Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Epstein Barr Virus

Maddi

By Maddi
in Related Issues & Disorders

Recommended Posts

Maddi Community Regular
Maddi
Posted

I didn't know where to post this so sorry if it's in the wrong thread. So my new doctor is actually a good doctor and has ran a lot of tests and I've only seen him twice. Well my igm was slightly elevated. So he told me that in people my age what's most common is the Epstein Barr Virus. So I get a call from the office and he wants to see me in person. That's the only test he ran last time so I'm almost sure it's bc it came back positive.

Obviously EBV isn't going to cause my digestive problems or my reaction to gluten...at least I don't think. Weird bc I've never had mono.... but apparently that isn't uncommon. Well, I remember getting the flu a few years ago bUT I can't remember if that was before or after my problems started. Is there any connection between EBV and Celiac?

This is unrelated but I talked go my aunt (dad's twin) recently bc I heard she was just diagnosed with fibromyalgia...welllll... she told me she doesn't eat gluten bc she has a problem with it but has never been tested for Celiac. And that she doesn't even eat processed foods bc they make her feel sick. Which got me thinking that maybe she has Celiac! I'm a bit excited about this. Since her mom (my grandmother) is the one with thyroid problems (so do both her of sisters) and my grandmother was diagnosed with IBS.. and is lactose intolerant it kinda all connects. Tomorrow I'll request the Celiac gene tests and hopefully get closer to my diagnosis. I also printed about 20 pages showing people's Celiac diagnosis stories with negative blood serum but positive biopsies. And also there are some studies in there. Hopefully my doctor doesn't find that offensive. I just want to get diagnosed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommida Enthusiast
mommida
Posted

The general thinking:  People can have a gene associated with Celiac.  DQ2 and DQ8 are the most recognized Celiac genes.  (Not the only genes associated with Celiac.)

 

Something has to "trigger" the immune system to start attacking healthy tissue.  Any illness, or stress can be a possible trigger.  EBV has been mentioned by quite a few posters here.  But honestly, you can make yourself crazy trying to figure out what triggered Celiac.  If you have it, you have it and it would be more proactive to concentrate on a healthy gluten free diet. 

 

By the way, your dad should be tested (at least if he is anemic) .  Men can be "silent Celiac" (not really having stomach upset symptoms, but still suffering vitamin defiencies). Female hormones tend to make symptoms worse.

Maddi Community Regular
Maddi
Posted
  • Author

Hello!

Yes, I've read about other that genes might be related to Celiac but the most common are the ones you mention. I need to know if Celiac is a possibility so I need to get tested somehow.

That makes a lot of sense! I just wanted to see if maybe that triggered my problems to try to pin point when my problems started.

My dad isn't anemic but his liver enzymes are elevated and he does have digestive problems (constipation and diarrhea). It'll be hard to get him to actually get tested but I'm going to try to convince him.

  • 2 years later...
intromode333 Newbie
intromode333
Posted

I know this was 3 years ago, but for anyone who reads through this and also for you if your dad’s issues are still unresolved, vitamin B deficiency causes high bilirubin (liver enzymes), with vitamin deficiency being caused by celiacs due to inability to absorb nutrients. high bilirubin is thus a huge indication of celiacs ive realized. ok thats all good luck!!! 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Itsabit's topic in Dermatitis Herpetiformis
      13

      SkinSafe

      Most toothpastes are naturally gluten-free, but this article may be helpful:
    2. Scott Adams
      - Scott Adams replied to Cathijean90's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      I’m terrified it’s too late for me😭

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    3. Itsabit
      - Itsabit replied to Itsabit's topic in Dermatitis Herpetiformis
      13

      SkinSafe

      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in...
    4. cristiana
      - cristiana replied to Sunshine4's topic in Related Issues & Disorders
      5

      Neurologic symptoms - Muscle Twitching and Hand Tremors

      I'd like to second supplementation. Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness. We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and...
    5. knitty kitty
      - knitty kitty replied to Itsabit's topic in Dermatitis Herpetiformis
      13

      SkinSafe

      Hello, @Itsabit, Your journey sounds very similar to mine. I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins. Nutritional deficiencies go along with Celiac Disease. Blood tests are not accurate measurements of deficiency states. The body robs stored vitamins from organs to circulate...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,337
    • Most Online (within 30 mins)
      7,748
    valerieclaire
    Newest Member
    valerieclaire
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      SkinSafe

      By Scott Adams · Posted

      Most toothpastes are naturally gluten-free, but this article may be helpful:  
    • Scott Adams
      I’m terrified it’s too late for me😭

      By Scott Adams · Posted

      This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Itsabit
      SkinSafe

      By Itsabit · Posted

      Thank you for your response. It has some good information for me to investigate further. In answer to your question about Vit D, yes, and it was normal. I am having the B12 level done today. Additionally, I am going to have a urine to test for iodine, after a correlation with it to dermatitis herpetiformis was mentioned in another post. I had read that in my research as well. I am praying that I don’t have that! The dietary restrictions, esp when combined with eating gluten free are horrendous! Talk about malnutrition! Anyway, one step, one day at a time. I’m trying not to get ahead of myself. Not easy. 
    • cristiana
      Neurologic symptoms - Muscle Twitching and Hand Tremors

      By cristiana · Posted

      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      SkinSafe

      By knitty kitty · Posted

      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
×
×
  • Create New...