Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do The Challenge Symptoms Ever Ease Up? Just Need Support :(

littleburgy

Recommended Posts

littleburgy Rookie
littleburgy
Posted

So I'm now on day 3 of my challenge and if I ever doubted I had a problem with gluten, I am not now.

 

I was only off the gluten for about 2 weeks and I'm a little surprised at how uncomfortable and crummy I feel. As I understand it, the longer you are off the gluten, the worse it is to go back on. 

 

I am having a hard time with this today. Do the symptoms ease up at all? Is this just body shock from getting the gluten back?  :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

:( unfortunately the symptoms don't ease up in most celiacs, we just get used to them. Feeling poorly becomes the new normal.

Hang in there ad don't over do it. One or two slices of bread, or the equivalent, is all you need. Try eating in the evening so your days aren't as bad.

Good luck!

ravenwoodglass Mentor
ravenwoodglass
Posted

Sorry you are having to go through this. If your symptoms get extremely bad do contact your doctor as they may cut the challenge short (especially if you had positive blood work) or the doctor may be able to give you some meds to get the symptoms bearable enough to do the full challenge. 

 

I was also only off gluten for about 2 weeks when I did my first challenge. My symptoms were severe enough that the doctor stopped the challenge, told me never to touch gluten again and referred me back to my GI doctor. The second challenge demanded by my GI caused an even more severe reaction than the first one did. That one had to be cut short also so I don't know if things would have leveled out if the challenge had been continued. 

littleburgy Rookie
littleburgy
Posted
  • Author

Is there a possibility I could cut this challenge shorter? I had been off gluten about 2 weeks. Prior to this I was eating it all the time. For example maybe just get the levels back up for a couple of weeks and then get a test?

nvsmom Community Regular
nvsmom
Posted

Some seem to think a challenge can be shortened if one eats more gluten (up to 4 slices of bread per day for 2 weeks for the biopsy or 6 weeks for the blood test) 

ravenwoodglass Mentor
ravenwoodglass
Posted

Is there a possibility I could cut this challenge shorter? I had been off gluten about 2 weeks. Prior to this I was eating it all the time. For example maybe just get the levels back up for a couple of weeks and then get a test?

If you were only off gluten for two weeks you should talk to your GI, or ask to speak to a nurse on the phone who will relay the info to the doctor, and ask this question of them.

I don't think you would be fully healed in just two weeks so the doctor may shorten the challenge...if they can fit you in for an endo quickly. Stress the severity of your symptoms and ask to be put on a cancelation list if you are able to get to the endo with little notice if your sceduled biopsy is a few weeks away. 

littleburgy Rookie
littleburgy
Posted
  • Author

I'm doing better today. It may be just getting used to the way I was before. I felt so wonderful the 2 weeks I was off gluten it was like: WOW! And suddenly.... UGH! NO!!!

 

Unfortunately I'm on the NHS in England and the GP may still want the blood test first before requesting any other testing. It wouldn't hurt me to ask, but they're a bit bureaucratic and step by step about diagnosis and spending money on it.

 

A lot of my symptoms are eczema related and last night I was flaring up very badly and was so uncomfortable. And I also was so bloated I looked like I was pregnant, and my face was bloating as well. My husband used the term "horror movie" to describe how fast I changed once I went on the gluten and I got kind of mad. :ph34r: He didn't mean to upset me but I guess it reminded him of people that change from normal to abnormal quickly. Ha ha. He suggested I contact the doctor if I still have trouble coping. Some abdominal TMI issues as well but I'm coping.

 

Mostly right now (after having boundless energy before) I just want to sleep. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

You could ask your doctor to suggest something to soothe your GI system.  Over here in the states I'd say try some Pepto Bismol but I don't know if they have Pepto or something like it in your neck of the woods.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,688
    • Most Online (within 30 mins)
      7,748
    Princess.dfc
    Newest Member
    Princess.dfc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Not sure if this is Celiac or just a gluten-free intolerance

      By knitty kitty · Posted

      Yes, some people with Celiac do react to quinoa.  I know i do.  Apparently, two different "breeds" of quinoa can stimulate the immune system. Read here... Variable activation of immune response by quinoa (Chenopodium quinoa Willd.) prolamins in celiac disease https://pubmed.ncbi.nlm.nih.gov/22760575/#:~:text=Cultivars Ayacuchana and Pasankalla stimulated,for patients with celiac disease. And some of us react to corn (maize) as well. Maize prolamins could induce a gluten-like cellular immune response in some celiac disease patients https://pubmed.ncbi.nlm.nih.gov/24152750/   P.S. @Brook G have you thought about getting a genetic test done for known Celiac genes?  
    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
×
×
  • Create New...