Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Prescribed Huge Daily Dose Of Zinc

Rhobhan

By Rhobhan
in Coping with Celiac Disease

Recommended Posts

Rhobhan Apprentice
Rhobhan
Posted

I have had a resurgence of symptoms since being diagnosed 8 years ago. I am losing weight, and I have daily diarrhea, fatigue, and slight nausea at times. A gastroenterologist I saw last year at this time did a CT enterography, an enduoscopy and pill camera, and was satisfied I had no signs of lymphoma. His prescription was a daily dose of prednisone and telling me to "live life."

 

This time I am seeing a new gastroenterologist who has and will end up repeating all the tests I had last year. He wants  a "snapshot" of current conditions. He seems more committed to getting to the reason for the symptoms. I hope so, otherwise I will truly be a skeleton before long!

 

The CT scan was "unremarkable," and the push endoscopy revealed, in his words, that I have an "active case of celiac disease."Biopsies were taken, and I am awaiting results. I have been religious about cross contamination and eating non-processed foods containing no gluten.

 

The doctor said a blood screen showed I was very low on zinc, and he prescribed a daily 220mg dose which he said should help with the diarrhea. I am only on my second dose, so I have no results to report.

 

My question: Have any of you had any experience with such a mega-dose of zinc?

 

Any comments or thoughts are welcome.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Did he run a celiac antibodies test too? Intestinal damage could be from causes other than celiac disease. Look at this link to the University of Chicago's celiac website:

Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree with the previous poster that if a celiac panel hasn't been run it should be. If it is or was run and was positive then there are a few things that you should evaluate.

Is there any new med or supplement you may be taking that may not be gluten free? Are you eating any gluten-free oats? Some of us don't tolerate them. How about any of the beers that have 'gluten removed'? Pets that eat non gluten free foods? A significant other that isn't gluten free that could be CCing you with kisses?

I hope you can get down to the cause of this soon.

HannahZ Newbie
HannahZ
Posted

I'm curious, how low was your zinc level, if you don't  mind sharing? Mine was recently tested and found to be low at 50, with reference range for normal starting at 60. I had some trouble with the supplements, as they made me sick. I am taking a lower dose than the prescribed amount since I couldn't keep the zinc down at the prescription dose.

Rhobhan Apprentice
Rhobhan
Posted
  • Author

Did he run a celiac antibodies test too? Intestinal damage could be from causes other than celiac disease. Look at this link to the University of Chicago's celiac website:

Open Original Shared Link

Yes, a celiac antibodies test was run, and the results were negative. That means I have not been exposed to gluten recently. Recall that I was diagnosed 8 years ago with the antibodies test, colonoscopy and EGT.

Rhobhan Apprentice
Rhobhan
Posted
  • Author

I'm curious, how low was your zinc level, if you don't  mind sharing? Mine was recently tested and found to be low at 50, with reference range for normal starting at 60. I had some trouble with the supplements, as they made me sick. I am taking a lower dose than the prescribed amount since I couldn't keep the zinc down at the prescription dose.

I do not recall what the actual level was, other than his remark that it was extremely low. I take the 220mg dose with food and haven't noticed any additional stomach upset. After four doses, my diarrhea is slowly decreasing and I have actually had a couple of good days. Have you tried taking it with a full meal. I'm sure it may decrease the absorption, but I sure as hell didn't want to feel sicker than I have been!

Rhobhan Apprentice
Rhobhan
Posted
  • Author

I agree with the previous poster that if a celiac panel hasn't been run it should be. If it is or was run and was positive then there are a few things that you should evaluate.

Is there any new med or supplement you may be taking that may not be gluten free? Are you eating any gluten-free oats? Some of us don't tolerate them. How about any of the beers that have 'gluten removed'? Pets that eat non gluten free foods? A significant other that isn't gluten free that could be CCing you with kisses?

I hope you can get down to the cause of this soon.

I am not getting any gluten, as I am obsessive about checking EVERYTHING that goes into my mouth and on my skin. gluten-free oats are not a problem. On the occasion I have them they cause no problem. And my wife doesn't kiss me when she's eating! All meds and supplements are checked out as well. My dog eats a food that does not contain wheat. Thanks for your thoughts.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Yes, a celiac antibodies test was run, and the results were negative. That means I have not been exposed to gluten recently. Recall that I was diagnosed 8 years ago with the antibodies test, colonoscopy and EGT.

Was the complete panel run? I ask because I only test positive to the DGP IGA and never to the TTG (I was recently glutened and asked for a re-test). Otherwise, something must be causing villi damage if your antibodies are negative.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,479
    • Most Online (within 30 mins)
      7,748
    SusieW
    Newest Member
    SusieW
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Symptoms & waiting on blood test results

      By trents · Posted

      Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order a celiac panel consisting of, at the very minimum, these two blood antibody tests: total IGA and tTG-IGA. Please do not attempt to limit your gluten intake before the blood draw is taken or you will invalidate the testing. Incidentally, celiac disease is often misdiagnosed as IBS.
    • Jaylan
      Symptoms & waiting on blood test results

      By Jaylan · Posted

      Hi there!  I’ve recently been tested for celiac disease, along with other autoimmune diseases. My symptoms started back in 2018 with joint pain in my knees. Since then, it has progressively worsened. I now have joint pain in both knees, elbows, and sometimes my shoulders. The pain is almost unbearable. I feel so stiff in the mornings, and this stiffness can last the whole day. I also experience swelling and warmth around those areas.   Other symptoms include IBS (diagnosed at age 16), restless legs, chest pain, tiredness, miscarriages, bloating, and sharp pain on the right side of my stomach. In the past, I’ve also had problems with a vitamin D deficiency, and my serum folate levels recently came back very low.   My question is: How likely is it that I have celiac disease?    
    • Rebeccaj
      I think a UTI caused by Aspirin, made me a Celiac

      By Rebeccaj · Posted

    • jimmydee
      I think a UTI caused by Aspirin, made me a Celiac

      By jimmydee · Posted

      Thank you for the information Trents!  
    • robingfellow
      Celebrity Luncheon Loaf Gluten Free

      By robingfellow · Posted

      The Celebrity brand Luncheon Loaf (found at dollar tree, distributed by Atalanta Corporation) is gluten free according to the distributor. I emailed their customer service line for information on the ingredients, and they contacted the vendor and followed up with me that the "starch" ingredient I was worried about is corn and potato. It should be safe.
×
×
  • Create New...