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The Weird Link Between Celiac Disease And Nerve Damage - Time

Scott Adams

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Scott Adams
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TIME

In the new nationwide study, pediatrician Dr. Jonas F. Ludvigsson, professor of clinical epidemiology at Karolinska Institutet in Sweden, and his team wanted to look at the risk of developing neuropathy in a sample of people diagnosed with celiac disease.

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    • Scott Adams
      Poo changes after 2 weeks

      By Scott Adams · Posted

      It sounds like you’re doing an amazing job helping your daughter navigate her new gluten-free lifestyle—it can be a big adjustment, especially for little ones! To address your questions: Increased bowel movements: It’s possible her digestive system is beginning to work better now that she’s gluten-free, and she’s clearing out what wasn’t moving before. Chronic constipation and impaction can take time to resolve fully, and daily Movicol might still be helping this process. Over time, her bowels should normalize as her gut heals, but if the frequent stools persist or seem excessive, it’s worth checking with her doctor to rule out other issues like malabsorption or food intolerances. Pinkish stool color: Changes in stool color can be common after diet changes, but pinkish stools should be monitored closely. If it’s not blood and doesn’t seem to bother her, it could just be due to something she’s eaten—like certain fruits, vegetables, or food dyes. However, if the color persists, worsens, or is accompanied by other symptoms, definitely mention it to her doctor to rule out any underlying concerns. Bloated tummy: A distended tummy from celiac disease can take time to go down as her gut lining heals and inflammation reduces. It varies for every child, but improvements are often seen within a few weeks to months of being strictly gluten-free. Staying consistent with the diet and ensuring she gets all the nutrients her body needs—especially iron, zinc, and B vitamins—will support this process. If the bloating doesn’t seem to improve or worsens, her doctor may want to investigate further. It’s still early days, so keep doing what you’re doing and stay patient with her progress. Keep track of her symptoms, and don’t hesitate to bring up any concerns at her follow-up appointments. Recovery can be a slow process, but most kids with celiac thrive once their gut heals. Sending lots of positive thoughts your way—she’s lucky to have you looking out for her!
    • Scott Adams
      Neurological/Nervous System Symptoms

      By Scott Adams · Posted

      It sounds like you’ve been through a lot, and I’m glad to hear you’ve already noticed improvements since going gluten-free! It’s not uncommon for people with celiac disease to feel like their body is in a prolonged recovery phase, especially if the damage from years of undiagnosed celiac was severe. Your symptoms, like tingling, seeing stars, a pounding heart, shakiness, and frequent urination, could be related to a number of things—potentially from lingering nutrient deficiencies, nervous system involvement, or another coexisting condition. It’s good to hear you have an appointment with your doctor soon. Definitely mention all these symptoms. Some questions you might want to explore with them include: Nutrient deficiencies: Celiac disease can cause deficiencies in vitamins like B12, magnesium, and iron, which might explain some neurological symptoms like tingling and shakiness. Have you had a full panel done recently? Adrenal or thyroid issues: The pounding heart and frequent urination might suggest something hormonal. Many people with celiac disease also have other autoimmune conditions, like thyroid disorders, that could be worth checking. Neuropathy or nervous system involvement: Tingling and warmth could be signs of gluten-related nerve damage. While these symptoms often improve over time with a strict gluten-free diet, additional support or tests might be needed. Blood sugar fluctuations: Symptoms like shakiness and feeling super warm can sometimes point to blood sugar issues. Even if you don’t have diabetes, it’s worth exploring. While it’s encouraging to hear you’re improving overall, your body might still be healing, and sometimes these lingering symptoms point to something else needing attention. Recovery from celiac can be slow, and managing other factors like stress, sleep, and balanced nutrition can also help support healing. Let us know what your doctor says! You’re not alone in this, and many of us here understand the frustration of not bouncing back as quickly as we’d like. Sending good vibes for your continued recovery!
    • Scott Adams
      Chapstick, gum, cough drops, medications...HELP!

      By Scott Adams · Posted

      Be sure to search our articles, we've covered some of these:     You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      Chapstick, gum, cough drops, medications...HELP!

      By trents · Posted

      This might be helpful as well:   
    • trents
      Chapstick, gum, cough drops, medications...HELP!

      By trents · Posted

      Welcome to the forum, Brianne03! It is relatively easy, as you have discovered, to identify gluten-free products when considering only intentional ingredients but it can be much more difficult or impossible to get definitive answers about cross contamination. Does your daughter fall into the supersensitive category of celiacs? That is, does she have definite reactions to very small amounts of gluten exposure? If not, you might do well to just focus on listed ingredients and not worry too much about CC (cross contamination). In the things you list, gum and cough drops are probably the biggest concern. Most chewing gums have wheat starch in them. But some don't. My practice is to include the terms "gluten free" in my Amazon searches for those kinds of products. As to medications, this might be helpful but CC can not be ruled out with generic drugs:  http://www.glutenfreedrugs.com/list.htm
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