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- trents replied to JohannesW85's topic in Related Issues & Disorders1Do I have celiac/Gluten sensitivity?
Welcome to the forum, @JohannesW85! Your physician gave you bad advice in telling you to avoid gluten until the hospital calls you. Reducing gluten intake will invalidate celiac disease blood antibody testing but it will also invalidate the gastroscopy/biopsy if there is significant time involved between removing gluten and when the procedure is scheduled... -
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- JohannesW85 posted a topic in Related Issues & Disorders1Do I have celiac/Gluten sensitivity?
Hello everybody! I am a Swedish guy 39 years old with typ 1 diabetes. I signed up on this forum because I need som help with my problems with my stomach that have been going for 2 years mabey a little more. My problems is following: I have egg burps, its taste like rotten eggs also called sulphur burps, and it’s so horrible. After the burps mabey, ... -
- Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis17SkinSafe
Hi. Yes. I’m awaiting my Biopsy results. I had B12 and other labs drawn on Mon, including Thyroid levels, as I am on Levothyroxine for radiation-induced hypothyroidism. Those levels should indicate any iodine issues. We had discussed the urine iodine, but he went with the thyroid instead. We’ll see. I never had any of those Pellagra skin changes, or... -
- Aretaeus Cappadocia commented on Scott Adams's article in Cancer, Lymphoma and Celiac Disease1New Study Reveals High Risk of Digestive Cancers in Patients with Celiac Disease
I read your summary here, as well as the article that you linked. I don't see any reference to the diet of the exposed or control groups. Did the subjects adhere to gluten-free diet after their celiac disease diagnosis? Were there subgroups that adhered and ones that didn't? For this study, did diet impact the odds ratio for the various conditions that were...
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Welcome to the forum, @JohannesW85! Your physician gave you bad advice in telling you to avoid gluten until the hospital calls you. Reducing gluten intake will invalidate celiac disease blood antibody testing but it will also invalidate the gastroscopy/biopsy if there is significant time involved between removing gluten and when the procedure is scheduled. The endoscopy/biopsy serves the purpose of checking for the damage caused to the lining of the small bowel caused by the inflammation inherent in celiac disease to that section of the intestines. If you remove gluten ahead of the procedure for a period of weeks or months, there may be enough healing of the intestinal lining to prevent detection of damage. Gluten is hidden in many manufactured food products that you would never expect to find it in. It can also be found in medications, health supplements and oral hygiene products. It is easy to eat a lower gluten diet by cutting out major sources such as bread and pasta but much more difficult to achieve a truly gluten free state. There is significant learning curve involved. Current recommendations for the "gluten challenge" in preparing for celiac disease testing are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a period of at least 2 weeks. But I would certainly extend that time period to make sure the testing is valid. You might also be dealing with NCGS (Non Celiac Gluten Sensitivity) rather than Celiac disease. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. -
By JohannesW85 · Posted
Hello everybody! I am a Swedish guy 39 years old with typ 1 diabetes. I signed up on this forum because I need som help with my problems with my stomach that have been going for 2 years mabey a little more. My problems is following: I have egg burps, its taste like rotten eggs also called sulphur burps, and it’s so horrible. After the burps mabey, a 4-5 hours, I must have a toilet nearby because then I have diarrhea. And that can last for a day mabey, sometimes a couple of hours. When I have going to the bathroom and the diarrhea is over no more burping. After wards I am so tired and get sometime headaches. When I got these episodes I must call in sick to my work because I can’t work I am so exhausted. I have been to my house doctor and have taken tests. I took blood samples gluten and lactose. I have also this week taken feces samples, that I am gooing to leave to the doctor at the end of this week so they can take it into the lab. When i first visit my doctor is was not my regularly house doctor, and he sad mabey it’s gluten so stay gluten free and see if helps. Well, I did it and like for 10 days everything was so good, I hade some constipation but no burps or loose stools. But then after those 10 days my doctor called me and asked me If I had taken a test for gluten, which I had but she said ok but it’s negative have you been eaten gluten when you did take the test and I said no, so the test was negative of course. She also had looking over my blood samples and I have ”Postive for HLA-DQ2, subtype DQ2.5 ” And because I have diabetes typ 1 the doctor wanted me too to go the hospital to get a gastroscopy. I am wating for my time in the line for do that. I have also for a month now getting some kind of rash, it looks like blisters don’t know if I can upload a picture to show it? I try my best to be gluten free, but this weekend I was out with some friends but I drank gluten free beer but also redbull with vodka and I got really drunk and mabey I got my friends glass and I had been drinking regular beer no gluten free. My doctor said stay gluten free until the hospital calls you. So I am, but still it can take 4-5 days I got egg burps and then diarrhea, and I can’t for my life figure out how i got gluten in me. The only thing that 3 weekends in a row now, I have been drinking beer gluten free and booze. The booze have also been gluten free. Still when the weekend have passed by it got new episodes of burps and diarrhea. I have also have this kind of episodes when I’m not drinking any alkohol. We have also clean out everything that is gluten in our home. I feel so confused about this, I mean is it so easy to get gluten in your body? Sorry for long wall of text I hope you had the time to read everything. -
Hi. Yes. I’m awaiting my Biopsy results. I had B12 and other labs drawn on Mon, including Thyroid levels, as I am on Levothyroxine for radiation-induced hypothyroidism. Those levels should indicate any iodine issues. We had discussed the urine iodine, but he went with the thyroid instead. We’ll see. I never had any of those Pellagra skin changes, or Casal’s necklace. Just itchiness in the supraclavicular hollows on both sides of my neck, and the anterior aspect as my neck radiation site. The hollows had no changes until I scratched them, then I got the rash on those areas like the ones I have now scattered in different areas, usually on both sides with the exception of my anterior thighs. My right is affected, my left isn’t. I am 70 and have all my teeth as well - amazingly after having had max dose radiation in 2002. 😂 Unfortunately, because of long term changes in my oral mucosa because of it I can’t use mouthwashes - even non-alcohol ones, as they all burn my mouth like fire. Toothpastes burn as well, but not nearly as bad. I have an electric toothbrush but it is getting more difficult to use due to increasing trismus. Some days I cannot open my mouth wide enough to get the electric brush between my back teeth, so on those days I use a regular one. Gotta do what you gotta do. Thank you for your input. Any insight I can get into this is appreciated. So, for now it’s the waiting game for test results, then we can form a treatment plan going forward.
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Hiya..I was 48 when diagnosed two years ago and I was in right bad way but strict gluten-free diet you will recover I promise x
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Hi everyone I'm James, I hope you are all feeling well??. Accidentally had gluten at weekend and I've had severe diarrhea since sat night. My question is ,the longer someone like myself has been following a strict gluten-free diet will the exposure to gluten be lot more extreme as body now has been free of it well over a year ? Any information be much appreciated and any tips on how to stop the constant diarrhoea I have currently also be appreciated guys x
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