Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seemingly Intolerant To Nearly All Foods


Anth480

Recommended Posts

Anth480 Newbie

Hi everyone,

     I have searched this forum many times in the past to try to help myself, and am finally posting now because of the same issues with food. I eliminated gluten about a year ago and all of my symptoms improved for about two weeks, then I began reacting to the rice and beans I'd been eating. Also, I tested negative for Celiac Disease through a blood test. Eventually I realized I had additional food intolerances to all grains, beans, nuts. Over the year after trialing many elimination diets, my food intolerances have grown to the point where I can eat strawberries, raspberries, celery, olive/ olive oil, and fish without any reaction. I am now working with a naturopathic doctor and I introduced organic chicken, and spinach with a lesser reaction, and notice slow improvement in my symptoms with this diet. I have a strong reaction to L-glutamine also. With these few foods I find it hard to reach my caloric needs for the day and I don't know if I could stay on just these until I can tolerate new foods. Has anyone here recovered from being intolerant to nearly every food while eating some of their food intolerances? Or used supplementation to do this? Thank you for your time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Sounds like you were gluten free when you had the celiac blood test. Did I misunderstand? You must be eating gluten for about 8 to 12 weeks prior to the test. Learn more here:

Open Original Shared Link

You might be avoiding gluten in your foods but what about hidden gluten and cross contamination? Have other GI issues been ruled out (IBD, Crohn's, etc.)?

I wish you well!

bartfull Rising Star

When I first started I couldn't even eat lettuce. Just about everything set me off. One of the things that helped was going strictly organic for a while. Grocery store sweet potatoes set me running, organic ones did not. Blueberries took almost four years to get back - even organic ones. Corn was my worst enemy and soy was not far behind. White potatoes, most fruit, you name it, I was intolerant to it. For a long long time I lived on chicken, white rice, broccoli, cauliflower, bananas, and cheddar cheese.

 

I hope it gets better for you soon.

Anth480 Newbie

Hi cyclinglady,

    Thank you for your reply. I was eating gluten before the test for about three weeks. Before that I had a period where I was gluten free on and off for a week or two at a time. I try to be very careful with cross contamination, and am able to tell immediately when I consume gluten in small amounts. Similarly, my reaction to food intolerances occurs very soon after I consume them, and are nearly as bad as gluten. I haven't been screened for Crohn's at all, although it runs in my family. My reactions to food intolerances are usually strong change in mood, difficulty concentrating, fatigue, edema, which I've had consisently in my face and body for about three years now. When I avoid the intolerances and gluten, I go through a phase of detoxification, and all these symptoms slowly subside. Thank you for the well wishes. 

 Bartfull, thank you for your reply. Did you experience neurological symptoms, as well as digestive when consuming your food intolerances? My reactions are primarily neurological with some noticable gastrointestinal symptoms. I hadn't noticed them until I monitored that my digestion is a little weak. 

msh-anth Newbie

Hi, 

 

Funilly enough my symptoms are very similar to yours. I went gluten free, felt great after a couple of weeks. then slowly developed allergies / reactions to other foods and now it seems like I'm running out of runway. 

 

Does anyone have a diet to suggest which I can follow which can reduce my diet back to the very basics so I can re-introduce new foods over time? 

 

Thanks.

stri8ed Rookie

Hi, 

 

Funilly enough my symptoms are very similar to yours. I went gluten free, felt great after a couple of weeks. then slowly developed allergies / reactions to other foods and now it seems like I'm running out of runway. 

 

Does anyone have a diet to suggest which I can follow which can reduce my diet back to the very basics so I can re-introduce new foods over time? 

 

Thanks.

 

Been there before. What I found is, identifying and avoiding problematic foods is not enough, as you may start developing sensitivities to the new foods. You need to get the core of the issue: A hyper-permeable (or leaky) gut allows non-fully digested food parts into the bloodstream. These food-parts are large enough to stimulate the immune system, which then may become "sensitized" to them. So as you can see, given a leaky gut, any arbitrary food may over time become problematic.

 

The solution that worked for me is implementing a Open Original Shared Link. It seems there is a certain threshold of antigens which the immune system will tolerate before sensitization occurs. So the idea behind a rotation diet, would be to keep the antigen concentrations for a given food below that threshold. Here is an image I copied out of an immunology book, which seems to relate nicely:

 

10fb6kj.png

 

In my case, I was doing a 4 day rotation diet to avoid developing further sensitivities, and In spite of this, I had developed new sensitivities (primarily to high protein foods). I found what worked for me, is limiting the protein content to 15 - 20 grams, of a given food, on a 4 day rotation. This makes sense when you consider the immune system is primarily stimulated by proteins. Though I suspect for most people, this additional restriction may not be necessary.

 

In my experience, and many others, once you can identify and avoid all the foods you are sensitive to (and prevent new sensitivities), after some time (months/years) you will be able to eat those foods again, with no reaction.

msh-anth Newbie

@stri8ted 

 

Thanks very much for your reply. I think I might have to try a rotational diet. Its a bit overwhelming. How long did you have to do the diet for ? how are you now ? 

 

Many thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stri8ed Rookie

@stri8ted 

 

Thanks very much for your reply. I think I might have to try a rotational diet. Its a bit overwhelming. How long did you have to do the diet for ? how are you now ? 

 

Many thanks

 

It may seem overwhelming at first, but like all things, once you do it for long enough it becomes second nature. More importantly, if it works, then it is well worth the effort.

 

I did the rotation diet for a year or so. It took some time for me to get it right, as I still had to identify all the foods I already had problems with, so I could exclude them from the diet. The rotation diet actually helped me identify problematic foods. It seems by not eating the food trigger every day, the symptoms became more acute when I did consume it. Currently, I can eat any of the foods I was previously intolerant to, without experiencing a reaction. It's very possible I could have done the rotation diet for a shorter period of time, with the same results, but there is no way to know.

 

If are are overwhelmed at the prospect of maintaining such a diet, why not implement it for a few weeks as an experiment, and see it helps prevent developing intolerances to further foods.

AnelaKini Newbie

I'm in a similar position, although I throw up, and L-glutamine helps me, when I remember to take it (I forget when I'm feeling better, or am too lazy to search the cupboard for it). I use collagen powder in my tea, but I don't know if that would help, since it contains L-gluamine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,739
    • Most Online (within 30 mins)
      7,748

    Klsdurbin
    Newest Member
    Klsdurbin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      That’s an interesting observation! The timing you mention does raise questions about the relationship between modern wheat varieties and the emergence of Non-Celiac Gluten Sensitivity (NCGS). Norman Borlaug’s work on high-yield, disease-resistant wheat during the Green Revolution significantly increased global food production, but it also led to changes in the composition of wheat, including higher gluten content to improve baking qualities. While NCGS was formally recognized as a condition in the 2010s (https://bmcmedicine.biomedcentral.com/articles/10.1186/1741-7015-10-13 and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820047/) , it’s important to note that the awareness and diagnosis of gluten-related disorders have evolved over time. Some researchers suggest that modern wheat breeding practices, along with changes in food processing and gut health, may contribute to the rise in gluten sensitivity. However, the exact mechanisms behind NCGS are still not fully understood, and it remains a debated topic in the scientific community. It’s also worth considering that increased awareness and improved diagnostic tools have played a role in identifying conditions like NCGS that may have existed but were previously unrecognized. The interplay between genetic, environmental, and dietary factors makes this a complex issue, and more research is needed to fully understand the connections.
    • Scott Adams
      Here is a recent reply to a Celiac.com email asking for comment about gluten contamination detected in their bakery products: You can read more about it in this thread:  
    • trents
      @Marie70, it is very important that your daughter not begin experimenting with eating gluten free until all testing for celiac disease is complete. Doing so will invalidate the testing. Normally, the testing involves two stages. The first stage is blood antibody testing as per the article linked by Scott above. As you can see from the article, there are a number of tests that can be ordered when diagnosing celiac disease but most physicians will not order a complete panel. At the very minimum, your daughter should request two antibody tests, "total IGA" and "tTG-IGA". The tTG-IGA is considered the centerpiece of celiac disease testing but if total IGA is low (i.e., if she is IGA deficient), this will result in an artificially low tTG-IGA score and possibly a false negative. Many general practitioners are not very knowledgeable about celiac disease testing so we have found we have to be a little assertive in order to get proper testing done. I don't know under the relational circumstances how much input you will have with your daughter about these things but I thought I'd pass the info on to you anyway. The second stage of celiac disease testing involves an endoscopy with biopsy of the small bowel lining which is then sent to a lab for microscopic analysis. This checks for damage to the small bowel lining and is confirmation if any of the blood antibody tests are positive. It is also considered to be the gold standard of celiac disease diagnosis. Again, should her antibody testing be positive, your daughter would still need to be consuming gluten until after the endoscopy/biopsy is complete.
    • Klsdurbin
      No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed.    stoms and reactions to gluten do change over time, but the fact you have celiacs does not.    I think that a lot of people misunderstand that the goal to managing your celiacs is to eventually test negative for celiacs. This does not mean it went away, it means that your gluten-free diet is working and you’re no longer producing the anti-bodies that will wreak havoc on your health.    if you can access the medical records from when you were 8 and have a GI doctor review them, I would highly recommend you do this. 
    • Klsdurbin
      Inovera offers a supplement called Forvia that they claim is formulated for better absorption for those with GI issues including Celiacs Disease.    I would love to hear if anyone has tried it and thinks it might be good. 
×
×
  • Create New...