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Celiac Disease In Children Easily Overlooked - Ny1


Scott Adams

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NY1

The number of people diagnosed with celiac disease is on the rise, but still experts say it's under diagnosed including among children. As NY1's Health Reporter Erin Billups explains there are some common, every day, symptoms that can easily be ...

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    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
    • Skg414228
      Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put that info on the forum in case someone finds it interesting later. I’ll update in April when I find out. 
    • trents
      It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing gluten. It is very common for people to experiment with the gluten free diet before getting formally tested. They don't know any better and it seems some doctors don't know enough to tell them not to.
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