Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dermatitas Herpetiformis


atibbs

Recommended Posts

atibbs Rookie

Elbows, knee's, rear end, chin,.....................I go gluten free and I still get the bumps!!

Does anyone have any suggestions, I do take dapsone, but not a big doseage

also does anyone get a REAL bad rash and itch in your underarms??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast
Elbows, knee's, rear end, chin,.....................I go gluten free and I still get the bumps!!

Does anyone have any suggestions, I do take dapsone, but not a big doseage

also does anyone get a REAL bad rash and itch in your underarms??

<{POST_SNAPBACK}>

Now that you mention the underarm rash, yes I do. I get really awful things below my bottom lip on my chin and bumps and rash on my chest. The underarm rash is itchy, red and burns. The facial thing itches and burns the chest itches, and the elbows itch. I have not had any of these since being gluten-free. Next week I have to go back on gluten so that when I see the dermatologist the week after, I can get a for sure diagnosis. I never equated the underarm rash with anything before but now it makes me wonder.

  • 3 weeks later...
cdford Contributor

Those under your arms are probably staying irritated either by sweat and heat or by the use of deodorant products. Mine get miserable there. Heat tends to make the itch more intense. Try bathing in a bath of lukewarm water with either a little baking soda or some epsom salts or my favorite, Shaklee's Basic H. You may want to try using some powder under your arms for a while to see if it helps the more irritated areas.

Don't know why those on my chin area and in my ears itch more than anywhere else, though.

VegasCeliacBuckeye Collaborator

Due to your body's hystamine reaction due to gluten, any portion of your body where skin is being rubbed can form DH.

this is why your underarms, buttocks, beltline, neck, elbows, knees or any other place on the body where the skin comes into contact with another surface gets irritated.

Also, DH is common on the joints in general...

It does get better over time....Dapsone helps!!

  • 2 weeks later...
JoeB Apprentice

I have the same problems, though, I have to say my itching has probably decreased by about 90% since going on the gluten-free diet in April. The only things I'm using now are clobetasol, which is a topical steroid, and aloe. I only use the clobetasol if the problem is really bad. I use the aloe as kind of an all over treatment after I take a shower.

Joe

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,207
    • Most Online (within 30 mins)
      7,748

    Tina Marie Fornash
    Newest Member
    Tina Marie Fornash
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...