Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed W Both Celiac And Anklyosing Spondolitis

amejia111

By amejia111
in Related Issues & Disorders

Recommended Posts

amejia111 Newbie
amejia111
Posted

Hello, I'm new here and my first post. I was wondering if anybody else has Ankylosing Spondolitis also? Just diagnosed w Celiac but have had A.S. for 15 years now. Trying to figure out what symptoms are what now. Great site.

 

 

Angie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome! I do not have A.S., but I would encourage you to check out our Newbie 101 section under "Coping":

https://www.celiac.com/forums/topic/91878-newbie-info-101/

It includes valuable tips for staying gluten free as cross contamination is huge issue for those with celiac disease.

I wish you well!

LauraTX Rising Star
LauraTX
Posted

Welcome to the board, Angie!

 

A lot of us also have autoimmune disorders along with our Celiac Disease.  I have lupus as well as Celiac, and the advice I can offer is to let you know that you have to take care of all your conditions at once to be healthy.  So, dive on in to gluten-free eating and take it seriously, and you may see improvement overall and in things you thought were from your AS.  It will take some time to tell, but you are on the right path to healing :)

 

Feel free to ask any questions!

janpell Apprentice
janpell
Posted

I do have arthritis in my spine which is thankfully in remission. I have to expand my diet restrictions to beyond just gluten. One of my biggest offenders are tomatoes. I also have to avoid dairy, potatoes, most vinegars, most legumes, citrus, most corn chips and corn (there is still one brand I can have, yay) high sugar, soy, fermented foods, and a few gluten-free grains. I am hoping to reintroduce these but after eliminating for 6 weeks I noticed once reintroducing they are bringing back cervical pain so they are off the list again. I have been gluten free for three years and it took a long time to really see results and I do elimination diets here and there. Nothing was immediate but it results were certainly there so I am glad I stuck it through. I hope it is just a gluten thing for me and maybe in another year I can reintroduce some of these foods I have to avoid.

amejia111 Newbie
amejia111
Posted
  • Author

Thanks for input everybody! I'm hoping as I get completely gluten-free the rest will settle too. I've had my arthritis for almost 15 years now and meds never work for me so I've gotten off all meds to see how things shake out, and sadly now that I'm off everything I feel no different which kind of irritates me becuase I have taking all of these horrible meds for nothing but my $.

janpell Apprentice
janpell
Posted

I know what you mean about the meds not working. I used to go to support groups (online) before the diet change and many of us were/are in the same boat. Just take one step at a time, be aware and research other avenues, and you will notice results. I was gluten light for the first year before I gave it up completely. It just takes time and commitment and then habit change will happen.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too. I was supposed to do testing to find out metal's I was allergic to because I can't wear jewelry of any kind. Mayo felt I had other allergies also.
    2. Scott Adams
      - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based...
    3. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      Mayo is great and yes I had the same experience. They take you seriously and they check everything. I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.
    4. pdm1981
      - pdm1981 replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5...
    5. Dawn Meyers
      - Dawn Meyers replied to Dawn Meyers's topic in Related Issues & Disorders
      16

      Vaccines

      Antibodies my number is in 500's. COVID hit and I was layed off from my job so no insurance (was in Arizona) so couldn't complete all the other testing they wanted to do. Back home and contacted Minnesota Mayo and they take my new insurance so considering going back in spring.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,850
    • Most Online (within 30 mins)
      7,748
    Roselle
    Newest Member
    Roselle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      I did some research and found out that vaccines put preservatives, sugar alcohols and metals in them. Which I have a intolerance too.  I was supposed to do testing to find out metal's I was allergic to because I can't  wear jewelry of any kind. Mayo felt I had other allergies also.
    • Scott Adams
      Vaccines

      By Scott Adams · Posted

      For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based and recombinant flu vaccines. Recombinant Vaccines (e.g., Flublok Quadrivalent): These are produced without the use of eggs and are grown in insect cells, making them a suitable option for individuals with egg allergies. Cell-Based Vaccines (e.g., Flucelvax Quadrivalent): These vaccines are also egg-free and are produced using mammalian cell cultures, which can be a safer alternative for those with egg allergies. Other Considerations: If you have had a reaction to a specific component of the flu vaccine (e.g., gelatin, preservatives, or antibiotics), discussing your medical history with a healthcare provider is crucial. They can help identify vaccines that exclude these ingredients. It's important to consult with an allergist or healthcare provider to determine the safest option based on your specific allergies and medical history. They can also provide guidance on pre-vaccination testing or desensitization protocols if necessary. Also, at @trents mentioned, could you be getting hidden gluten in your diet? Do you eat in restaurants? If so, this could be why you still have high gluten antibodies.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      Mayo is great and yes I had the same experience.  They take you seriously and they check everything.  I to wish other Dr's cared that much. I sure hope it's not refractory celiac also.  
    • pdm1981
      Vaccines

      By pdm1981 · Posted

      When I went to the Mayo Clinic back in 21' it was pretty amazing. The doctor sat and went over everything with me for a couple hours. I finally had to ask him if he had other patient to see. He said that not until he was done with me. I went back to my hotel room that day after some blood work and then got an itinerary of tests to be done over the next 5 days. It was unbelievable. I had what would've been 4 years of testing back home done in 5 days. I went home at the end of 5 days and got my results a week later on a zoom call. EPI and rapid gastric emptying syndrome. I do have celiac disease but that wasn't the cause of my continued symptoms. Those people up there are great. Wouldn't that be amazing if all medical care was like that?  That's weird that the antibodies are that high. Hopefully it's not refractory celiac disease. Good luck.
    • Dawn Meyers
      Vaccines

      By Dawn Meyers · Posted

      Antibodies my number is in 500's. COVID hit and I was  layed off from my job so no insurance (was in Arizona) so couldn't complete all the other testing they wanted to do. Back home and contacted Minnesota Mayo and they take my new insurance so considering going back in spring. 
×
×
  • Create New...