Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

lpellegr

Recommended Posts

lpellegr Collaborator

I just got a box of Cheerios for the rest of the family, and they say "gluten-free".  Which made me wonder how did they do it?  I react to oats, ironic after eating 3 bowls of Cheerios every day for 30 years, so I avoid them, even gluten-free, but I was curious.  Did they actually use gluten-free oats, and would there be sufficient supply?  Wouldn't they have to raise the price?  On the back of the box they explain: they SORT the oats from conventional fields to remove wheat, rye, and barley.  Okay, that's probably done by computer, and I've seen enough of those "how it's made" shows to know that they can do it rapidly, using puffs of air to knock the offending grains out of the line, but how rigorous is this?  I have to assume that they wouldn't claim it to be gluten-free unless they were pretty sure about it, but would you eat them?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Would I eat them? No way. IMHO it sounds like there would be a big risk of CC.

mommida Enthusiast

There is an add on the side bar explaining the gluten free cheerios.  The oats are sifted to separate wheat, rye, and barley out.  The finished product has then been tested to be labeled gluten free. 

I will try them.  I do have some problems digesting oats, because I have not been eating them for YEARS. 

StephanieL Enthusiast

They have an endorsement from the celiac disease association or something and they test post production to less that 20 PPM which should be fine for most people with Celiac. 

 

I found them at our grocery store yesterday and my kids are in love! Haven't had them in the house for 5+ years and they are happy as clams and no complaints. 

nvsmom Community Regular

This is an email that GM sent Gluten-Dude a few months back:

 

 I just wanted to share an update with you on Gluten Free Cheerios, in the interest of continuing the dialogue with you. We know there have been some concerns in the celiac community, and one of the ways we want to address those concerns is through increased transparency. I know you’ve seen Tricia’s recent post on Cheerios, and we continue to work directly with her to address her concerns. The below is new data of our first month of production that we have not published yet but will continue to be part of our transparency journey with the celiac community. I wanted to share it with you immediately to help alleviate any concerns you may have about the safety of our product for your community.

We have 34 days of Original Cheerios production across our 4 Cheerios plants. Each of those run days has at least 12 samples that we pull.

– The mean ppm of those samples is 7.
– 30 days had an average < 10ppm - 2 days = 11ppm; 2 days = 12ppm Furthermore, we have some data on some of the other flavors (that run less frequently due to size of business). - Multi-Grain Cheerios: 2 run days across 2 plants -- Mean <5ppm - Apple Cinnamon Cheerios: 1 run day across 1 plant --Mean <5ppm As always, if you have any questions please don’t hesitate to reach out. We are likely talking to Tricia on the 12th or 13th and would be happy to update you on some of the specifics of that dialogue once we land on the date. Thank you!

Open Original Shared Link

GM showed him this picture of the average cc of oats when not certified gluten-free.  That's how much wheat and barley needs to be removed. ... Eek.

which-cheerios-gluten-free.webp

Open Original Shared Link

GM may be able to make Cheerios safe, but I'll wait on that and let others be the guinea pigs.  For me, it is better safe than sorry.

bartfull Rising Star

The highest result they got was 12 PPM. If I could get them here I would try them. I never was big on cereal but plain cheerios was one that I liked.

kareng Grand Master

The highest result they got was 12 PPM. If I could get them here I would try them. I never was big on cereal but plain cheerios was one that I liked.

If you can get cheerios, you will be able to get them. They are regular Cheerios. Like all the gluten-free Chex cereals are just the regular kind. It might take a few more weeks for the local stores to seek out of the old ones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

That's good to know. I probably won't be getting any soon because cereal is not high on my list of priorities. Not when I can have a grilled cheese on Udi's for breakfast instead. :lol:

cyclinglady Grand Master

Dang, Barty! All your talk of grilled cheese sandwiches drove me to making one last week. I usually never do any grains because any kind of grain spikes my blood sugar, but it was to "die for". I paid dearly though! Bad tummy ache. I became lactose intolerant after my July accidental glutening. Might try it again taking those lactose enzymes as I am doing well with lactose free milk. Hoping I get all dairy back! I tested years ago as a kid with a milk allergy and I think I have finally outgrown the milk protein allergy but now am lactose intolerant due to that glutening. Oh well!

I really want a grilled cheese sandwich again!

bartfull Rising Star

I'm sorry! :(

 

I'm one of those people who can eat the same thing every day forever, IF it is something I like. Used to be greasy cheeseburgers and fries. I don't eat those anymore because the hamburger here is nasty and nobody has a dedicated fryer here. (I know I could make bison burgers and Ore Ida fries, but it's just not the same.)

 

But grilled cheese is my second favorite and I really do eat them every day. :wub:

nvsmom Community Regular

Mmmmm, grilled cheese. :)

squirmingitch Veteran

Yummmmmmm grilled cheese. And if not that, then cheese toast -- makes a nice snack between dinner & bed.

nvsmom Community Regular
  • 2 weeks later...
sharps45 Apprentice

I bought three boxes of them- regular, frosted, and apple cinnamon.  The first two were just fine, the apple cinnamon hammered me.  GM tests so many boxes out of each days production, takes a sample from each box and uses the average of the bunch for their tested sample.  So there could be several boxes in each group that are higher than 20ppm, but because they are averaged the total comes out alright.  If you get one of the boxes that are over, tough luck for you (like I did).  If you do get sick, send the boxtop with the lot number on it back to General Mills. 

Currently there are not enough gluten-free oat producers in the country to supply cheerios with the amount of oats they need, so they have to sort and sample.  Some bad boxes are going to get through.

squirmingitch Veteran

Here is an update on the Gluten Free Cheerios from Gluten Free Watchdog:

Update September 16, 2015

On Monday and Tuesday of this week Gluten Free Watchdog sent a compilation of detailed illness reports related to Cheerios consumption to the FDA Consumer Complaint Coordinator in Massachusetts, the Director of Food Labeling and Standards at FDA, and the Deputy Commissioner for Foods at FDA.

FDA is now aware of the situation. If you believe you became ill after eating Cheerios, FDA is asking that you contact FDA’s MEDWATCH, the Adverse Event Reporting System. You can do this online Open Original Shared Linkor via phone (800) 332-1088. Choose option #4 to speak to a representative.

 

To read the entire update click this link:

Open Original Shared Link

  • 3 weeks later...
mamaw Community Regular

I just got  a  post  stating  honey nut  & cheerios original gluten-free   are being  recalled  from a plant  in Ca.  . Please go to cheerios.com  to check  dates of recall....

RMJ Mentor

Here's the General Mills press release for the recall:

Open Original Shared Link

 

squirmingitch Veteran

It was bound to happen.

Glamma Newbie

After thee stool samples, two rounds of antibiotics and being gluten free for 5 years, I now know why I have been really sick.  I will NEVER purchase this product again.

  • 2 weeks later...
Ankur Newbie

This might be good info I read on Cheerio's website - 

"We are embarrassed & sorry to share an incident that occurred at our production facility in Lodi, California, that allowed wheat flour to enter our gluten-free oat-based system. As a result, original and Honey Nut Cheerios produced on several dates may contain wheat and were wrongly labeled gluten free."

Open Original Shared Link

squirmingitch Veteran

Ankur, you might be interested in reading several of these informative posts:

Open Original Shared Link

Ankur Newbie

what a shame! 

Cindydee Newbie

Cheerios are my all-time favorite cereal and since GM seems to be pretty good with the gluten-free thing, I did try them. They promptly came right back up within minutes. So disappointed that they didn't do a better job with these.

  • 1 month later...
xjrosie Apprentice

My daughter is celiac/diabetic, and we tried these. She has been eating them for about a month and have had no problems whatsoever. We did not get one of the boxes that we affected by the recall, fortunately. She eats these every single morning. When she is glutened, she doesn't get the physical symptoms, but her blood sugar drops to the 20s-30s after about a week of eating gluten. So far, no problems at all.

julissa Explorer

I bought these to give my grandkids for breakfast when they sleep over. breakfast was always a problem, so it's great to be able to get them. would I eat them? nope, not worth it to me 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Debado's blog entry in Debado
      9

      Gluten migranes at night

    2. - Debado commented on Debado's blog entry in Debado
      9

      Gluten migranes at night

    3. - trents commented on Debado's blog entry in Debado
      9

      Gluten migranes at night

    4. - knitty kitty replied to Debado's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Night time migranes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,793
    • Most Online (within 30 mins)
      7,748

    natrurespirt
    Newest Member
    natrurespirt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Brandy969
    • knitty kitty
      Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine.  Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine.  Our bodies make histamine, an important neurotransmitter.  Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles.   Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine.  A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods.   Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines.   Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels.  Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine.  DAO from beef or pork kidney is an over-the-counter supplement that can be taken.   Riboflavin B2 is very helpful for relieving migraines.   Have you been diagnosed with Celiac Disease or suspect you have it?   Happy Holidays!
    • knitty kitty
      @ABP2025, Have you thought about having a DNA test to check for known Celiac genes?    I do hope you will make sure that you are getting sufficient gluten to provoke an autoimmune response strong enough that the antibodies can be measured in the blood.  See article below. Celiac disease affects the absorption of nutrients,  including vitamins and minerals.  Your symptoms may be associated with thiamine deficiency.   Migraines and peripheral neuropathy, phimosis (yes, even this), and white spots on the brain are seen in thiamine deficiency.  Celiac disease disrupts the absorption of all the essential nutrients, but thiamine can be quickly depleted, in as little as three days.  Thiamine deficiency can occur even if blood tests show normal levels.  Thiamine deficiency can affect antibody production.      
    • Debado
      Anybody ever heard of getting a migrane from gluten and coconut oil ONLY at night?   If I consume gluten or coconut oil, even in the morning,  I will get a migrane. But not until half way thru the night. I don't get this. Why at night? Why not right after I eat?
    • trents
      Early on,  DQ2 and DQ8 were the primary genes that have been connected to the potential to develop celiac genes but more recent genetic research suggests there may be more.
×
×
  • Create New...