Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"gluten Free" Creperie A Charade?

C-Girl

By C-Girl
in Gluten-Free Restaurants

Recommended Posts

C-Girl Contributor
C-Girl
Posted

I went on a brief getaway weekend with the hubs this weekend, and we stayed in a place with a kitchen so I could have safe food. But when we got there I googled a bit and found a nearby crepe restaurant that purported itself to be 100% gluten free. I decided we should patronize the place just because!

We went, I had some crepes, they were decent enough. Then I met the owner and thanked him, asked him what inspired him to open a gluten-free place. He admitted it was because of the trend, and nothing else. RED FLAGS flew up in my mind, especially when he couldn't say what was in the mix other than rice flour. The next night, I was up half the night with gut wrenching cramps, diarrhea, chills, nausea. The next day I was so tired. Now, I'm super depressed and really just do not want to go on living in a world where someone would take advantage of people like us just to make a buck, and not even get it right. I know I was glutened by this place, because I only ate my own food for days before and after eating there. I feel sick in my body, my heart and my soul over this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

I am so sorry that you got sick!

I would comment on Yelp, FB, or Find Me gluten-free to alert others that is place is not for those with celiac disease.

bartfull Rising Star
bartfull
Posted

Wow. Just wow.

 

Have you contacted the guy since you got sick to let him know? Maybe if you inform him he'll at least post a disclaimer so others in the future won't get sick.

lpellegr Collaborator
lpellegr
Posted

A small crepe place near me offered gluten-free crepes, and yes, she had a pitcher of gluten-free batter, but she could not dedicate one of the crepe bakers (like a big round stone) to the gluten-free crepes, so I let her know that she couldn't call them gluten-free.  I don't think she even has that on her menu any more.  Some restaurants need more education.

Nikki2777 Community Regular
Nikki2777
Posted

That's really scary - please post at least what city this was in (if not the name of the place), so we can be forewarned.  But also, I would call them and tell them you got sick, as well as posting on Find Me gluten-free or any local Celiac Meet Up sites.

 

I did manage to find a place that does gluten-free Crepes (Well, "Gallettes" made with buckwheat) when travelling recently, and I felt it was worth the risk because I asked them about the stone they used and it was dedicated.  They seemed to know what they were talking about.  

 

But no one should be calling themselves 100% gluten-free without knowing what they're using!  It's worth calling, because I think when restaurants don't see us getting sick, they figure they're in the clear.  They don't realize it's not like an immediate allergic reaction, and they justify further laxness (laxity?) based on this.

 

Sorry you had to go through that.

C-Girl Contributor
C-Girl
Posted
  • Author

I've put a review up on FMGF. IT's the Creperie and Cafe in Weaverville, NC.

cyclinglady Grand Master
cyclinglady
Posted

Read it. I try to find postings by folks who actually have celiac disease. Those are rare. Hope you are feeling a bit better!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


w8in4dave Community Regular
w8in4dave
Posted

I cannot imagine a restaurant advertising gluten-free and not being state inspected. Wow! So sorry you got so sick! It's like starting back on square 1. 

icelandgirl Proficient
icelandgirl
Posted

I am so sorry this happened to you! How awful! I'm so glad you wrote a review...hopefully that saves someone else your pain. We have one gluten free restaurant where I live...started by a mom and daughter. The daughter is gluten intolerant. I love eating there because I know I can order anything and not have to worry. Eating anywhere else makes me nervous.

Big hugs to you...feel better!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would...
    2. MI-Hoosier
      - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy. With the condition my liver is in I am unsure moving back...
    3. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is...
    4. MI-Hoosier
      - MI-Hoosier posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Test uncertainty

      Hi, I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect. During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am...
    5. Sunshine4
      - Sunshine4 replied to Sunshine4's topic in Related Issues & Disorders
      3

      Neurologic symptoms - Muscle Twitching and Hand Tremors

      Many apologies for somehow changing your first name Scott!
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,253
    • Most Online (within 30 mins)
      7,748
    MI-Hoosier
    Newest Member
    MI-Hoosier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Hi,  I was recently diagnosed with stage 3 NASH and doctor is concerned something is caused my disease to progress quicker than they would expect.   During blood tests a celiac screen was pulled as my mom is a celiac. My ttg was a 49.4 (normal >15) but my endomysial antibody was negative. I have never had gluten symptoms and no issues with bread and am 54. Do I need a biopsy to rule celiac in or out with this mixed test? Any thoughts are appreciated.  
    • Sunshine4
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By Sunshine4 · Posted

      Many apologies for somehow changing your first name Scott! 
×
×
  • Create New...