Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Our Eloise In Uk For Organ Transplant This Pm

ravenwoodglass

Recommended Posts

squirmingitch Veteran
squirmingitch
Posted

HAPPY, HAPPY, HAPPY NEWS!!!!!!!!!!!!!!!!!!!!!!!

This news from Eloise's sister:

"Prayers are being answered!

The doctors wanted to try again to wean my sister off ECMO today.
They have been decreasing flow from ECMO(heart and lung bypass)every few hours today and my little sister is doing well!!!!!!!!!!yay!!!!!!!!!At last!!!!!! Her new lungs are starting to work a bit on their own her heart is getting better too.Her new pancreas is good but her liver and kidney aren't good but crrt and medicine is helping. At 8pm Eloise is going to be clamped off ECMO for a short time and put on full ventilation to see how she does. If she does good then goodbye ECMO.goodbye hopefully forever!!
Thank God!!At last!!"

 

Our little Earth Angel has decided nap time is over & it's time to fight again. Go Eloise GO!!!!! I'm sooooooo proud of you sweetie!!!! Keep up the good work baby doll!! 

Meanwhile we are still praying. This is going to be a tough fight little one but you came through the transplant surgery with flying colors. We have faith in you. Miracles DO happen. xxxxooooo

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LookingforAnswers15 Enthusiast
LookingforAnswers15
Posted

Great news!!! Eloise you can do it! Prayers will continue coming your way.

ravenwoodglass Mentor
ravenwoodglass
Posted
  • Author

Great news and thanks for sharing. Prayers are continueing for the whole family.

psawyer Proficient
psawyer
Posted

The moderation team would like to let everyone know that a recent member was posing as multiple family members of someone with serious medical issues.  This person was not being genuine and stole information and pictures from other websites.  We have learned that this person has been using the same story on other websites to solicit money and gifts.  We would like to remind our members to please guard themselves on the internet and not give out personal or financial information freely.  Here are some links to internet safety information we recommend reading:

 

General Internet Safety Information:

Open Original Shared Link

Open Original Shared Link

 

What are catfishing hoaxes?:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

 

How to conduct a google image search to see what the original source is:

Open Original Shared Link

The celiac.com moderating team

psawyer Proficient
psawyer
Posted

To add to my post just above, we have a very compassionate and caring community here at celiac.com who help each other. It is troubling to me, and I am sure to many others here, when an outsider tries to take advantage of us. But please continue to participate and help. I have been a member here for more than ten years, and a moderator for more than eight, and this event is exceptional.

Scott Adams Grand Master
Scott Adams
Posted
The moderation team and admin would like to let everyone know that this thread is an elaborate hoax and the person who started it has been banned. "Miss Eloise" was posing as multiple family members of someone with serious medical issues.  Miss Eloise was not being genuine and stole information and pictures from other websites.  We have learned that Miss Eloise has been using the same story on other websites to solicit money and gifts.  We would like to remind our members to please guard themselves on the internet and not give out personal or financial information freely.  Here are some links to internet safety information we recommend reading:
 
General Internet Safety Information:
Open Original Shared Link
Open Original Shared Link
 
What are catfishing hoaxes?:
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
 
How to conduct a google image search to see what the original source is:
Open Original Shared Link (Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,195
    • Most Online (within 30 mins)
      7,748
    peebo
    Newest Member
    peebo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Alpine Brand Spiced Cider

      By WednesdayAddams13 · Posted

      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      Family education

      By trents · Posted

      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Family education

      By Rogol72 · Posted

      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Supplements for those Diagnosed with Celiac Disease

      By peg · Posted

      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Cycle of dermatitis herpetiformis

      By Hopeful1950 · Posted

      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...