Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-Free Barley? What The Whaaat?


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hey guys,

 

so, if you get the "updates" from Celiac.com, you'll have seen some thing about a german beer being brewed with gluten-free barley. At first I figured it was just another "gluten removed" scheme, but:
Open Original Shared Link

WHAT? Gluten-free barley?? Isn't that impossible? Barley contains gluten, right? Is there some kind of genetically modified barley out there? Has it actually been tested? Does anyone know anything about this? I want to see some science. If it's true, and it's safe (for celiacs. I'm not going to get into a GMO safety debate), then that's fantastic. But i'm highly skeptical.

 

Any insight on this? Would be good to get the whole picture before anyone starts thinking barley is safe or some such craziness.

 

Thanks!

Peg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EzyEric Newbie

Wow this is great news.  Hope it works out and spreads fast.  Hopefully it tastes the same as well.

DougE Rookie

Wow this is great news.  Hope it works out and spreads fast.  Hopefully it tastes the same as well.

I agree.  Somebody please tell me this isn't a hoax.

RMJ Mentor

Page 24 of the linked pdf shows how it was bred (non-GMO). It is not gluten free barley, it is low gluten, 5 ppm.

Open Original Shared Link

bartfull Rising Star

And it was probably harvested on contaminated equipment and stored in contaminated grain bins.

 

No thanks.

Gemini Experienced

The article stated that they will treat this gluten-free barley like gluten-free oats.......processing, storage and transportation will be separate from gluten containing grains. That should take care of that problem.

 

5ppm's of gluten is considered gluten free by most standards and the number of people who would react to such low levels would most likely be tiny, compared to the number of people with Celiac Disease.  So....it is correctly labeled.  I think this is a great idea for those people who really miss their beer. I would not drink it, as I dislike beer in any form, gluten-free or not.  The only problem I could see is in the amount a person might drink.  The ppm's might add up if you went crazy and drank a six pack or more.  ^_^

kareng Grand Master

The article stated that they will treat this gluten-free barley like gluten-free oats.......processing, storage and transportation will be separate from gluten containing grains. That should take care of that problem.

 

5ppm's of gluten is considered gluten free by most standards and the number of people who would react to such low levels would most likely be tiny, compared to the number of people with Celiac Disease.  So....it is correctly labeled.  I think this is a great idea for those people who really miss their beer. I would not drink it, as I dislike beer in any form, gluten-free or not.  The only problem I could see is in the amount a person might drink.  The ppm's might add up if you went crazy and drank a six pack or more.  ^_^

 

 

But I wonder - what percent of beer is actually barley? water is the main ingredient.  It may be really diluted down to even less ppm?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

That's a good point.  I think this is just another case of being overly worried about a non-issue.  They test the product in at 5 ppm's and that is not an amount that is going to cause damage in the vast majority of Celiac's.  For those who love beer, they should not fear trying the product.  If it doesn't agree with you, then don't drink it again. It really is as simple as that. 

 

Same case as with oats.  There are still those who choose to believe that a celiac should never eat oats, as it will damage your gut.  I love oats, eat the certified gluten-free ones and have never had a problem.  My blood work is always really good so I'm sticking with my oats!  :)

bartfull Rising Star

Yeah but I thought I read that the tests for barley aren't very accurate.

nvsmom Community Regular

I (accidentally) drank a "gluten removed" Daura beer that was gluten-free to 6ppm.  After that, I will never try another product started from barley even if it is supposedly safe.  I would wait and let others be the guinea pigs for a year or so and then reconsider it based on their experiences.

cap6 Enthusiast

Here in Oregon we have a beer called Omission. It is barley based but has been highly processed to remove the harmful gluten. I have no idea how they do it but after processing it falls within the considered "safe" zone for gluten. My gluten intolerant partner and two gluten intolerant friends all drink it, love it and have had not issues with it. I, who am celiac, have not had it but then I have never liked beer of any kind. If I liked it, would I try it? Not sure. That said, I would think that a highly sensitive person might have problems but technically it is considered "safe".

bartfull Rising Star

Cap, there are several threads here about Omission Beer. Do a search and you'll see that a bunch of people here tried it and got sick. And then there is this: Open Original Shared Link

 

Don't take the chance. There are other gluten-free beers that taste better anyway.

Pegleg84 Collaborator

The very idea that you can "breed" the gluten out of barley is pretty incredible. Indeed, if the testing is correct, 5ppm is ok for most Celiacs (though not me). Good on em! As long as it's marketed as still containing trace amounts.

 

I, however, am one of those people who can't handle the mysterious "gluten removed" beers, and though a beer brewed with this low-gluten barley would probably have less PPM, I probably still wouldn't touch it. There are quite a few good completely gluten-free beers out there now.

 

Still, Science! It's great there are people out there working on these problems.

cap6 Enthusiast

Cap, there are several threads here about Omission Beer. Do a search and you'll see that a bunch of people here tried it and got sick. And then there is this: Open Original Shared Link

 

Don't take the chance. There are other gluten-free beers that taste better anyway.

.Thank you I was only replying to the poster. And, as I stated, my gluten intolerant friends can tolerate it but I would think those who are sensitive would have a problem.

rimsch Rookie

Not sure what you guys are talking about but here in germany we have this: Open Original Shared Link

However, this brewery apparently removes the gluten from the already brewed beer. Therefore it hasn't anything to do with "gluten-free barley" even though it indeed is brewed with barley.

Edit:

The brewery "Lammsbräu" that produces this gluten-free beer I posted the link to is honest enough to acknowledge that there have been celiacs reacting to their beer. Apparently, they even conducted a study in cooperation with a professor. I haven't read the study but the result was that they still can't make out the reason for some celics reacting to their beer. They assume that some celics may have "multi-allergies".

bartfull Rising Star

I think it probably comes back to the fact that gluten in barley for some reason, doesn't show up as accurately on the tests as gluten from wheat.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,386
    • Most Online (within 30 mins)
      7,748

    PamelaW
    Newest Member
    PamelaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...