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How Long Did It Take You To Really Feel Great?

icelandgirl

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icelandgirl Proficient
icelandgirl
Posted
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I'm glad to hear you have seen improvement!

The setbacks can be tough, physically and mentally. I hope the new medication will make a big difference for you. It is very rewarding to be able to knock down another symptom, although it seems to take a while to get to that point sometimes. I finally had a ah-ha moment and realized I am egg intolerant, and eliminating eggs has made a huge difference for me. I wish I would have figured that out a year ago.

 

My GI doctor initially wanted me to take either 325mg of iron salt or 65mg of elemental iron 3 times a day because I had moderate iron defienciency anemia. That was way too much for my digestive system to handle. After trying many different types of iron I found that I could only tolerate Iron Bis-Glycinate at 25 mg of elemental iron 3 times a day. I would have to stop taking it completely for a while whenever I had stomach aches. One thing to keep in mind with iron is that if you are supplementing you should probably talk to your doctor about it, so they can help you find the right dose and check your iron levels every few months. If you take too much, you can end up with iron overload which can cause a whole other set of problems. At this point because iron supplements do upset my stomach, I usually only taking 25mg of Iron Bis-Glycinate once a day.

Oh my goodness the setbacks can be hard! For me, the emotional part is the worst. But I'm an emotional person so it is to be expected.

How did you figure out your egg intolerance?

I'm taking ferrous gluconate on the suggestion of another celiac friend. It's supposed to be easy on the GI system and so far have had no issues. I did put in a request to have my iron stuff all checked when I get my thyroid done. I definitely don't want to overdo it, but I knew that a ferritin of 15 with a range of 15-150 wasn't great no matter what my Dr said so I took matters into my own hands. I'm tired of being exhausted!

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HavaneseMom Explorer
HavaneseMom
Posted

Oh my goodness the setbacks can be hard! For me, the emotional part is the worst. But I'm an emotional person so it is to be expected.

How did you figure out your egg intolerance?

I'm taking ferrous gluconate on the suggestion of another celiac friend. It's supposed to be easy on the GI system and so far have had no issues. I did put in a request to have my iron stuff all checked when I get my thyroid done. I definitely don't want to overdo it, but I knew that a ferritin of 15 with a range of 15-150 wasn't great no matter what my Dr said so I took matters into my own hands. I'm tired of being exhausted!

Hopefully you will be able to get your Ferritin up quickly supplementing. 15 is really low. That normal range of 15-150 is too wide and is just terrible.

 

It took me a while to figure out my egg intolerance because the symptoms would last about 5 days. I was eating them every few days for a meal so I was having a continuous overlap of symptoms. I ran out of eggs and didn't have any for a week, then forgot to pick them up at the store, so I had gone without for a couple of weeks and was feeling pretty good. When I started eating them again I had terrible indigestion, heartburn, bloating and a constant lump in my throat. I did an elimination and introduction a couple times and the same thing happened again. It was kind of crazy that I didn't realize it before, but my digestive system is so much more happy without eggs. 

icelandgirl Proficient
icelandgirl
Posted
  • Author

Hopefully you will be able to get your Ferritin up quickly supplementing. 15 is really low. That normal range of 15-150 is too wide and is just terrible.

 

It took me a while to figure out my egg intolerance because the symptoms would last about 5 days. I was eating them every few days for a meal so I was having a continuous overlap of symptoms. I ran out of eggs and didn't have any for a week, then forgot to pick them up at the store, so I had gone without for a couple of weeks and was feeling pretty good. When I started eating them again I had terrible indigestion, heartburn, bloating and a constant lump in my throat. I did an elimination and introduction a couple times and the same thing happened again. It was kind of crazy that I didn't realize it before, but my digestive system is so much more happy without eggs.

I know! I'm amazed when a Dr says it looks fine when 1 point down it would be too low. It's tough. I really hate going to Dr's. I have such a mistrust of them and going to an appointment is very anxiety producing for me. I have to do serious deep breathing in the waiting room preparing to go in. So when my Dr says your ferritin looks good...instead of saying doesn't the fact that it's the very bottom of the reference range indicate that supplementation may be in order? I say OK and then go out and buy iron and supplement on my own. Not ideal. But all my labs are reordered for the end of the month. We will see.

Interesting on the eggs for sure...so glad you figured it out!

  • 2 weeks later...
blueshades Newbie
blueshades
Posted

I think my worst time was around 2 years ago when i was waking up everyday with extreme pain and needing the make that toilet trip. That's when i really cut all gluten. I was already doing my whole doctors thing at the time so i knew it was possibly food allergies.

The second i went off wheat i felt the pain not as intense in just days.

I am still not well. I slip up and make mistakes. The past few days i've been insanely good and noticed my tummy seems more controlled and less 'not feeling right'. 

I always feel tired. But i think it has to do with lifestyle too. Life is so busy these days with the constant working and constant rush to be 'doing something'. I really crave to be back in the past when everything wasn't so fast paced and so rushed just so i can have the time to heal and feel ok again.

I've accepted the fact i'll never feel great. But i want to feel close to great. Like i feel good enough that it seems possible :)

And i have felt that before! There must have been periods where i've been super good and doing it right because it was a few days before i thought to myself... wow i've been feeling pretty good lately :)

Then of course i eat something risky and ruin it all! Stay dedicated (we have no choice!) and have hope :)

icelandgirl Proficient
icelandgirl
Posted
  • Author

Hi blueshades...it's great to hear that you've had some times if feeling really well. Great motivator to stay completely gluten free right? I do think life tends to be too fast paced as well.

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