Since this was many years ago and a newly known about disease they were willing to bend backwards for us, even swallow any cost.

Rusla Enthusiast
Rusla
Posted
Hello, I will introduce myself. My name is Jessica and I am married with a 20 month old daughter Emily. I have been diagnosed with celiac since I was 11. There are 10 kids in my family, all who have celiac disease. My mom's dad died of Chrone's disease when he was 33 and my mom was 6. We have all had to deal with it and learn how to cook gluten-free so that we could when we were older. The youngest child has it worse than all of us. She can't have eggs, nuts or even a spec of gluten or she is covered in DH. We waited until Emily was a year old to give her any gluten. She has not shown any symptoms until recently. She gets hives on her face right after eating something high in gluten. It doesn't last long, but concerns me. We are thinking we should get her tested just in case.

The University of Maryland has mine and all my families blood for celiac testing and sends us all sorts of interesting stuff on it. Anyway, I look forward to getting to know all of you and supporting each other with dealing with celiac disease.

SillyYakMom

<{POST_SNAPBACK}>

Welcome to the board, I have found it being helpful here. I hope you enjoy being here.

kevsmom Contributor
kevsmom
Posted

Welcome to the board, Jessica -

I hope that you will find everyone as helpful and supportive as I have.

Having dealt with this yourself for so many years, you probably have a lot that you can share with us.

It's amazing how far medical research has come. My father was diagnosed with Ulcerative Colitis 30 years ago, and became so sick he had to have an iliostomy. My brother and I were both diagnosed with Celiac Disease as adults. It really makes you think what the results would have been if my my father had been tested.

I have only been diagnosed for 6 months, and have learned so much from this board. I feel like everyone here are my friends, and they understand. :)

jenvan Collaborator
jenvan
Posted

hey there! welcome! this is a great place you've joined...

jerseyangel Proficient
jerseyangel
Posted

Hi and welcome! You will find that this is a caring and supportive place to come with questions or just to be around others who know what you're going through. I know it was a Godsend for me when I stumbled on it right after my diagnosis.

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    • trents
      New Guy Here...

      By trents · Posted

      So, I would assume it means that if the risk of developing celiac disease in the general population is 1%, people with the DQ2 gene have a 10% risk of developing celiac disease. So, have you or your physician concluded that you have celiac disease?
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