Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Celiac Disease Is Causing Stressful Family Conflict


Coolclimates

Recommended Posts

Wheatless32 Newbie

After five years, the only thing I have learned is trust no one. Really, unless they are in the exact same diet regiment as you, they will screw up. The best advice I can give is just worry about yourself, and as sad as it sounds, give up on others trying to help you, and give up on trying to change others unless they are like your mom, and really on board for the full shift. This is because you are functioning on your own survival and well-being, and someone else's survival and well-being is more important to themselves, than your well-being is to them. They don't have a real care in whether or not you get sick, they might feel bad for a bit, but you will feel bad for days, and they will forget about it quickly to focus on their own needs, as there is nothing that can be done to fix a food allergy reaction, so you are stuck suffering, while they go about their lives normally.

 

I am sorry about the conflict, it has caused me a lot of pain and struggle in my family as well, and I've only learned to give up on people, and develop a steel resolve to leave any situation that doesn't feel safe to me.

I have learned my lesson too many times the hard way, people will forget about your disease in order to be more socially acceptable and 'go with the flow'.

 

I have parents that have been struggling for YEARS to try to get it right, but my mom's obese and has too much attachment to food to give up gluten, so even though I try as hard as I can I still usually get sick everytime I visit from their unclean snacking habits. Flour based food just gets everywhere.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,627
    • Most Online (within 30 mins)
      7,748

    Jensteve
    Newest Member
    Jensteve
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      I doubt very much that it contains any gluten. It works by producing an artificial blood clot, mixing 2 or more proteins found in the natural blood clotting cascade. These are refined from human blood donations. It comes in 2 vials that are mixed immediately before use and clot quickly.
    • nanny marley
      This literally happened to me today I had gluten after not eating it for over 6 months doing the elimination diet has I'm trying to get help with a diagnosis I ate gluten a few days ago and then stopped  because I went for my blood test today unfortunately it's not enough has I've now learned from some helpful people on this forum it has to be a lot longer before a test but my food today was really salty I just thout it was me because I'd deviated off my diet but I definitely tasted my  food  salty so that's a very intriguing investigation for me now thankyou for the post 
    • nanny marley
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • nanny marley
      Thanks for posting that Scott I will arm myself too I had a blood test today and a fecal test for calprotein I'm not expecting any positive results I've been gluten free for over 6 months but I will be back has Arnold says with that information 👍
×
×
  • Create New...