Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Folic Acid Level Low


w8in4dave

Recommended Posts

w8in4dave Community Regular

I went to the Dr. Because I have just had absolutely no energy so he did a bunch of blood work and one part was Folic acid. Came back my Folic Acid is low. I have read this can be common with Celiac. Does anyone eles have this problem? I eat green leafy vegetables all the time and beans, not sure why this is happening. I guess I go get me a supplement.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I supplement folic acid twice a day every day. It always came back low before that.  My vitamin D is always low too and I supplement the heck out of that to no seeming avail. The folic acid is working out well though.

w8in4dave Community Regular

My Vitamin D levels are ok I guess. The nurse is sending me my results in the mail should be here in a few days. Then I will see for my self.

mamaw Community Regular

I have had low folic acid for years , long before my twelve years of being celiac....

w8in4dave Community Regular

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

MycasMommy Enthusiast

Well I am still waiting for my results! That was last Friday she said she was sending them out, nothing yet! The pharmacy didn't have any, But a friend of mine had some ,she gave me till the pharmacy comes thru. Amazing that they helped within 2 days! Just amazing! I cannot wait to get up and take my pill! Because after I take it I feel normal. I was hoping the blood work would come up with something so I would have an answer and sure enuf! It did! Lets just hope It stays that way!

 

 

Thats great!!  I take 3 times the recommended dose because I do not absorb things well.  Nothing happens if you take more, you pee out the excess, as far as I know.  It is also a safety thing if you plan on children to protect them from spinal issues during gestation. I am so glad to hear youre feeling better! :D

w8in4dave Community Regular

Yea I have 3 grown children out of the house and 7 Grand babies, Ain't no more child bearing for me! Lol But it did explain I could only find low level on the shelf. I got my blood tests back Woot! the test read this ... Result 4.5 ng/mL, Flag L, Reference >5.8.......Doesn't seem low enuf to make a difference to me,but it must of been.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
TashaLouise Apprentice

HI!!

I had the same thing a few weeks back. I had some blood tests for something else but the Folic Acid levels came back as lower than they should be. I always eat food that is high in Folic acid (I practically OD on avocados!) but the levels were low for whatever reason. The doc didnt read anything into it, instead just gave me a months supply of supps and it was all back to normal. I had been feeling uite lower energy wise than normal. I am a lot better now though. It is related to Coeliac disease although I cannot remember why 

 

:)

w8in4dave Community Regular

TashaLouise it was low because being Celiac you have a hard time absorbing vitamins and minerals. I think I have been missing my Folic Acid for a while. I am out of the ones the doc gave me. Anyone have a good source??

  • 5 weeks later...
darlingnea13 Rookie

I had my Gene's? tested through my psychologist and it came back that I as well have a folic acid deficiency. I wondered if It had anything to do with my Celiac but she didn't know.

LauraTX Rising Star

Folic acid levels are something that change with time, and are not detected by a genetic test.  (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level.  A psychologist is not a medical doctor and definitely not a Celiac specialist so I am glad they gave you the "I don't know" answer instead of making something up when you asked if it was related to your Celiac disease.  A low folic acid level, as well as low levels of other vitamins, can be related to malabsorption from Celiac disease.  I recommend you make an appointment with a GI doctor to regularly get follow up testing to ensure you don't have any long-undetected deficiencies, and have that medical doctor who can advise you on safe supplementation.  Most gluten-free foods are not fortified, so the University of Chicago Celiac Center Open Original Shared Link.  

  • 6 months later...
w8in4dave Community Regular

My Dr. Put me on a Prenatal vitamin. 1 mil. of folic acid a day. I can tell if I don't take one for a couple of days.  He said hed put me on the prenatal so I get more than just the Folic Acid. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,389
    • Most Online (within 30 mins)
      7,748

    Shavon
    Newest Member
    Shavon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...