Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate Some.


Kaleab

Recommended Posts

Kaleab Newbie

Hello All,

I have been diagnosed with Celiac and yesterday I decided to see what a cookie would do that had wheat in it after going gluten-free for 3 months. Surprisingly, I did not really get sick. A little foggy, cramps for a couple of hours but nothing like before. Does this mean I can have gluten in small amounts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BlessedMommy Rising Star

Welcome to the site!

 

No, a celiac cannot have any gluten.

 

When you have celiac, even if you don't have visible symptoms, the auto immune damage is happening in your intestine which in turn affects your ability to absorb nutrition and the health of your whole body. Over time, this can lead to anemia, osteoperosis, diabetes, and even cancer, even if outward symptoms are minimal. 

 

Have you explored the various recipes? There are many gluten free cookies that are delicious and won't make you sick or cause auto immune damage. I held a 100% gluten free baby shower recently and everybody thought that my menu was great, even the gluten eaters. 

 

A good place to start here is our Newbie 101 thread. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 It's chuck full of good information on how to maintain a safe gluten free diet, including avoiding cross contamination. It's difficult at times, but good health and avoiding all the complications of untreated celiac disease is so worth it!

mamaw Community Regular

NO NO NO...you have  probably healed  your  gut  a little in 3 months  if your  were strict....isn't  a  little foggy  & cramps  enough  to make  your  brain  understand  that  you can't  have  gluten? sounds  like "Russian Roulette" to me.....you  can continue to cheat  no  one will stop you  but  down the road  your  body  will  succumb  to  the  ill effects  of  gluten   & then  you can deal  with cancer, osteoporosis,  diabetes, anemia  &  more... good  luck

kareng Grand Master

No. Did the foggy and cramps not tell you something? That you are reacting.

Open Original Shared Link

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve."

Kaleab Newbie

Welcome to the site!

 

No, a celiac cannot have any gluten.

 

When you have celiac, even if you don't have visible symptoms, the auto immune damage is happening in your intestine which in turn affects your ability to absorb nutrition and the health of your whole body. Over time, this can lead to anemia, osteoperosis, diabetes, and even cancer, even if outward symptoms are minimal. 

 

Have you explored the various recipes? There are many gluten free cookies that are delicious and won't make you sick or cause auto immune damage. I held a 100% gluten free baby shower recently and everybody thought that my menu was great, even the gluten eaters. 

 

A good place to start here is our Newbie 101 thread. https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 It's chuck full of good information on how to maintain a safe gluten free diet, including avoiding cross contamination. It's difficult at times, but good health and avoiding all the complications of untreated celiac disease is so worth it!

Oh thank you. I have tons and tons of recipes. I know what I can what I can't eat, I was just doing a little science experiment and wanted to know why nothing was happening. Thanks BlessedMommy, will def. look at that thread. 

Kaleab Newbie

NO NO NO...you have  probably healed  your  gut  a little in 3 months  if your  were strict....isn't  a  little foggy  & cramps  enough  to make  your  brain  understand  that  you can't  have  gluten? sounds  like "Russian Roulette" to me.....you  can continue to cheat  no  one will stop you  but  down the road  your  body  will  succumb  to  the  ill effects  of  gluten   & then  you can deal  with cancer, osteoporosis,  diabetes, anemia  &  more... good  luck

I hate cheating, I just wanted to see if anything was happening. I know how bad it is for my body and will not continue. I was strict, like REALLY strict. Hopefully I didn't jack everything up. Thanks mamaw!

Kaleab Newbie

No. Did the foggy and cramps not tell you something? That you are reacting.

Open Original Shared Link

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve."

Thanks Karen, I am 15 so the doctor said mine should heal a lot faster then someone older so hopefully I didn't mess anything up. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiacandme Apprentice

I appreciate that you are 15 but every case is different. I'm surprised your doctor said that because you are 15 you should heal a lot faster than someone older. Even in a 7-year-old. One might think that because they were diagnosed early they wouldn't have as much damage or would heal faster but that is simply not necessarily true. Some 7 yr olds are diagnosed after "easier" symptoms and some may feel their lives were saved by finally being diagnosed. The damage, and healing time, varies greatly from patient to patient.

 

To be honest, with what I've experienced, I would be terrified to purposely take a bite to see what what happen. Gluten was destroying me.

 

Reading your post made me think of a story I heard not that long ago at my hairdressers. She was asking me how I was feeling knowing I had been diagnosed with celiac disease. Someone else that was in the salon heard her and shared a story about her sister. Her sister was a diagnosed celiac patient. She was getting ready to go to college and wanted to see what would happen to her if she accidentally had or was given gluten. She ate gluten on purpose to see and ended up having a terrible seizure. She never had seizures in her life before. From that time on she continued to have them. :(

 

Sounds like you were lucky with how your body reacted. Be gentle with yourself and stay away from that gluten! :)  

ravenwoodglass Mentor

In addition to the excellent info you got from others it should be added that reactions can be delayed. That little bit of brain fog and tummy ache may turn into explosive D today or tomorrow. Hopefully it won't but no way to tell.  I know it is hard when you are young to have anything that makes you different from your peers but you must stay strict with the diet even if accidental or purposeful glutenings don't seem to cause too much pain.

Kaleab Newbie

I appreciate that you are 15 but every case is different. I'm surprised your doctor said that because you are 15 you should heal a lot faster than someone older. Even in a 7-year-old. One might think that because they were diagnosed early they wouldn't have as much damage or would heal faster but that is simply not necessarily true. Some 7 yr olds are diagnosed after "easier" symptoms and some may feel their lives were saved by finally being diagnosed. The damage, and healing time, varies greatly from patient to patient.

 

To be honest, with what I've experienced, I would be terrified to purposely take a bite to see what what happen. Gluten was destroying me.

 

Reading your post made me think of a story I heard not that long ago at my hairdressers. She was asking me how I was feeling knowing I had been diagnosed with celiac disease. Someone else that was in the salon heard her and shared a story about her sister. Her sister was a diagnosed celiac patient. She was getting ready to go to college and wanted to see what would happen to her if she accidentally had or was given gluten. She ate gluten on purpose to see and ended up having a terrible seizure. She never had seizures in her life before. From that time on she continued to have them. :(

 

Sounds like you were lucky with how your body reacted. Be gentle with yourself and stay away from that gluten! :)

Oh god, I hope she's better. Gluten was destroying my life and my grades and just everything, I was just being dumb. Thanks Celiacandme :-)

Kaleab Newbie

In addition to the excellent info you got from others it should be added that reactions can be delayed. That little bit of brain fog and tummy ache may turn into explosive D today or tomorrow. Hopefully it won't but no way to tell.  I know it is hard when you are young to have anything that makes you different from your peers but you must stay strict with the diet even if accidental or purposeful glutenings don't seem to cause too much pain.

I understand my condition and my friends do too I was being dumb. Thanks ravenwoodglass. :)

mamaw Community Regular

okay I think you got  double H ell  for  this  so now  make it into a  learning lesson  &  move  on  without  ever  touching gluten again!!!!!! Make  yourself a promise....your too young  to have  a  more serious  illness hit you because  you  were  playing  around....

kareng Grand Master

Good!  You got that out of the way now!  Onward.....   :D

nvsmom Community Regular

LOL  Onwards and upwards.  :)

 

You sound smarter about this (except for that cookie) than most adults.  Good for you.  Stay strict or it will catch up to you in a few years, and you don't want something knocking you back when you are in your prime.

 

Best wishes.  :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Debado's blog entry in Debado
      9

      Gluten migranes at night

    2. - Debado commented on Debado's blog entry in Debado
      9

      Gluten migranes at night

    3. - trents commented on Debado's blog entry in Debado
      9

      Gluten migranes at night

    4. - knitty kitty replied to Debado's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Night time migranes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,793
    • Most Online (within 30 mins)
      7,748

    natrurespirt
    Newest Member
    natrurespirt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Brandy969
    • knitty kitty
      Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine.  Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine.  Our bodies make histamine, an important neurotransmitter.  Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles.   Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine.  A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods.   Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines.   Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels.  Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine.  DAO from beef or pork kidney is an over-the-counter supplement that can be taken.   Riboflavin B2 is very helpful for relieving migraines.   Have you been diagnosed with Celiac Disease or suspect you have it?   Happy Holidays!
    • knitty kitty
      @ABP2025, Have you thought about having a DNA test to check for known Celiac genes?    I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood.  See article below. Celiac disease affects the absorption of nutrients,  including vitamins and minerals.  Your symptoms may be associated with thiamine deficiency.   Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency.  Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days.  Thiamine deficiency can occur even if blood tests show normal levels.  Thiamine deficiency can affect antibody production.      
    • Debado
      Anybody ever heard of getting a migrane from gluten and coconut oil ONLY at night?   If I consume gluten or coconut oil, even in the morning,  I will get a migrane. But not until half way thru the night. I don't get this. Why at night? Why not right after I eat?
    • trents
      Early on,  DQ2 and DQ8 were the primary genes that have been connected to the potential to develop celiac genes but more recent genetic research suggests there may be more.
×
×
  • Create New...