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Gut Bacteria Differs In Gluten-Free Celiac Patients With Persistent Symptoms - Celiac.com

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams
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Celiac.com

Gut Bacteria Differs in Gluten-free Celiac Patients with Persistent Symptoms

Celiac.com

Celiac.com 02/09/2015 - Do you suffer from persistent celiac symptoms in spite of following a strict gluten-free diet and having normal small bowel mucosa? Many celiac patients do. Moreover, typical explanations, such as accidental gluten-intake or the ...

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    • Brianne03
      Daughter recently diagnosed with Celiac and I am questioning my results...

      By Brianne03 · Posted

      Our daughter was recently diagnosed with Celiac. Everyone else in the family was subsequently tested. My results are the only ones I'm not confident with, despite my doctor saying they were normal. I guess I'm just looking for peace of mind because my research shows that TTG-IGA numbers greater than 10 U/mL are considered positive for Celiac and mine was 11.6 U/mL. I am happy to be wrong and not have Celiac, but need reassurance and expertise either way because my PCP said he was just going by the labs consideration of normal and wasn't sure beyond that. Could the test be indicative of other autoimmune issues, beyond Celiac, because I do have Hashimoto's?  In addition to having another autoimmune disease, I have had a chronic case of "dermatitis" in my genital/rectum area since 2020. I've seen tons of specialists, used many creams, taken pills and vitamins, have had biopsies, allergy tests (patch and skin prick), changed up all sorts of things, etc. with no real answers or solutions to make it go away. I have resorted to using a daily topical cream just to keep it at bay because otherwise I often feel like I am on fire...red, sore, bleeding, and oh so itchy!  The other thing that makes me question my results, is that I did a 23andMe genetic test years ago and it shows I have two copies of a genetic variant indicative of Celiac disease. Just looking for some clarification; thank you!! PS, I've tried figuring out how to attach screenshots of my test results, but no luck.
    • Brianne03
      Chapstick, gum, cough drops, medications...HELP!

      By Brianne03 · Posted

      Thank you for all the helpful suggestions. She has had stomach issues since the day she was born; when a baby projectile vomiting, as a big kid mostly cramping and stabbing pain after eating and just overall feeling of not feeling great...headaches, tired. We've talked to her doctor about it several times over the years; the did some testing when she was about 2 years old, prescribed a few stomach meds over the years that never helped and most recently did a simple blood test and an endoscopy to confirm and voila....answers!! Her iron and vitamin D were both super low. Wish it didn't take so long for her to get some relief, although honestly she's wishing she didn't know because she's already feeling like she's missing out because everything in our world revolves around food. She graduates this year and going to college is going to bring on a whole new level of stress...for her and me. I'm hoping by then she'll be confident in reading labels and advocating for herself and what she can and cannot eat, etc. 
    • Scott Adams
      Poo changes after 2 weeks

      By Scott Adams · Posted

      It sounds like you’re doing an amazing job helping your daughter navigate her new gluten-free lifestyle—it can be a big adjustment, especially for little ones! To address your questions: Increased bowel movements: It’s possible her digestive system is beginning to work better now that she’s gluten-free, and she’s clearing out what wasn’t moving before. Chronic constipation and impaction can take time to resolve fully, and daily Movicol might still be helping this process. Over time, her bowels should normalize as her gut heals, but if the frequent stools persist or seem excessive, it’s worth checking with her doctor to rule out other issues like malabsorption or food intolerances. Pinkish stool color: Changes in stool color can be common after diet changes, but pinkish stools should be monitored closely. If it’s not blood and doesn’t seem to bother her, it could just be due to something she’s eaten—like certain fruits, vegetables, or food dyes. However, if the color persists, worsens, or is accompanied by other symptoms, definitely mention it to her doctor to rule out any underlying concerns. Bloated tummy: A distended tummy from celiac disease can take time to go down as her gut lining heals and inflammation reduces. It varies for every child, but improvements are often seen within a few weeks to months of being strictly gluten-free. Staying consistent with the diet and ensuring she gets all the nutrients her body needs—especially iron, zinc, and B vitamins—will support this process. If the bloating doesn’t seem to improve or worsens, her doctor may want to investigate further. It’s still early days, so keep doing what you’re doing and stay patient with her progress. Keep track of her symptoms, and don’t hesitate to bring up any concerns at her follow-up appointments. Recovery can be a slow process, but most kids with celiac thrive once their gut heals. Sending lots of positive thoughts your way—she’s lucky to have you looking out for her!
    • Scott Adams
      Neurological/Nervous System Symptoms

      By Scott Adams · Posted

      It sounds like you’ve been through a lot, and I’m glad to hear you’ve already noticed improvements since going gluten-free! It’s not uncommon for people with celiac disease to feel like their body is in a prolonged recovery phase, especially if the damage from years of undiagnosed celiac was severe. Your symptoms, like tingling, seeing stars, a pounding heart, shakiness, and frequent urination, could be related to a number of things—potentially from lingering nutrient deficiencies, nervous system involvement, or another coexisting condition. It’s good to hear you have an appointment with your doctor soon. Definitely mention all these symptoms. Some questions you might want to explore with them include: Nutrient deficiencies: Celiac disease can cause deficiencies in vitamins like B12, magnesium, and iron, which might explain some neurological symptoms like tingling and shakiness. Have you had a full panel done recently? Adrenal or thyroid issues: The pounding heart and frequent urination might suggest something hormonal. Many people with celiac disease also have other autoimmune conditions, like thyroid disorders, that could be worth checking. Neuropathy or nervous system involvement: Tingling and warmth could be signs of gluten-related nerve damage. While these symptoms often improve over time with a strict gluten-free diet, additional support or tests might be needed. Blood sugar fluctuations: Symptoms like shakiness and feeling super warm can sometimes point to blood sugar issues. Even if you don’t have diabetes, it’s worth exploring. While it’s encouraging to hear you’re improving overall, your body might still be healing, and sometimes these lingering symptoms point to something else needing attention. Recovery from celiac can be slow, and managing other factors like stress, sleep, and balanced nutrition can also help support healing. Let us know what your doctor says! You’re not alone in this, and many of us here understand the frustration of not bouncing back as quickly as we’d like. Sending good vibes for your continued recovery!
    • Scott Adams
      Chapstick, gum, cough drops, medications...HELP!

      By Scott Adams · Posted

      Be sure to search our articles, we've covered some of these:     You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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