Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folic Acid Level Low


w8in4dave

Recommended Posts

w8in4dave Community Regular

I went to the Dr. Because I have just had absolutely no energy so he did a bunch of blood work and one part was Folic acid. Came back my Folic Acid is low. I have read this can be common with Celiac. Does anyone eles have this problem? I eat green leafy vegetables all the time and beans, not sure why this is happening. I guess I go get me a supplement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I supplement folic acid twice a day every day. It always came back low before that.  My vitamin D is always low too and I supplement the heck out of that to no seeming avail. The folic acid is working out well though.

w8in4dave Community Regular

My Vitamin D levels are ok I guess. The nurse is sending me my results in the mail should be here in a few days. Then I will see for my self.

mamaw Community Regular

I have had low folic acid for years , long before my twelve years of being celiac....

w8in4dave Community Regular

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

MycasMommy Enthusiast

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

 

 

Thats great!!  I take 3 times the recommended dose because I do not absorb things well.  Nothing happens if you take more, you pee out the excess, as far as I know.  It is also a safety thing if you plan on children to protect them from spinal issues during gestation. I am so glad to hear youre feeling better! :D

w8in4dave Community Regular

Yea I have 3 grown children out of the house and 7 Grand babies, Ain't no more child bearing for me! Lol But it did explain I could only find low level on the shelf. I got my blood tests back Woot! the test read this ... Result 4.5 ng/mL, Flag L, Reference >5.8.......Doesn't seem low enuf to make a difference to me,but it must of been.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
TashaLouise Apprentice

HI!!

I had the same thing a few weeks back. I had some blood tests for something else but the Folic Acid levels came back as lower than they should be. I always eat food that is high in Folic acid (I practically OD on avocados!) but the levels were low for whatever reason. The doc didnt read anything into it, instead just gave me a months supply of supps and it was all back to normal. I had been feeling uite lower energy wise than normal. I am a lot better now though. It is related to Coeliac disease although I cannot remember why 

 

:)

w8in4dave Community Regular

TashaLouise it was low because being Celiac you have a hard time absorbing vitamins and minerals. I think I have been missing my Folic Acid for a while. I am out of the ones the doc gave me. Anyone have a good source??

  • 5 weeks later...
darlingnea13 Rookie

I had my Gene's? tested through my psychologist and it came back that I as well have a folic acid deficiency. I wondered if It had anything to do with my Celiac but she didn't know.

LauraTX Rising Star

Folic acid levels are something that change with time, and are not detected by a genetic test.  (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level.  A psychologist is not a medical doctor and definitely not a Celiac specialist so I am glad they gave you the "I don't know" answer instead of making something up when you asked if it was related to your Celiac disease.  A low folic acid level, as well as low levels of other vitamins, can be related to malabsorption from Celiac disease.  I recommend you make an appointment with a GI doctor to regularly get follow up testing to ensure you don't have any long-undetected deficiencies, and have that medical doctor who can advise you on safe supplementation.  Most gluten-free foods are not fortified, so the University of Chicago Celiac Center Open Original Shared Link.  

  • 6 months later...
w8in4dave Community Regular

My Dr. Put me on a Prenatal vitamin. 1 mil. of folic acid a day. I can tell if I don't take one for a couple of days.  He said hed put me on the prenatal so I get more than just the Folic Acid. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,792
    • Most Online (within 30 mins)
      7,748

    smendelson
    Newest Member
    smendelson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jordan23
      Ok so know one knows about cross reactions from yeast,corn, potatoes, eggs, quinoa ,chocolate, milk, soy, and a few more I forgot.  There all gluten free but share a similar structure to gluten proteins. I use to be able to eat potatoes but now all of a sudden I was stumped and couldn't figure it out when I got shortness of breath like I was suffocating.  Then figured it out it was the potatoes.  They don't really taste good anyways. Get the white yams and cherry red 🍠 yams as a sub they taste way better. It's a cross reaction! Google foods that cross react with celiacs.  Not all of them you will cross react too. My reactions now unfortunately manifest in my chest and closes everything up . Life sucks then we die. Stay hopeful and look and see different companies that work for you . Lentils from kroger work for me raw in the bag and says nothing about gluten free but it works for me just rinse wellllll.....don't get discouraged and stay hopeful and don't pee off god
    • K6315
      Hi Lily Ivy. Thanks for responding. Did you have withdrawal? If so, what was it like and for how long?
    • trents
      Welcome to the forum, @Doris Barnes! You do realize don't you that the "gluten free" label does not mean the same thing as "free of gluten"? According to FDA regulations, using the "gluten free" label simply means the product does not contain gluten in excess of 20 ppm. "Certified Gluten Free" is labeling deployed by an independent testing group known as GFCO which means the product does not contain gluten in excess of 10 ppm. Either concentration of gluten can still cause a reaction in folks who fall into the more sensitive spectrum of the celiac community. 20 ppm is safe for most celiacs. Without knowing how sensitive you are to small amounts of gluten, I cannot speak to whether or not the Hu Kitechen chocolates are safe for you. But it sounds like they have taken sufficient precautions at their factory to ensure that this product will be safe for the large majority of celiacs.
    • Doris Barnes
      Buying choclate, I recently boght a bar from Hu Kitchen (on your list of recommended candy. It says it is free of gluten. However on the same package in small print it says "please be aware that the product is produced using equipment that also processes nuts, soy, milk and wheat. Allergen cleans are made prior to production". So my question is can I trust that there is no cross contamination.  If the allergy clean is not done carefully it could cause gluten exposure. Does anyone know of a choclate brand that is made at a facility that does not also use wheat, a gluten free facility. Thank you.
    • trents
      @Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten.
×
×
  • Create New...