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Multi Diagnosis- Possible Celiac/lymphocytic Colitis/lymphocytic Gastritis/lymphocytic Epithelial Duodenum

celiwhat

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celiwhat Rookie
celiwhat
Posted

I have been in a world of pain and finally after months of testing the GI specialists found a few things in my endoscopy and flex sig tests.

They found lymphocytic colitis, lymphocytic gastritis, and lymphocytic intraepitheial duodenal which they believe may be an indication of possible mild celic disease in its early stages but they cannot be sure. I was started on budesonide 3mg 2xs per day. I am posting on this because I have done a lot of research, yet have not found many answers. So I am wondering if on the off chance anyone has been diagnosed with all or some of these things before and what the outlook on the future is? I am feeling very distraught with the fact that there seems to be so much uncertainty when it comes to these things I have been diagnosed with. I have been miserable and the fact that They found something they hardly know how to handle has left me feeling hopeless. I have just turned 21 so I am a rare case, and I am just wondering if there is hope out there that I can have a somewhat normal life again? I have started a gluten free/dairy free diet and the medication. the medication is helping a bit, but I have read so much about people relapsing after the medication is over with which I am scared of.

Any experiences would be helpful. I Know there is a connection between these things and celiac, but Idk if it's common to have all three happening at the same time?

Thank you.

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kareng Grand Master
kareng
Posted

Were your Celiac blood tests positive?

celiwhat Rookie
celiwhat
Posted
  • Author

Yes, I probably should have mentioned that. That was why we did an endoscopy/biopsy.

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