Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Restaurant Gave Me Regular Bread And I Didn't Realize It


LauraH

Recommended Posts

LauraH Newbie

AAGGHHH!!!  I rarely eat out because I also have microscopic colitis, and my diet is ridiculously restricted and the symptoms quick and severe if I eat something wrong, but I was out with some friends - expected to leave to eat at home, but it went long, so I got brave and ordered cheese and gluten-free bread.  The restaurant has a good reputation for being careful with their gluten-free foods and other dietary issues.    

 

I should have just eaten the cheese since I know that's always safe,  but I was too hungry and lost my good judgment and willpower.  Also I haven't had any bread since my diagnosis,  so didn't really realize for a bite or two that the bread I had was regular bread.  Once I clued in that the bread was too soft,  I asked the waitress (had been really clear about the gluten-free bread when I ordered) and she was barely apologetic.  OMG.  

 

I left immediately to get home before the symptoms started (got glutened a couple of months ago and had uncontrollable d and awful nausea all night long, followed by a few days of joint pain and brain fog and migraine.  I took some gluten-enzyme and have some activated charcoal (pharmacist recommended) for in an hour or so if the symptoms get too bad.  I am having pains and cramping...ugh.  

 

Anyway, this is just a vent and warning - you can't trust ANYONE, always ask again before you start eating if you ordered something that isn't obviously gluten-free (like beans),  and always carry your own snacks!

 

SO frustrated that the restaurant obviously decided I was gluten-free to be trendy and didn't really have a health issue.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

So sorry! Hope you feel better soon!

bartfull Rising Star

Major bummer! :(

 

I always keep a couple of Lara Bars in my purse and a small bag of Planter's nuts. That way if I get caught out late and need to eat at least I have something to hold me over 'til I get home.

 

Hope you get over this quickly.

luvs2eat Collaborator

That's my worst nightmare and why we almost NEVER eat out. I'd have been tempted to stay there and let them SEE what happens when they don't take your gluten free needs seriously... but, for me, it's so severe and explosive (from both ends... sorry for the TMI) that they'd have to scrape me off the floor!

 

Did you contact the restaurant after the fact and let them know what happened?

LauraH Newbie

That's my worst nightmare and why we almost NEVER eat out. I'd have been tempted to stay there and let them SEE what happens when they don't take your gluten free needs seriously... but, for me, it's so severe and explosive (from both ends... sorry for the TMI) that they'd have to scrape me off the floor!

 

Did you contact the restaurant after the fact and let them know what happened?

Yes, I let them know right away and talked to the manager, who offered me different food (uh, no, I had to leave right then for the same reason you'd want to stay and share it with them ;-) ) and then they offered me a gift card, which I declined because I don't plan to return.  I'm doing ok, a few days later - still some stomach pain, joint pain and the squirts, and feeling faint every time I move.  I had forgotten that awful faint feeling, it's been so long since I got glutened.  Other stuff gives me the other symptoms, but gluten must be the only thing that gives me the faints.    

icelandgirl Proficient

Ugh!! I'm so sorry this happened to you! I hope you feel all better soon.

psawyer Proficient

... and then they offered me a gift card, which I declined because I don't plan to return.

Hmm. So... no incentive for the restaurant to improve their practices, since you are not coming back.

I would have accepted the card even if I had no intention of using it, because the hope that I would return could be a motive to actually try to fix the problems.

Just saying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LauraH Newbie

Hmm. So... no incentive for the restaurant to improve their practices, since you are not coming back.

I would have accepted the card even if I had no intention of using it, because the hope that I would return could be a motive to actually try to fix the problems.

Just saying.

 

Good point.  At that moment I really just needed to get home, and didn't feel like I had time to wait for a gift card.  I was wearing light colored shorts... My friends definitely gave the manager and waitress some pieces of their minds too.  They have a decent sized gluten-free menu, so they normally take it pretty seriously, and I expect they will in the future.  It was probably more of a training-of-that-one-waitress issue than a restaurant issue.    

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,070
    • Most Online (within 30 mins)
      7,748

    Sashley
    Newest Member
    Sashley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
    • Scott Adams
      I also want to mention that using prednisone would likely also make the endoscopy results invalid. This steroid will cause gut healing and could mask the damage caused by celiac disease. 
    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
×
×
  • Create New...