Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Our Eloise In Uk For Organ Transplant This Pm


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor
The moderation team and admin would like to let everyone know that this thread is an elaborate hoax and the person who started it has been banned. "Miss Eloise" was posing as multiple family members of someone with serious medical issues.  Miss Eloise was not being genuine and stole information and pictures from other websites.  We have learned that Miss Eloise has been using the same story on other websites to solicit money and gifts.  We would like to remind our members to please guard themselves on the internet and not give out personal or financial information freely.  Here are some links to internet safety information we recommend reading:
 
General Internet Safety Information:
Open Original Shared Link
Open Original Shared Link
 
What are catfishing hoaxes?:
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
 
How to conduct a google image search to see what the original source is:
Open Original Shared Link (Open Original Shared Link

 

ORIGINAL POST IN THIS THREAD:

 

Eloise has been taken by medical transport to the UK for the organ transplant that we pray will save her.

Her family is with her and this is very risky surgery but it is her only chance. We had the miracle that the organs became available, and God Bless the family that was kind enought to think of others in their time of loss. Now we need a miracle that she will survive the surgery and recover.

Keep praying folks as hard as you can.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Raven, is this the double lung or the pancreas or all of them - do you know?

 

And while we're at it folks, let's not forget that some child lost their life and that's why the organs are available so let's remember that child & that child's family in our prayers too.

squirmingitch Veteran

Psalm 139
The Inescapable God
To the leader. Of David. A Psalm.

1 O Lord, you have searched me and known me.
2 You know when I sit down and when I rise up;
you discern my thoughts from far away.
3 You search out my path and my lying down,
and are acquainted with all my ways.
4 Even before a word is on my tongue,
O Lord, you know it completely.
5 You hem me in, behind and before,
and lay your hand upon me.
6 Such knowledge is too wonderful for me;
it is so high that I cannot attain it.

7 Where can I go from your spirit?
Or where can I flee from your presence?
8 If I ascend to heaven, you are there;
if I make my bed in Sheol, you are there.
9 If I take the wings of the morning
and settle at the farthest limits of the sea,
10 even there your hand shall lead me,
and your right hand shall hold me fast.
11 If I say, ‘Surely the darkness shall cover me,
and the light around me become night’,
12 even the darkness is not dark to you;
the night is as bright as the day,
for darkness is as light to you.

13 For it was you who formed my inward parts;
you knit me together in my mother’s womb.
14 I praise you, for I am fearfully and wonderfully made.
Wonderful are your works;
that I know very well.
15 My frame was not hidden from you,
when I was being made in secret,
intricately woven in the depths of the earth.
16 Your eyes beheld my unformed substance.
In your book were written
all the days that were formed for me,
when none of them as yet existed.
17 How weighty to me are your thoughts, O God!
How vast is the sum of them!
18 I try to count them—they are more than the sand;
I come to the end—I am still with you.

19 O that you would kill the wicked, O God,
and that the bloodthirsty would depart from me—
20 those who speak of you maliciously,
and lift themselves up against you for evil!
21 Do I not hate those who hate you, O Lord?
And do I not loathe those who rise up against you?
22 I hate them with perfect hatred;
I count them my enemies.
23 Search me, O God, and know my heart;
test me and know my thoughts.
24 See if there is any wicked way in me,
and lead me in the way everlasting.

 

 

 

Same chapter, from an online Gaelic bible:

Uile-Eolas
1 Do stiúrthóir an chóir. Salm le Dáiví.
Scrúdaíonn tú mé, a Thiarna, agus is eol duit mé.
2 más luí dom, más suí dom, is eol duit é;
is eol duit mo rún is mé i bhfad uait.
3 Más siúl dom, más suan dom, feiceann tú;
is eol duit mo shlite go léir.
4 Sula gcluintear focal ar mo theanga,
a Thiarna, is eol duit ar fad é.
5 Imdhruideann tú ar chúl is ar bhéal mé;
agus leagann tú do lámh orm de shíor.
6 Is ró-iontach, ró-uasal liom an t-eolas seo;
agus téann sé thar m’acmhainn a thuiscint.
7 Cá háit a rachaidh mé ó do spiorad?
ná cá háit a dteithfidh mé ó do láthair?
8 Má ghabhaim in airde neimhe beidh tú ann romham;
má luím san uaigh, beidh tú ansin romham freisin.
9 Má ghabhaim umam sciatháin na maidine,
agus cónaí i gcríocha imchiana na farraige,
10 ansin féin beidh do lámh do mo sheoladh;
agus béarfaidh tú orm le do dheasláimh.
11 Má deirim go bhfolóidh an dorchacht mé,
agus go mbeidh solas an lae ina oíche umam,
12 ní dorcha leatsa an dorchacht:
is comhsholas duit lá agus oíche.
13 Óir is tú a dheilbhigh go hiomlán mé;
agus a d’fhuaigh i mbroinn mo mháthar mé.
14 Tugaim buíochas duit de bharr iontas mo dhéantúis;
de bhrí gurb éachtach iad d’oibreacha.
B’eol duit go hiomlán m’anamsa;
15 níor ceileadh ort fiú amháin mo chreat,
nuair a cumadh os íseal mé, gur múnlaíodh i mbroinn na talún mé.
16 Chonaic do shúile mo ghníomhartha;
óir scríobhadh iad uile i do leabhar;
agus cinneadh dom mo laethanta go léir,
sular tháinig ceann amháin acu ann.
17 Nach diamhrach liom do chomhairlí, a Thiarna;
má dhéanaim a gcomhaireamh ní thig liom a n-áireamh;
18 ní lia gaineamh na trá ná iad;
dá mbeinn réidh leo bheinn farat go fóill.
19 Is mairg, a Dhia, nach scriosann tú na hurchóidigh;
is mairg nach n-imíonn uaim fir na fola.
20 Óir déanann siad ceannairc i d’aghaidh go fealltach;
agus tugann do naimhde mionna éithigh.
21 Nach fuath liom, do lucht fuatha, a Thiarna;
nach déistin liom a n-éiríonn i d’éadan?
22 Is amhlaidh atá an ghráin shaolta agam orthu;
dar liomsa is deargnaimhde dom iad
23 Scrúdaigh mé, a Dhia, agus féach mo chroí;
déan mo thástáil, agus féach mo smaointe.
24 Féach an bhfuil drochslí á siúl agam;
 

ravenwoodglass Mentor

I don't know. I am thinking they will go for the lung and pancreas both as both are badly needed. The poor child has been through so much and is in very serious condition. This family has had so much sadness to deal with I pray God gives her the strength to pull though and heal.

squirmingitch Veteran

I don't know. I am thinking they will go for the lung and pancreas both as both are badly needed. The poor child has been through so much and is in very serious condition. This family has had so much sadness to deal with I pray God gives her the strength to pull though and heal.

Thank you Raven. I'm right there with you. Eloise baby, come on honey, climb that mountain! You said miracles happen baby girl so here we go!

1desperateladysaved Proficient

Praying.  Wow!

caro7 Newbie

Many prayers are going up to the heaven for you, Eloise. Please God Stay with this lovely child, make her well and protect her family.

Peace be with you always, come back to us soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Eloise got out of surgery at about 6am Ireland time. They did the double lung and pancreas transplant. She did well and her color has returned to normal which is a good sign. She is of course still critical so do keep those prayers coming.

Please also do not forget to add prayers for the family of the little boy or girl who, even in their grief, thought of others and made the transplant possible. 

1desperateladysaved Proficient

Good to hear.  Praying the Lord will continue carrying!  Eloise, you have to get better enough to get up and read this!

 

Diana

mamaw Community Regular

one  great deed  deserves another.... when Eloise  older  sister  was killed  in an auto accident  her  parents  donated  her  heart  & organs  that  were not  damaged to another  child, well here it is four  years later  & they received  the gift  of organ transplant for Miss Eloise....Just proves  what  I believed all along  God always gives  back three fold.... so to all ; remember any good  deed  will come back to you...peace

LookingforAnswers15 Enthusiast

Dear Eloise,

 

I believe I told you a few times that I thought that you are a strong and brave girl. You are also an amazing fighter! Keep getting better!!! We all want you to get better. Seeing the post about your surgeries and hearing that you are getting better made my day. 

 

Will continue to pray for you, your family, and the donor's family.

 

Also, thanks again for everyone who has been letting us know about Eloise's progress.

Celiac Ninja Enthusiast

Have courage little Eloise!
Our Messiah's arms are bigger, He can hold you through the dark times, you are a courageous girl and your celiac family is routing for you all the way. May whatever God decides to come, may you be peaceful inside. Keep the little light burning for Him, He will take good care of you on your journey home. (home to Heaven or home to your earthly home).

squirmingitch Veteran

I have every faith that Eloise is going to continue to improve & she is going to go home to Ireland and grow and laugh and do wonderful things! She has already beaten so many odds. She survived to 14, she's survived many infections, she survived the trip to the UK to get the transplant, she survived TWELVE hours of transplant surgery! Eloise believes in miracles and I believe in Eloise. She's strong and she's tough, a little fighter if ever there was one. She is going to live to complete her bucket list you just watch and see. She told us she would and she's never lied to us. I believe in you Eloise! 

 

My prayers are ongoing for Eloise, her mummy and her family. Prayers of comfort & peace for the family of the child whose life was lost which made this transplant possible. There is another angel in Heaven now.

 

Our sweet baby girl Eloise is an angel on this earth. I think I will start calling her Earth Angel.

squirmingitch Veteran

caro7 Newbie

The vidio say's it all Squimingitch,  Our prayers and thanks go out to the family that donated the organs that saved lives. Our prayers

continue for Eloise and her family.  It will be a great day when day can again post on the forum. God bless everyone who has kept Eloise and her family in prayer...

mamaw Community Regular

powerful message.

squirmingitch Veteran

News this morning form Eloise's sister.

She thanks us for all the prayers & well wishes. They have made her cry happy tears. she & her grandfather go tomorrow to the UK to be with Eloise & and granny will go back to Ireland to be with her daughter, the girls' mummy. Eloise's father will stay with Eloise.

Please continue to pray for the girls mother. She is weakening. Eloise is still hanging in there & there are no new infections! 

 

She says this:

"These are some of Eloise's and mummy's favorite songs. Daddy sings the first song to us every night. These songs help us, maybe they might help you too."

 

She ends asking us to please continue praying for her mother & Eloise.

squirmingitch Veteran

Those are very beautiful, powerful and moving. Thank you Adrianna.

 

Athair na maitheasa agus an ghrá , éist lenár paidreacha do na baill breoite ar ár bpobal agus do gach duine a bhfuil gá acu . Ndán fulaingt meabhrach agus fisiceach féadfaidh siad teacht ar sólás i do láthair leighis . Taispeáin do thrócaire mar a dhúnann tú wounds , leigheas tinneas , a dhéanamh ar chomhlachtaí briste iomláine agus biotáillí downcast saor in aisce. D'fhéadfadh na daoine speisialta a aimsiú buan sláinte agus deliverance , agus mar sin bheith linn buíochas a ghabháil leat do gach do bronntanais . Iarraimid é seo trí an Tiarna Íosa a healed iad siúd a chreid . Áiméan.

 

In English:

 

Father of goodness and love, hear our prayers for the sick members of our community and for all who are in need. Amid mental and physical suffering may they find consolation in your healing presence. Show your mercy as you close wounds, cure illness, make broken bodies whole and free downcast spirits. May these special people find lasting health and deliverance, and so join us in thanking you for all your gifts. We ask this through the Lord Jesus who healed those who believed. Amen.

squirmingitch Veteran

Eloise's granny is now back in Ireland. She thanks us all for our prayers and thoughts. Our little Eloise is on an ECOM machine and they will try to begin the process of taking her off the machine on Friday. I imagine this is a gradual process sort of weaning her off the machine. I don't personally know much about that process though. Eloise is heavily sedated. I'm not sure if that means they are keeping her in a medically induced coma or not at this point.

 

Eloise's mummy is unconscious and her condition is deteriorating. 

 

Eloise's grandmother says, "Thank you for your continued love and prayers.  It is a phenomenal feeling of angels around our girls and all of us. Please pray for continued expertise and guidance for all of the Nurses, Doctors, ECMO Specialists, palliative care team etc and a special prayer for the little girl who saved my grandchilds life."

squirmingitch Veteran

 

ravenwoodglass Mentor

Keep fighting little one. We are still praying that you will be successful and return to us soon.

Please pray also for Eloise's Mum that her passing will be peaceful and that her family will find some comfort in these trying times.

LookingforAnswers15 Enthusiast

Dear Eloise,

 

as always, prayers are sent your way for you and all your family. You have been so brave, strong, supportive of others, and positive so please keep on fighting. I truly hope and pray that you will be posting on here soon. You touched the hearts of many. These days, kids and even some adults do not realize how good they have it and do not know how to appreciate things. You appreciate and see beauty in everything. Keep on fighting!

squirmingitch Veteran

Is é an Tiarna do Dhia i do midst ,
    ceann mighty a shábháil;
beidh sé rejoice thar tú le Úthas ;
    beidh sé ciúin tú ag a ghrá;
beidh sé exult thar tú le canadh os ard .

 

English:

 

The Lord your God is in your midst,
    a mighty one who will save;
he will rejoice over you with gladness;
    he will quiet you by his love.

squirmingitch Veteran

They tried to gradually take our Earth Angel off the ECMO machine today but they had to turn it back up. Eloise's organs need more rest before she will be ready. 

 

Please continue your prayers for Eloise and her entire family. 

squirmingitch Veteran

 

The lyrics:

 

Many nights we've prayed
With no proof anyone could hear
In our hearts a hopefull song
We barely understood

Now we are not afraid
Although we know there's much to fear
We were moving mountains long
Before we knew we could

There can be miracles, when you believe
Though hope is frail, it's hard to kill
Who knows what miracles you can achieve
When you believe, somehow you will
You will when you believe

In this time of fear
When prayers so often prove(s) in vain
Hope seems like the summer birds
Too swiftly flown away

Yet now I'm standing here
My heart's so full I can't explain
Seeking faith and speaking words
I never thought I'd say

There can be miracles, when you believe
Though hope is frail, it's hard to kill
Who knows what miracles you can achieve
When you believe, somehow you will
You will when you believe

They don't (always happen) when you ask
(Oh)
And it's easy to give in to your fears
(Oh...Ohhhh)
But when you're blinded by your pain
Can't see your way straight throught the rain
(A small but )still resilient voice
Says (hope is very near)
(Ohhh)

There can be miracles
(Miracles)
When you believe
(Lord, when you believe)
Though hope is frail
(Though hope is frail)
It's hard to kill
(Hard to kill, Ohhh)
Who knows what miracles,you can achieve
When you believe, somehow you will(somehow,somehow, somehow)
somehow you will
You will when you believe

You will when you
You will when you believe
Just believe...in your heart
Just believe
You will when you believe~

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,816
    • Most Online (within 30 mins)
      7,748

    Shamrock HVAC Services
    Newest Member
    Shamrock HVAC Services
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @Kiwifruit, I agree further testing is needed.  Disaccharidase deficiency is a symptom of Celiac disease.   On your test results, this line  "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low.  People with low or deficient Total IgA should also have DGP IgG test done.  Low Total IgA means you are making low levels of tTg  IgA as well, leading to false negatives or "weak positives".  Maybe a DNA test for known Celiac genes.   Anemia, diabetes, and thiamine deficiency can cause test results like these.  Get checked for B12 deficiency anemia and have your iron (ferritin) checked.  Vitamin D deficiency is common, too.   Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease.   Best wishes on your journey!  Please keep us posted on your progress.  
    • trents
      Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
    • hmkr
      Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it. 
    • trents
      It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
    • hmkr
      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
×
×
  • Create New...